1. Empowering Families to Lead Peer-to-Peer Caregiver Support Groups Kari Berit, M.S. National Speaker, Author, and Radio Show Host KYMN1080 www.kariberit.com

2. Background My story The two grants Today’s webinar

3. Why Peer-to-Peer? Are you kidding? I want professional guidance Peer-to-Peer (in person) It’s not for everyone—stories from groups I was one of the peers

4. Experiences from Groups Women’s Alanon experience UCC youth group Dad’s grief group The Unexpected Caregiver Support Group “It feels like a safe space to share and vent.” “I am not alone in my challenges.”

5. Reluctance to Embrace ‘Caregiver’ Not a ‘caregiver’ Use of ‘Unexpected’ Focus on aging parents

6. Unexpected Peer-to-Peer Support Groups Researching the landscape of groups Discussion topics Personal stories Guest speakers The script “I am happy this group has structure and education”

7. Why a Script? Settle, breathe, shift focus

8. The Script Set the timeframe & welcome Explain goals and rules Welcome new participants Acknowledge struggles Explain confidentiality Share group process Close the group

9. Check-in I have the floor Sacred space “It’s a safe place to express one’s self, even to cry” Moderator’s role

10. Discussion Topics “The learning part of each meeting has been surprisingly insightful.” © 2011 Family Caregiver Alliance

11. Supply of Discussion Topics www.kariberit.com www.caregiver.org Discussion:What do family caregivers want/need? (type in your response to the question box) “I learn from other participants’ experiences, and maybe I can use that information to help my mom.”

12. Launching the Groups Awareness raising ID potential sites Meet and enlist potential moderators/leaders Advertise groups-specific time period

13. © 2011 Family Caregiver Alliance

14. What Worked & What Didn’t NRC St. Peter’s Lutheran St. Olaf College Wells Fargo Northfield Senior Center Overall church response

15. Future Plans Respite for caregivers to attend groups Ad hoc methods (telephone, etc.) Video training Web forum Further discussion

16. Resources Peer-Centre of Excellence in Peer Support-www.peersupportvic.org The Support Group Sourcebook by Linda L. Klein Adult Children of Alcoholics by Janet Geringer Woititz, Ed.D. Al-Anon’s Twelve Steps & Twelve Traditions Telephone interviews with psychologists, social workers, health care workers Telephone participation in on-line support groups, participation in in-person support groups Focus group interviews www.caregiver.org Family Caregiver Alliancewww.caregiver.org www.unexpectedcaregiver.com Unexpected Caregiverwww.unexpectedcaregiver.com www.liftcaregiving.com Lift Caregivingwww.liftcaregiving.com www.girlfriendswithagingparents.com Daughters with Aging Parentswww.girlfriendswithagingparents.com

17. Family Caregiver Alliance is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.educationservicesresearchadvocacy FCA established the National Center on Caregiving (NCC), to advance the development of high-quality, cost effective programs and policies for caregivers in every state in the country. The NCC sponsors the Family Care Navigator to help caregivers locate support services in their communities.National Center on Caregiving Family Care Navigator FCA also operates the Bay Area Caregiver Resource Center in the six-county San Francisco Bay Area. The staff of family counselors works closely with families caring for ill or elderly loved ones. Our services, education programs and publications are developed to offer these families direct support, vital information, and effective tools to manage the complex and demanding tasks of caregiving.Bay Area Caregiver Resource Center