1. Pan- European Network Core Group Uni HH-IMS-CKo 1 EUROFAMCARE Family cargivers’ quality of life and experiences of support in six European countries Dr Barbro Krevers Department of Health and Society University of Linköping Sweden

2. Pan- European Network Core Group Uni HH-IMS-CKo 2 How long have you been caring for elder ?

3. Pan- European Network Core Group Uni HH-IMS-CKo 3 Health

4. Pan- European Network Core Group Uni HH-IMS-CKo 4 Quality of life

5. Pan- European Network Core Group Uni HH-IMS-CKo 5 COPE INDEX Care o f Older People in Europe Screening instrument to detect need in carers of older people 15 items 4=Always 3=Often 2=Sometimes 1=Never Three sub-sections: Positive value scale5 items Negative impact scale6 items Quality of support section4 items

6. Pan- European Network Core Group Uni HH-IMS-CKo 6 Positive value scale Do you feel you cope well as a caregiver? Do you find caregiving is worthwhile? Do you feel well supported by your family? Do you have a good relationship with the person you care for? Do you feel that anyone appreciates you as a caregiver?

7. Pan- European Network Core Group Uni HH-IMS-CKo 7 Negative impact scale Do you find caregiving too demanding? Does caregiving cause difficulties in your relationships with friends? Does caregiving have a negative effect on your physical health? Does caregiving cause difficulties in your relationship with your family? Do you feel trapped in your role as a caregiver? Does caregiving have a negative effect on your emotional well-being?

8. Pan- European Network Core Group Uni HH-IMS-CKo 8 Positive and negative aspects of the care giving situation 4=Always 3=Often 2=Sometimes 1=Never

9. Pan- European Network Core Group Uni HH-IMS-CKo 9 Quality of support section Does caregiving cause you financial difficulties? Do you feel well supported by your friends and / or neighbours? Do you feel well supported by health and social services? (for example, public, private, voluntary) Overall, do you feel well supported in your role of caregiver?

10. Pan- European Network Core Group Uni HH-IMS-CKo 10 Quality of support to the family caregiver 4=Always 3=Often 2=Sometimes 1=Never

11. Pan- European Network Core Group Uni HH-IMS-CKo 11 Quality of support 4=Always 3=Often 2=Sometimes 1=Never

12. Pan- European Network Core Group Uni HH-IMS-CKo 12 Do you feel well supported by your family?

13. Pan- European Network Core Group Uni HH-IMS-CKo 13 If you were ill is there anybody who would step in to help with elder?

14. Pan- European Network Core Group Uni HH-IMS-CKo 14 Overall, do you feel well supported in your role of caregiver? And the distribution of: If you were ill is there anybody who would step in to help with elder?

15. Pan- European Network Core Group Uni HH-IMS-CKo 15 If you were ill is there anybody who would step in to help with ELDER? And the distribution of: Overall, do you feel well supported in your role of caregiver?

16. Pan- European Network Core Group Uni HH-IMS-CKo 16 Quality of support 4=Always 3=Often 2=Sometimes 1=Never

17. Pan- European Network Core Group Uni HH-IMS-CKo 17 Thank You!