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Published byMalia Mattick Modified over 9 years ago
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Living with Cystic Fibrosis Vaughan Somerville
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Who am I
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1.Heel Prick 2.Sweat Test 3.Heel Prick Diagnosis
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Effects 1 in 2500 people ~ 450 people in NZ Average life expectancy 37-40 97% of males are in fertile What is Cystic Fibrosis (CF)
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BUT…. Cystic Fibrosis isn’t statistics
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The talk is going to cover three main areas 1.Childhood 2.Adolescence 3.Adulthood Living with Cystic Fibrosis
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Treatment Physiotherapy x2 Nebulisers Childhood
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Treatment Tablets Antibiotics Vitamins Creon Childhood
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Treatment Hospital Admissions Childhood
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School Trying to be a ‘normal’ teenager Girls Temptations How to say no Adolescence
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Maturity Self Management Adolescence
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Hospital Time away from friends/school/sport Second home Long days and nights
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Further Education Ups and downs Adolescence
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What the future holds Wife? Children? Adulthood
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What the future holds Career? Adulthood
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What the future holds Transplant? Adulthood
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You have brains in your head Your have feet in your shoes You can steer yourself in any direction you choose -Dr Seuss
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Thank you for letting me share my story, my journey and my life
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