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Parkinson’s Finding the cure Presentation 23.02.10
Caroline Morris - Education & Training Officer South West & Channel Islands Finding the cure Presentation
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Our Programme Today…………
What is Parkinson’s? Symptoms and Impact of Parkinson’s Managing Parkinson’s The work of Parkinson’s UK
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Essay on the Shaking Palsy
Dr James Parkinson (1755 – 1824) Essay on the Shaking Palsy “….involuntary tremulous motion, with lessened muscular power, in parts not in action …… with a propensity to bend the trunk forward, and to pass from a walking to a running pace …… the senses and intellect being uninjured.” 1817 Hoxton Square Shoreditch, London
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What is Parkinson’s……. Parkinson’s is a progressive & fluctuating neurological condition Parkinson’s occurs when 80% of dopamine producing cells are lost from the part of the brain that controls movement The cause of loss of dopamine is being researched…….. Dopamine
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Parkinson’s – Incidence & Prevalence
1 in 500 of general population 127,000 in UK in > ,000 in UK by 2020 Average age of diagnosis years Does not discriminate – all ethnic groups Parkinson’s is rarely a hereditary condition (5% of cases) General Practice Research Database (GPRD) 2009
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NICE If Parkinson’s is suspected, patients should quickly be referred (untreated) to a neurologist or to a geriatrician with a special interest in Parkinson’s Follow up every months to optimise treatment and reassess the diagnosis A definite diagnosis of PD is difficult In view of high diagnostic error rate in non-experts, all patients with suspected PD should be referred untreated to a local expert clinician and their PD service
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Diagnosis - Main Physical Symptoms
Slow Movements (bradykinesia) Ability to start a movement (initiation) Reduced size of movements (amplitude) Coordination of movements (sequencing) Stiff, Rigid or Frozen Muscles Problems with turning, getting out of a chair, turning over in bed Fine detailed movements – activities of daily living Stooped posture, difficulty with facial expressions Pill Rolling Tremor 70% of people with Parkinson’s have a tremor More noticeable when a person is anxious
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Impact of Parkinson’s
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Impact of Parkinson’s Communication problems
Mask - Bradyphrenia - Voice Eating & drinking difficulties Saliva, swallowing issues Mobility problems Hypotension Falls & “Freezing” Bladder & bowel problems Pain/Dystonia Anxiety/Depression Dementia Sleep problems Tiredness Tremor General health Complex medication
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Managing Parkinson’s
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Parkinson’s Medications
Medication & GIOT (Day & Night) Levodopa Dopamine agonists MAO-B inhibitors COMT inhibitors Glutamate antagonist Anticholinergics
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Challenges of Medication
Fluctuations in response (“On/Off” effect) Hallucinations, nightmares, confusion Impulsive / Compulsive behaviour (ICB’s) Dyskinesia (involuntary movements)
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Parkinson’s UK
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We’re the Parkinson’s support and research charity
We’re the Parkinson’s support and research charity. We’re committed to finding a cure and improving life for everyone affected by Parkinson’s 14
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Parkinson’s UK Join our Conversation
(web viewed by 95,000 people each month) FREEPHONE CONFIDENTIAL HELPLINE
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Notes Sudhansu
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Parkinson’s Nurse Specialist Service
In 1989 we pioneered the first Parkinson’s Nurse Specialist Since then we have invested over £8 million in funding these nurses There are now 336 specialist nurse posts across the UK, so over 75% of people now have access to a Parkinson's nurse They offer a targeted service to greatly improve the care of PwP
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Information & Support Workers
Up-to-date information on Parkinson’s Emotional support for PwP’s & family Information about benefits and applications Information about and links to local services A supporting voice Links to other Parkinson’s Services: Helpline Website Information Resources Local Branches and Support Group
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Volunteer Educators Raise awareness of Parkinson’s
1 hour talks to care & nursing homes Across the South West
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Parkinson’s Research We are the largest charitable funder of Parkinson’s research in the UK. We have invested over £55 million so far……. 90 Projects (£17 million) 40 projects investigating the causes of Parkinson’s 20 projects to improve life with Parkinson’s 30 projects exploring better treatment and a cure
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Olympic Torch
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South West Olympic Torch Bearers David Denmead (Cornwall)
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