1. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Planning for the Future: Children and Youth with Special Health Care Needs (CYSHCN) Presented by Garry Kelley, Ms MCH Epidemiologist

2. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments CYSHCN Demographics Percent of Kansas Children with Disability Gender Age Group HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

3. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments CYSHCN Race/Ethnicity HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

4. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments National Outcome Measures 1 Percent of CYSHCN whose families are partners in the decision making at all levels and who are satisfied with the services they receive HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center. HRSA. 20007 National Survey of Child Health. Data Resource Center.

5. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments National Outcome Measures 1b HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center. HRSA. 20007 National Survey of Child Health. Data Resource Center. Percent of CYSHCN (0-5 years) who visit a doctor and was not asked about parental concerns.

6. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments National Outcome Measures 2 Percent of CYSHCN who receive coordinated, ongoing, comprehensive care within a medical home HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

7. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments National Outcome Measures 3 Percent of CYSHCN who adequate private and/or public insurance to pay for the services they need HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

8. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments National Outcome Measures 3b HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center. Percent of CYSHCN who have at least one unmet need

9. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments National Outcome Measures 4 Percent of CYSHCN who are screened early and continuously for special health services HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

10. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments National Outcome Measures 5 Percent of CYSHCN whose families report the community-based service systems are organized so they can use them easily HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

11. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments National Outcome Measures 6 Percent of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence HRSA. 2005/06 National Survey of Children with Special Health Care Needs. Data Resource Center.

12. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Transitions Percent of disabled (18-34) who attended college U.S. Census. American Community Survey 2006-2007.

13. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Transitions 2 U.S. Census. American Community Survey 2006-2007. Percent of disabled (16-34) who are employed

14. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Overall Health Percent of youth with special health care needs whose overall health is excellent or very good HRSA. 2007 National Survey of Child Health. Data Resource Center.

15. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Oral Health Percent of youth with special health care needs whose overall oral health is excellent or very good HRSA. 2007 National Survey of Child Health. Data Resource Center.

16. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Condition Impact Health Percent of youth with special health care needs whose health conditions are moderate or severe HRSA. 2007 National Survey of Child Health. Data Resource Center.

17. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Condition Impact Health 2 Percent of youth with special health care needs whose conditions consistently or greatly affect their daily activities HRSA. 2007 National Survey of Child Health. Data Resource Center.

18. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Physical Fitness Percent of youth with special health who engage in rigorous physical activity at least 3 times a week HRSA. 2007 National Survey of Child Health. Data Resource Center.

19. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Physical Fitness 2 Percent of youth with special health who are overweight or obese HRSA. 2007 National Survey of Child Health. Data Resource Center.

20. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Child Care 1 Percent of children with special health needs aged 0-5 years whose parents made different child care arrangements in past month or made employment-related changes due to child care reasons in the past year. HRSA. 2007 National Survey of Child Health. Data Resource Center.

21. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Child Care 2 Percent of children with special health needs aged 6-11 years who spent some amount of time alone without adult supervision in the past week HRSA. 2007 National Survey of Child Health. Data Resource Center.

22. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Employment Percent of children with special health needs whose families experienced financial problems due to child's health needs. HRSA. 2007 National Survey of Child Health. Data Resource Center.

23. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Employment 2 Percent of children with special health needs whose health needs caused family members to cut back or stop working HRSA. 2007 National Survey of Child Health. Data Resource Center.

24. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Parents Percent of children with special health needs whose parents are often angry, annoyed, or frustrated towards their child HRSA. 2007 National Survey of Child Health. Data Resource Center.

25. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments School Percent of children with special health needs who are always engaged at school HRSA. 2007 National Survey of Child Health. Data Resource Center.

26. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments School 2 Percent of children with special health needs who repeated at least 1 grade since Kindergarten HRSA. 2007 National Survey of Child Health. Data Resource Center.

27. Our Vision – Healthy Kansans Living in Safe and Sustainable Environments Questions?