1. Jackson Heart Study Sonja R. Fuqua, PhD, RN
Director of Clinical Quality
MS Primary Health Care Association
**********
JHS Manager of Recruitment and Retention ( )

2. JHS: Timeline Planning Phase - 1996-1997 Feasibility Phase - 1998-1999
JHS - began full study
recruitment began August, 2000
examinations September,
annual follow up began September, 2001
surveillance continuous
Fall Initial meetings with UMC, JSU, TC
February meeting at NIH
April planning meeting with consultants at TC - UMC, JSU, TC, NHLBI, local minority physicians, Whelton, Francis, Cooper, Jamerson
May Commerce Business Daily announcement of JHS
June Epidemiology Course TC
Fall Conference on Cardiovascular Disease in African Americans - JSU - scientific design of the JHS
Jan Draft Community Mobilization Plan and Participant Recruitment Survey
May RFP for 1st exam cycle released
August, 1998-RFP response
November, 1998-review completed
Budget negotiations
June, Contract awarded
Participant Recruitment Survey
Protocol Development
Space development, hiring, training

3. Design
Prospective population-based epidemiology study--also incorporating families
Expansion of the current ARIC study (Atherosclerosis Risks in Communities)
Projected study population: 6500

4. ARIC Atherosclerosis Risk in Communities Study
Goal: study risk factors for CVD in European-Americans and African-Americans
4 centers
Jackson, MS Forsyth Co, NC
Minneapolis, MN Washington Co, MD

5. JHS: Family Component
Family members were included to permit studies of familial/genetic contributions to CVD
Size: 2,000 of the 6,500 JHS cohort sample
Eligibility: Index family member has 2 full siblings and a minimum of 9 first degree, age eligible relatives in study area

6. Content for JHS Exam Medical and family history Medications
Lifestyle factors
Sociocultural factors
Anthropometry
BP, ECG
Echocardiography
Carotid Ultrasound
Brachial Reactivity
Pulmonary Function
Extensive Blood work
Long-term storage of frozen specimens and DNA extractions

7. JHS: Interview Components
Demographic information
Personal and family health history
Medical history (stroke & reproductive)
Medication use history
Smoking and alcohol use history
Nutrition
Physical activity
Sociocultural

8. JHS: Sociocultural Components
SES
Health Care Access
Stress
Coping
Religion and religious coping
Social support and integration
Depression
Anger & Hostility
Optimism
John Henryism
Job Latitude
Discrimination

9. Participants 6,500 participants African American 35-84 years of age
2,000 ARIC
2,000 Family Study
2,500 Randomized sample
African American
35-84 years of age
Residents of Hinds, Madison, or Rankin county

10. Cost to Participate FREE Time expenditure
Home Induction Interview---1 hour
Clinic Examination—4 ½ hours
24-hour AMBP and urine—24 hours
Annual Follow-up—30 minutes

11. BENEFITS Comprehensive medical exam ($4000)
Assist in understanding the problem of African Americans and CVD
Build a healthier tomorrow
“Friendship” network

12. Recruitment Process Contact letter—invitation to participate
Three attempts for home contact
Alternate: daytime, evening, weekend
First attempt—door-hanger with business card
Second attempt—add “happy”
Two attempts either home or phone contact
May suspend efforts after five attempts

13. Recruitment Revisions
To meet the demands of recruitment goals:
Five recruiters became 11
Allowed phone calls
Increased--focused community activities
Accepted volunteers
Randomized
Per demographics and county

14. Jackson Heart Study Recruitment Challenges
Awareness
-Improved in recent months
Contact challenges
-Imperfections in list
-Caller I.D./Telemarketer and junk mail aversion
-Avoidance due to negative expectations/suspicion
-“Random approach”

15. Recruitment Challenges
Acceptance
-70-80% once contact is made
Clinic appointments
-80% keep appointment after initial home interview
-Transportation issues;other barriers
-Change of heart
-Compensation/incentive

16. JHS Recruitment: Ended March 31, 2004 TOTAL Recruited: 5302

17. JHS Recruiters

18. JHS RETENTION Annual Follow-Up Interviews
Participant Birthday Cards, Newsletters, Volunteer Opportunities
JHS Annual Family Reunion
Community Health Advisors Network (CHAN)
Community Partnerships and Outreach

19. JHS Exam 2 JHS Exam 3 September 2004—December 2008
85% returned for the second exam
JHS Exam 3
February 2009—March 2013

20. Ancillary Studies Ancillary studies added
Peripheral Arterial Tonometry (PAT), which looks at the health of your blood vessels
A study that is looking for a relationship between heart disease and hearing loss;
MRI (Magnetic Resonance Imaging) of your heart
Health Promotion Study (Yoga Study)
Sleep Study

21. Where do we go from Here? Ongoing Retention Efforts
Community Partnerships and Outreach
Community Health Advisor Education and Activities
TRIPP
Translating Research Into Practice and Prevention

22. Building a
Legacy
of Health...

23. To be a “Professional” How do you put a giraffe into a refrigerator?
Open the refrigerator, put in the giraffe and close the door.
This question tests whether you tend to do simple things in an overly complicated way.

24. Professional……… How do you put an elephant into a fridge?
Open the refrigerator, put in the elephant and close the door. (WRONG)
Open the refrigerator, take out the giraffe, put in the elephant and close the door.
Test the ability to think through the repercussions of your actions.

25. Professional…………
The Lion King is hosting an animal conference. All the animals attend except one. Which animal does not attend?
The Elephant. Its in the refrigerator.
This tests your memory

26. Professional………..
There is a river you must cross, but it is inhabited by crocodiles. How do you manage it?
You swim across. All the Crocodiles are attending the Animal Conference.
This tests whether you learn quickly from your mistakes.