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The Oncofertility Consortium At Northwestern University Current status and future directions Brigid M. Smith, Kristin N. Smith, and Teresa K. Woodruff,

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Presentation on theme: "The Oncofertility Consortium At Northwestern University Current status and future directions Brigid M. Smith, Kristin N. Smith, and Teresa K. Woodruff,"— Presentation transcript:

1 The Oncofertility Consortium At Northwestern University Current status and future directions Brigid M. Smith, Kristin N. Smith, and Teresa K. Woodruff, PhD Oncofertility Consortium The Oncofertility Consortium® addresses the complex health care and quality-of-life issues that concern young cancer patients whose fertility may be threatened by their diagnosis and treatment. The Consortium represents a nationwide, interdisciplinary, and interprofessional network of medical specialists, scientists, and scholars who are exploring the relationship between health, disease, survivorship and fertility preservation in young cancer patients. Their work and its findings may also extend to patients who have been diagnosed with other serious diseases and must undergo fertility-threatening treatments.  NIH Roadmap Grant received  Oncofertility website launched  Oncofertility book published  OTC protocols open # OTC patients: 2 Mean Age: 32.5 years 2006 2007 2008 2009 2010 2011 2012 2013 2014  Virtual Grand Rounds (VGRs) begin  Full time Patient Navigator hired  MyOncofertility website launched  National FERTline (866)708-FERT launched  Oncofertility: Ethical, Legal, Social & Medical Perspectives book published # OTC patients: 19 Mean Age: 27.3 years  iSaveFertility iPhone app developed  SaveMyFertility microsite launched  Oncofertility Medical Practice book published  Global Partners join Oncofertility Consortium  NIH SCIPPR U54 Grant received  NPC relocates to Northwestern # OTC patients: 34 Mean Age: 16 years  Oncofertility Communication book published  NPC expands to encompass non-REIs  Current OTC numbers: # Patients: 204 Mean age: 21 years The National Physicians Cooperative (NPC) is a nationwide network of centers dedicated to preserving the fertility of their patients. Patients with cancer and other serious diseases whose progression or treatment is likely to impair fertility can receive access to the most up to date treatments and clinical research at NPC member sites. MISSION STATEMENT To protect and preserve reproductive health through the continuum of care and across the lifespan of patients. VISION STATEMENT The National Physicians Cooperative will investigate ways to mitigate the effects of any disease or treatment on ovarian and testicular function and develop physician-guided tools that will facilitate communication and translation between basic research and clinical practice.  Testicular Tissue Cryopreservation protocol  IRB templates will be available on NPC website  Research Tissue will be sent to Dr. Kyle Orwig at University of Pittsburgh  Expansion of Pediatric Initiative Network  Monthly conference calls  Oncofertility Consortium website upgrade  Build-out male and adolescent pages  Update provider and patient resources  Scientific Help Agreement for Research Endeavors (SHARE) Program  Follicle Take Home Kit  Stadie Riggs tissue Slicer rental  Ovarian Tissue Access Request Process National Physicians CooperativeNext Steps  “Oncofertility” coined  Oncofertility Consortium established  NPC created with 4 core institutions 2015 Oncofertility Conference November 3-4, 2015* Chicago, IL * in conjunction with Critical Mass SAVE THE DATE!


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