1. WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease Bologna April 2010

2. Albanian Task Force for Celiac Disease Dr. Jovan BASHO Dr. Jovan BASHO Chief of Gastrohepatology Service Chief of Gastrohepatology Service UHC “ Mother Teresa” Tirana UHC “ Mother Teresa” Tirana Dr. Paskal CULLUFI Dr. Paskal CULLUFI Chief of Pediatric Gastrohepatology Service Chief of Pediatric Gastrohepatology Service UHC “ Mother Teresa” Tirana UHC “ Mother Teresa” Tirana Mr. Petro MERSINI Mr. Petro MERSINI Ministry of health –Albania Him Karakushi Him Karakushi Father of a child with CD Father of a child with CD WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease

3. The Diagnostic Guidelines: 1. t TG are available in private and/or public laboratory 2. Endoscopic procedures are available in public and private ( small children ??) 3. Microscopic examination is available in private and public 4. HLA test are available only in private clinics The Diagnostic Guidelines: 1. t TG are available in private and/or public laboratory 2. Endoscopic procedures are available in public and private ( small children ??) 3. Microscopic examination is available in private and public 4. HLA test are available only in private clinics WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease

4. PLANS 1- Creation of Albanian Celiac Disease Association (ACDA) Organizing: 2-Dissemination in national level of knowledge on CD Seminars and conferences with general pediatrician general practitioners 3-Study in regional /country level, tertiary center WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease

5. Pilot study a.We have considered a geographically limited field with about 350000 inhabitants, 1,5-2 hours from reference centre. (The region of our capital will be more appropriate with 1000000 inhabitants) (The region of our capital will be more appropriate with 1000000 inhabitants) b. We have considered the logistic of the study b. We have considered the logistic of the study c. We have detailed all facilities necessary and a approximately cost c. We have detailed all facilities necessary and a approximately cost WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease

6. The Celiac Risk Factors : genetics and environment –Have you ever collected biological samples from families ? NO –Do you have DNA stored ? NO –Would you participate to a Mediterranean bank of families, in order to study genetic risk factors? –Yes, sure WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease

7. “Helping Coeliac” a program across the Mediterraneum “Helping Coeliac” a program across the Mediterraneum 1-What is the progress of the Celiac Association in your country? We have not builded up till now a Celiac Assotiation We have not builded up till now a Celiac Assotiation 2-What do you need as support from ‘Helping the Celiacs’by AOECS? Program Program Statut Statut Functioning (All?) Functioning (All?) WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease

8. Gluten Free Diet Gluten Free Diet a-Gluten free foods are now available in supermarkets Pasta Cookies, biscuits FlourCakes Price is high No restorants for coeliac foods (pizza, or other) WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease

9. Traditional foods gluten free Legumes (beans, peas, lentils) Legumes (beans, peas, lentils) Meat and Alternatives Meat and Alternatives meat, poultry, or fish meat, poultry, or fish Eggs Eggs Milk Products (milk, cheese,yougurts) Milk Products (milk, cheese,yougurts) Mais bread, rice flour, potato Mais bread, rice flour, potato WORKSHOP MEDI-CEL The Mediterranean Network for Celiac Disease