1. Newborn Hearing Screenings in the Latino Population in Utah URLEND Leadership Project 2012 Vance Gunnell Blake Hansen Kaylyn Hum Krish Silva Vanesa Webb Faculty Member: Rich Harward

2. Purpose Determine if there is a problem with lost to follow up for newborn hearing screenings in the Latino population in Utah If a problem does exist, what are the reasons for the lost to follow up?

3. Newborn Hearing Screening 101 1. Before a newborn is discharged, a hearing screening with at least an Otoacoustic Emission (OAE) is obtained Which results in either a pass or fail 2. When an infant fails, they are asked to return for a second screening 3. If the infant fails the second screening, a diagnostic Auditory Brainstem Response is then scheduled. - any of the gold font items are times that the family can be “lost-to-follow-up” http://www.cdc.gov/Features/NewbornHearing/

4. Background Joint Committee on Infant Hearing (JCIH) recommended goal of 1, 3, 6 by 1 month of age: identification of hearing loss by 3 months of age: diagnosis of hearing loss by 6 months of age: implementation of intervention for hearing loss Early Hearing Detection and Intervention also works towards these goals, nationally and by individual states

5. Methods 55 Audiologists and Newborn Hearing Screening Coordinators contact information was obtained These were divided among group members Generated a letter for the contacts 6 questions were developed to collect anecdotal information http://www.surveymonkey.com/s/BRSFK9N Group members sent the letter, including the survey link, to the Audiologists and Coordinators via e-mail

6. What is your role in the screening process? Results What percentage of the Latino population do you serve? RolePercentage Screening Coordinator 60.0% Audiologists26.7% Other13.3% Pediatrician0% RangePercentage >15%33.3% 16-30%46.7% 31-45%13.3% 46-60%6.7%

7. What is the most common reason patients don’t return, listed? Previous experience with families who didn’t return RangePercentage Lack of Transportation 25.0% The family is uneducated on importance of screening 15.6% The family has moved 18.8% Lost contact with the family 18.8% Family is apathetic15.6% Family is resistant to screening 6.3%

8. Share any ideas that may help the problem What is the most common reason patients don’t return, not listed?

9. Future Directions Coincide outpatient screening appointment with another appointment Providing education sessions for screeners at the Community Health Clinics Educating professionals on the cultural differences to “meet-in-the-middle” and working together for a common cause

10. Special Thanks... Dr. Karen Muñoz Steven Jensen, AuD Elizabeth Preston, AuD Teresa Shaffer Rich Harward, AuD Faculty Mentors

11. Feedback: Kaylyn Enjoyed: opportunities to attend conferences clinical observations and PDC to apply family-centered care Suggestions for improvements: Earlier start with orientation Clarification of hours- what counts as didactic vs clinical vs leadership/research

12. Feedback: Vanesa What I liked: Clinic opportunities SM, Refugee Seminars PDCs opportunities Suggested Changes: more information about clinics specific goals and objectives

13. Feedback: Vance Liked: Clinical observations Working with other disciplines Seminars Suggestions: A calendar that shows available clinical opportunities

14. Feedback: Krish What I enjoyed: I really enjoyed attending the various clinics Getting to know how multidisciplinary teams work and the benefits Family centered services The Leadership skills and The knowledge from the seminars What I would like in the future Possibility of adding sites from developing countries to have more opportunities for those trainees

15. Feedback: Blake What I liked: Clinic visits were great Forced out of my comfort zone: research project present to families on topics requiring background research For the future: consider informing guest presenters on their audience branch out to other universities in Utah and other states