1. How Do We Learn About Diseases? Katie Bratland May 15, 2007

3. What is Celiac Disease?  Intolerance to gluten (wheat, barley, rye)  Inherited autoimmune disease  1 in 133 Americans has it

4. Symptoms  Weight Loss  Distended belly (children)  Diarrhea  Fatigue  Nausea/Vomiting  Tingling/numbness in legs  Reproductive issues

5. 97% don’t know they have it!

6. Complications of Untreated Celiac Disease  Anemia  Osteoporosis  Infertility  Other autoimmune diseases  Cancer

7. What is the problem? How do we increase awareness of celiac disease?

8. Are there communication methods that have proven successful in creating awareness for diseases? Research Question

9. Others Have Done It

10.  Central logo or image  Celebrity or prominent figure  Visibility in entertainment programming  Events  Corporate partnerships  Partnering with high profile organizations  Internet Methods Used by Successful Campaigns

11. Are these methods effective?

12. Survey Methodology  30 people contacted  22 people agreed to send link to 6 of their contacts  Approximately 130 emails with survey link sent out

13. Survey Results  Received 91 responses  70% response rate

14. Results Demographics  66% age 36-65  58% female  86% college degree or higher  64% make over $100K  50% live in Twin Cities Metro area

15. Have you gained awareness of a disease from a fundraising event? Yes 54% No46%

16. Have you gained awareness of a disease from a promotional program? Yes 66% No34%

17. How likely are you to remember a health related cause you heard a celebrity talk about? Very/Somewhat likely 58% Not likely/Very unlikely28% Unsure14%

18. Have you gained awareness of a disease from an entertainment TV show? Yes63% No24% Unsure13%

19. Other than your doctor, what source would you go to for information about a disease?  Health related websites70%  Disease related non-profits19%  Other 8%  Support Groups 3%

20. Are there other effective methods?

21. How do you hear about diseases?

22. Methods Used by Successful Campaigns  Central logo or image  Celebrity or prominent figure  Visibility in entertainment programming  Events  Corporate partnerships  Partnering with high profile organizations  Internet Same slide as shown earlier.

23. Which of these methods are most effective? 1. Internet 2. Corporate Partnerships (Promotions) 3. Central logo or image 4. Celebrity or prominent figure 5. Visibility in entertainment programming 6. Events

24. Other Effective Methods  News sources TV news Newspaper Internet News  Word of mouth

25. Are there communication methods that have proven successful in creating awareness for diseases? YES, but…

26. Recommendations  Use successful campaigns methods Internet Corporate partnerships Logo Celebrity Entertainment programming Events  Add other effective methods……. News sources Word of mouth

27. Questions?

28. Thank You! For more information visit www.celiaccentral.org