1. Arizona Statewide Independent Living Council (AZ SILC) The Disability Empowerment Center Suite 214 Suite 214 5025 E Washington Street Phoenix, AZ 85034 602/262-2900, voice/TTY www.azsilc.org

2. AZ SILC SILC Staff: Tony DiRienzi Executive Director tony@azsilc.org Linda Jane Austen Director of Administration linda@azsilc.org linda@azsilc.org

3. AZ SILC SILC, with the support of the AZ Department of Health Services, will conduct workshops around the state related to Emergency Services and Functional Needs..

4. AZ SILC The purpose of this presentation is to acquaint you with SILC and provide an introduction to the content of our Functional Needs Workshops.

5. AZ SILC Workshop topics: What are Functional Needs? Who has Functional Needs? How Functional Needs Impact the Planning for and Delivery of Emergency Services. Best Practices

6. AZ SILC SILC is an AZ Governor’s advisory council and non profit organization, whose members: Are a majority of people with a disability, Represent the diversity of AZ, Assess and advocate for issues related to Independent Living.

7. AZ SILC Independent Living is essentially about the Civil Rights of People with Disabilities.

8. AZ SILC The goal of Independent Living is to ensure that people with disabilities have equal access to live and participate in their community.

9. AZ SILC People with Disabilities are the majority of the Functional Needs Population

10. AZ SILC Integral to Independent Living is addressing the Functional Needs of people.

11. AZ SILC There are 5 major categories of Disabilities Mobility, Sensory, Cognitive, Mental, and Multiple.

12. AZ SILC The Functional Needs population is a broad spectrum of individuals that use a wide range of interventions to independently accomplish Activities of Daily Living.

13. AZ SILC Activities of Daily Living (ADLs) are used to describe and indicate the functional level of individuals.

14. AZ SILC ADLs include: Walking Personal Hygiene Dressing Self Feeding Toileting Communicating

15. AZ SILC An individual’s ability to accomplish ADLs is used as a criteria to measure their independence.

16. AZ SILC Equipment, services, and/or pharmaceuticals are interventions used to support Functional Needs.

17. AZ SILC Equipment includes: Audio output electronic devices, Consumable Medical Supplies (CMS, e.g. catheters), Durable Medical Equipment (DME, e.g. wheelchairs), Video telephones.

18. AZ SILC Services include: American Sign Language (ASL) interpreters Computer Assisted Real-time Translation (CART), Personal Attendant Services (P.A.S.), Service Animals (e.g. dogs).

19. AZ SILC Pharmaceuticals include: Insulin, Cardiac/Pulmonary, Psychotropic, Neurologic, and Antibiotic.

20. AZ SILC People with Functional Needs do not have “Special Needs”.

21. AZ SILC The concept of “Special” discriminates and segregates.

22. AZ SILC Understanding the concept of Accessibility will prevent discriminatory practices and promote inclusive services.

23. AZ SILC Accessibility describes the degree to which a service or environment is equally available to as many people as possible.

24. AZ SILC Major Attributes of Accessibility: Easy to use, enter, reach, apply, Being at hand when needed, Easy to meet, interact with, communicate with, or contact.

25. AZ SILC Planning and implementing supports for Functional Needs will greatly reduce the stress on emergency services’ assets and resources.

26. AZ SILC A Best Practice is to involve People with Functional Needs in the planning process.

27. AZ SILC

31. Functional Categories: Onset Prenatal/Birth Acquired Duration Temporary Progressive Permanent

32. AZ SILC Each category is subdivided into various subcategories. Each subcategory is subdivided into various subgroups.

33. AZ SILC Mobility is the most visible because of anatomical characteristics or DME: Crutches, Oxygen Concentrators, Prosthetics, Scooters, Walkers, Wheelchairs, etc.

34. AZ SILC Mobility Subcategories: Non Ambulatory Partially Ambulatory Ambulatory

35. AZ SILC Mobility Subgroups: Non Ambulatory Paralysis Arthritis Neurological Multiple Amputations

36. AZ SILC Mobility Subgroups: Partially Ambulatory Cardiac/Pulmonary, Temporary Medical Conditions (e.g. broken leg), Pregnant Women, and Aging.

37. AZ SILC Mobility Subgroups: Ambulatory Paralysis of Arms/Hands Amputations of Arms/Hands

38. AZ SILC There are specific Emergency Preparedness issues related to all categories

39. AZ SILC Emergency service issues related to mobility include: Evacuation Triage Transportation Sheltering (not only architectural but, also equipment) Reunification

40. AZ SILC For Emergency Service Personnel: Do not assume what a person can or cannot do, Always speak directly to person, not to companion or interpreter, and Critical questions to ask, What is your Functional Need? How can I best assist you?

41. AZ SILC Emergency Service Personnel: If an individual has a service animal, Please ask, Is this a service animal? What has this animal been trained to do?

42. AZ SILC Individuals may use service animals in all Functional categories: Mobility, Sensory, Cognitive, Mental, and Multiple.

43. AZ SILC How Service Animals are used: Wheelchair users – pulling, retrieving, People who are blind – way finding, Neurological – alert & protect, Cognitive – orientation to environment, Mental –prevent self injury, wake up.

44. AZ SILC Emergency Services Personnel: Do not separate owner and animal, Not a pet, it’s a working animal, highly trained, Do not stroke, touch or give animal food without permission of owner.

45. AZ SILC Service Animals (cont’d) Harness indicates animal is working, it is on duty, If you need to handle the animal use a leash, NOT THE HARNESS, Animal must be in a harness or on a leash, but need not be muzzled.

46. AZ SILC

48. To participate in a Functional Needs workshop and table top exercise contact either: Tony DiRienzi tony@azsilc.orgtony@azsilc.org Linda Jane Austen linda@azsilc.orglinda@azsilc.org