1. Social impacts of terminal illness

2. What? Social impact – Social consequences for the individual Loss of normal activities Pre-death grief Guilt Burden on family and friends ‘Getting your affairs in order’ – Consequences for society Lost production Cost of healthcare Short and long term effect on family and friends, especially children Representation in the media

3. Guilt – Parents: leaving children, losing children – Children: It’s my fault? – Partners: Helplessness Grief – The tragic loss of normality – Welcome to Holland Welcome to Holland Isolation – What do you say? – How do you have a normal social relationship? The Stuff – Treatment, finances, funeral,...

4. The Awfulness

5. Guilt

8. Grief “Why don’t you just die and get it over with?” (Jane Turner lecture) Welcome to Holland (Not about terminal illness)

9. Practicalities

10. Normal? “It’s not about the years in your life, it’s about the life in your years”

11. Links A mother’s journey Give sorrow words – cancer and communication Ipswich hospice