1. Paula Kealey Senior Macmillan Development Manager 8 th May 2014 Partnership Working and Developments in Cancer Care

2. The cancer landscape is changing

3. In the past most people died some were cured

4. Earlier detection Advances in technology New targeted therapies Cancer research Today people with cancer are living longer

5. Data from the Scottish School of Primary Care’s Multimorbidity Research Programme.

6. Some of our achievement in 2008

8. What is the Northern Ireland picture?

9. 9 67,000 today

10. The focus of cancer services is on the actual disease

11. FINANCIA L Cancer can impact on all aspects of a person’s life

13. To help people make the transition after treatment we need to focus on recovery

14. Finding out “what matters to you” as opposed to ”what’s the matter with you”?

16. The Five Survivorship Stages Information & Support from point of diagnosis Promoting Recovery Sustaining Recovery Managing consequences of treatment Supporting people with active and advanced disease Improving Survivorship Intelligence

17. The NCSI defined four priorities 1.Redesigning follow-up 2.Recovery package 3.Physical activity 4.PROMs and consequences of treatment

18. http://www.youtube.com/watch?v=5Lw7pu9l6I8&f eature=youtu.be

19. To bring about this change we have formed a partnership Macmillan Cancer Support Health & Social Care Board Public Health Agency NI Cancer Network Involving people affected by cancer in the process

20. Transforming Cancer Follow-up AIMS Improve patient experience after treatment and health and wellbeing Reduce inefficiencies in hospital follow up Enhance service coordination and integration

21. Redesigning Follow Up

22. Promoting Recovery

23. Assessment and Care Planning

24. Treatment Summary

25. Cancer Care Review

26. Cancer health and wellbeing events

27. Macmillan Information & Support Services

28. Financial Advice Services

29. Getting help to get back to work

30. Physical activity is important for ongoing health Patient Packs Exercise to music DVD Jam packed website Macmillan local projects Evidence Reviews

31. Self Management Programmes

32. Diagnosis & Treatment Rehabilitation Early monitoring End of life care [Year 1 deaths] Progressive illness* ’ Rehab across the patient journey Later monitoring 32

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38. Cancer Rehabilitation Scoping: Activities so far Over 60 stakeholder meetings Literature review and full review of key activity in cancer rehabilitation (Mac and non Mac) Survey of Macmillan rehabilitation professionals (n=120) Close liaison with ‘trusted others’ Identification of key themes and next steps

39. Cancer Lifeline Partnership Working

41. To find out about services to support you go to the following web site... www.survivorship.cancerni.net

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