1. Assuring Transformation
Transfer of Data Collection to HSCIC, January 2015

2. Presenters
Andy Tookey – Data & Information Lead, NHS England Learning Disability Programme
Robert Cavalleri – Specialist Learning Disabilities Project Lead, HSCIC Community and Mental Health Team
Catherine Faley – Section Head, HSCIC Data Collection Team
Judith Ellison – Higher Information Analyst, HSCIC Data Collection Team

3. Introduction Background:
The Department of Health published Transforming Care: A national response to Winterbourne View Hospital and the Concordat: Programme of Action in December The review of services indicated that failings were widespread within the operating organisation but importantly also evident across the wider care system. The Concordat and 63 actions detailed within the review seek to address poor and inappropriate care and achieve the best outcomes for people with a learning disability, or autism, who may also have mental health needs or behaviour that challenges.
The purpose of this data collection is to ensure that the public awareness of the NHS commitments in the Winterbourne View Concordat is transparent and robust. It will also be used to triangulate with the Learning Disability Census completed by providers on 30 September This process is important for informing and influencing The Winterbourne View Joint Improvement Programme.
It is an accepted principle that services should be local, care and treatment should be appropriate and there should be a substantial and sustained reduction in hospital placements for this group of people. Taking part will help monitor progress towards these goals.

4. Introduction

5. Introduction Why are we holding these engagement events?
The Assuring Transformation quarterly data return is transferring to a new collection system hosted by HSCIC.
This is a ‘live’ system – a completely new way of running the data return.
Commissioners and CSUs need to understand how the system will run, how to keep their data accurate and up-to-date, how to validate historic and current data, and how to access and register on the new system.

6. Purpose Aims of the new collection:
Provide a low burden mechanism to collect these data
Provide high quality assured data at a higher frequency
Provide data to NHS England to drive and monitor improvement
Enable more frequent publication of base data
Provide data to inform 4 national ONS reports
Provide visualisation via HSCIC platform for commissioner comparisons
To support goals set out in ‘Transforming Care’.

7. Purpose Data quality Data security
Why change?
Data quality
Data security
Data reliability, accuracy and validity
Data linkage and triangulation (LDC / MHLDDS)
Timeliness
Reporting
Utility / value
Appropriateness

8. Introduction Legality and IG issues: Directions Section 251
SCCI 2007 Information Standards Notice

9. Purpose Legality and IG issues: Directions
The Health and Social Care Information Centre (Establishment of Information Systems for NHS Services: Assuring Transformation Data Collection) Directions 2014
The National Health Service Commissioning Board gives the following Directions to the Health and Social Care Information Centre in exercise of the powers conferred by sections 254(1), (3) and (6), 262(3)(a) and (b), 262(7) of the Health and Social Care Act 2012.
In accordance with section 254(5) of the Health and Social Care Act 2012, the National Health Service Commissioning Board has consulted the Health and Social Care Information Centre before giving these Directions.

10. Purpose Legality and IG issues: Section 251 approval
Section 60 of the Health and Social Care Act 2001 as re-enacted by Section 251 of the NHS Act 2006 allows the Secretary of State for Health to make regulations to set aside the common law duty of confidentiality for defined medical purposes. - See more at:
CAG 8-02 (a)/2014 Assuring Transformation: Data collection by Clinical Commissioning Groups to populate patient registers and reporting
CAG 8-02 (b)/2014 Data collection by NHS England Area Teams responsible for commissioning secure mental health and child and adolescent mental health services to populate patient register and reporting.
CAG 8-02 (c)/2014 Assuring Transformation: Enhanced Quality Assurance

11. Purpose Legality and IG issues: SCCI 2007 Information Standards Notice
This information standard is published under section 250 of the Health and Social Care Act 2012.
You must comply with this new information standard by the full conformance date.

12. Coming Soon Fair processing and patient objection:
NHS England is developing a patient leaflet which will explain why we are using the patient’s data, and what they should do if they object to their data being used.
A Fair Processing notice is also being developed.
These materials will be provided centrally by NHS England.

13. Purpose Expected improvements in data quality:
Commissioner centric data:
Ambition to reduce the number of people ‘accommodated’ as inpatients
1680/2600 have a planned community discharge date
50% discharge ambition of the March 2014 cohort.
Of the March cohort the 2014 Q1 collection identified 264 uncoded or duplicate records

14. Purpose Expected improvements in data quality:
Collection will address all commissioners of services
1680/2600 have a planned community discharge date
LD census recorded 3250 inpatients - data from the two sources will be aligned
Of the March cohort the 2014 Q1 collection identified 264 uncoded or duplicate records
The live system will not permit duplicate records- fields are mandated
Maintaining the system will indicate movement within time period- monthly

15. Purpose What has the data told us to date?
AT data collection has now been run for four quarters.
NHS England analysts publish Primary and Secondary (cross-tab) information on NHS England website.
The data has shown significant improvements in the proportion of inpatients undertaking care reviews, having a care co-ordinator and having a planned discharge date.
We have an improved understanding of the care settings and Mental Health Act status of inpatients, and the reasons preventing their discharge to a community setting.

16. Purpose What has the data told us to date (cont.)?
Data quality is improving but there are still quality issues – for example, patients (NHS number) being reported by more than one commissioner.
Data flow – the inpatient stock has remained static at around 2600 inpatients, but reported admissions are significantly higher than reported discharges.
We need to be able to identify readmissions – currently this cannot be done in Assuring Transformation with any confidence.
Data and analysis published as static reports.

17. New Process, System and Questions
Catherine Faley
Judith Ellison
Data Collection Team
HSCIC

18. New Process, System and Questions
Overview of new process
Registration
Data Cleansing
Guidance
HSCIC Data Collection system
Validation
Question set

19. Process Overview

20. New Process - Registration
HSCIC
REGISTRATION
DATA SUBMITTER
CALDICOTT GUARDIAN
This will provide access to Data Depot and CAP
HSCIC

21. New Process – Data Cleansing
What we’ll do:
Make code changes (eg Data Dictionary compliance)
Highlight any DQ issues
Send data back to you
What you’ll do:
Liaise with Providers
Update records
Add new records
Prepare data to upload to CAP
Be responsible for uploading data to CAP
KEY MESSAGE: HSCIC ACTIONS IN FIRST MONTH ONLY

22. New Process – Sending Data to Submitters
HSCIC
Upload data
First Month ONLY
DATA DEPOT
Log on using SSO and Download data
DATA SUBMITTER

23. New Process - Guidance Lots of it!!
Operational guidance
Question guidance
Videos
Mailbox:
People at end of phone

24. New Process – Live System
Clinical Audit Platform (CAP)
Secure, tried and trusted
Live System
KEY MESSAGE: csv FORMAT for BULK UPLOAD

25. New Process – Live System
PROVIDERS
S251 approval
Data Depot
SUBMITTER
Update existing records and upload any new records
First month only
CAP

26. New Process – Live System
PROVIDERS
S251 approval
Each subsequent month
SUBMITTER
Update existing records and upload any new records
CAP
KEY MESSAGE: MONTHLY DATA CUT BY HSCIC

27. New Process – CAP Overview
CAP is:
Secure, tried and trusted for clinical audits, supported
Sign on with SSO credentials
Concept of a “LIVE” system
KEY MESSAGE: CAP WILL CONTAIN NO DATA AT BEGINNING OF PROCESS

28. New Process – CAP Overview
Add/Search for Patient Record
If small numbers to upload
When adding additional records
When amending individual records
File Submission Dashboard
Bulk uploads
csv format
KEY MESSAGE: GUIDANCE VIDEOS

29. New Process - Validation
Data will be validated upon submission
All errors will need to be corrected before submission will be accepted
FORMAT (N or AN; DD-MM-CCYY)
“DUPLICATE” RECORDS
If no changes from previous month,
KEY MESSAGE: INSTRUCTION AND GUIDANCE NOTES

30. New Process – Questions: Old and New
Some:
coding changes,
question changes,
new questions
KEY MESSAGE: SEE HANDOUT

31. New Process – Timeline 5 FEB 27 FEB 31 MARCH
COMMISSIONERS LIAISE WITH PROVIDERS AND AMEND / UPDATE / UPLOAD TO CAP
COMMISSIONERS LIAISE WITH PROVIDERS AND AMEND / UPDATE / UPLOAD TO CAP
COMMISSIONERS RECEIVE DATA FROM HSCIC
[ONCE REGISTERED]
5 FEB
DATA CUT BY HSCIC
DATA CUT BY HSCIC
27 FEB
31 MARCH

32. New Process - Summary Registration required
Data will be made available from HSCIC for first month only
Commissioners update or confirm data each month prior to HSCIC cut at month end
Commissioners are responsible for updating system, following liaison with Providers

33. Information analysts:
New Process – HELP!
Information analysts:
Bridget Evans
Clare Burgon
Tim Underwood
David Fisher:
Sarah Freeman:
Glenda Fozzard:
Judith Ellison:

34. New Process
QUESTIONS?

35. How the Data Will Be Used
Tableau visualisation:
Data will be presented in Tableau
Current analysis and data will continue to be available.
Monthly management information published and made available to NHS England operations staff.