1. Clinical Health Information Network: The Power of Information from Policy to Implementation Breakout session feedback 25 June 2013

2. Introduction This slide deck provides a summary of the outputs from group discussions undertaken at the Clinical Health Information Network (CHIN) meeting on 25 June 2013. Each table was asked to debate a series of questions relating to the presentations delivered by Professor Jonathan Kay, Dr Richard Pope, Roy McLachlan and Dr Mark Westwood.

3. Lively debate…

4. “Plan and understand population health in real time.” “Plan, rationalise/expand services according to need.” “Standardisation of data Increase in clinical safety Improve processes.” “Remote working.” “Social media – huge influence.” “Patient expectations and choice - can order shopping, books etc online but cant communicate by email to GP etc.” CQUIN Variety of media – PCs, mobiles-apps, internet Efficiency and cost “Security of data/IG issues of non-IT solutions.” “Ensure share good practice.” “Development of dashboard, performance indicators.” Q1: How will information and IT support the implementation of the digital revolution in the North East? Discuss drivers e.g. 3million lives/CQUIN/digital first

5. Q1a: What are the benefits? “Patient experience.” “Increased safety and joined up communication.” “Standardisation of data/processes.” “Accessibility.” “Information easily interrogated.” “Performance monitoring.” “Information quality.” “Access to clinical data.” “Better decision making.” “Self care / ownership / better control / preventative.” “Improved patient experience.” “Improved diagnostics.” “Meets patients’ changing expectations on how to interact” “Process / pathway design.”

6. Q1b: What are the constraints? “Lack of buy-in at executive level.” “Front line resistance to change.” “Time to effect change and realise benefit.” “Infrastructure.” “Fragmentation of processes / non-existent processes.” “ Not always aware of new informatics developments.” “Trusts not having staff who can develop IT solutions such as apps.” “Data-coding.” “Initial set up costs / financial flows of cost savings.” “Clinical engagement.” “Constant restructuring.”

7. Q1b: What are the constraints? “Slow processes that aren’t digital.” “No EPR.” “Resources / expertise to set up.” “No clinical representation in the absence of CCIO.” “Data cleansing.” “Silo working.” “System inconsistencies.” “Information governance.” “Perception that ‘home/ telehealth’ monitoring as hospital/GP monitoring.” “Resource to prove concept / evidence benefits.” “Clinical engagement.”

8. Q1c: How could you help implement this? “Advocacy – service champions.” “Ensuring clinicians are engaged.” “Focus on patient not the process or system.” “Champion the cause / evidence base / demo added value.” “Keep it simple with quick wins. Use what is already there by sharing.” “Releasing time – patient, staff and NHS.” “Use of alternative media – including smart TVs.” “Find work arounds which use IT.” “Promote social media.” “Engaging with users (NHS staff) and end users (patients).” “Support – ongoing.” “Share best practice within networks.” “Tap into ‘key’ resources.” “Technology strategy within senate.” “Resource and funding to implement.”

9. Q2: How can networks collaborate and should patients / public be involved with them? “Sharing information and ideas.” “Patient and public involvement.” “Why are networks on area not need.” “A network of networks.” “Patient should be involved in collaboration Learn from their experience User generated content – cheap/relevant Widen opportunities Not same nominated persons Make quick and simple Avoid provider bias – allow patient to drive priorities Focus groups have a place How to ensure broad spectrum of users by using different approaches “Network events programme – including service users.” “Right patient involvement / contribution – patient benefits / perspectives.” “YES the better informed they are the more engaged they will be.” “Cross section of patients.”

10. Q2 cont’d: How can networks collaborate and should patients / public be involved with them? “Patient focus rather than disease focus.” “Discussion forums = feedback website.” “Resource / funding and time commitment.” “Share best practice / learning.” “Shared repository of projects Twitter – single portal directory Innovation direct “Virtual meetings.” “Face to face meetings.” “Ensure ask the people who do the job.”

11. Q2a: What are the benefits? “Best practice.” “Experience – models for implementation.” “Streamline care.” “Patients should be involved…Patients at the centre.” “Use of technology – de-mystify.” “Champion the cause / share what works but also what hasn’t and why.” “Linking to other care professionals.” “Discovering links across different networks.” “Sharing contacts – use as a resource.”

12. Q2b: What are the constraints? “Not well understood: Ownership, who’s on what.” “Time.” “Protective culture in Trusts.” “Legalities around social media – Twitter / Facebook and cost.” “Process around patient collaboration.” “Process around complaints.” “Positive feedback – capture EHI Awards.” “Venue – would need to travel to different venues to meet.” “Access to patients.” “Competition / not sharing / business-driven model.”

13. Q2c: How could you help implement this? “Invite patients to network of use local focus groups. Can find these networks via Twitter and Facebook.” “Use social media to ‘test’ opinion and gain information.” “CAPI teams” “What would we do with patient feedback – good or bad.” “Attend, engage and promote benefits and networks.” “Expand network – encourage membership.”