1. MyICU: An Electronic Patient Engagement Portal for ICU Patients and Families Sigall Bell, MD; Tricia Bourie, RN, MS; Samuel Brown, MD*; Sylvain Bruni**; Christina Cain, MPH; Peter Clardy, MD; Michael Cocchi, MD; Juliann Corey, RN, MSN; Erica Dente; Veronica Kelly, RN, BSN; Tae-Eun Kim; Lynn Mackinson, RN, MSN, CCRN; Kristin O’Reilly, RN, MPH; Stephanie Roche, MPH; Barbara Sarnoff Lee, LICSW; Kate Zieja, BS; BIDMC Moore Executive Committee (*Intermountain Medical Center; **Aptima, Inc.) MyICU: An Electronic Patient Engagement Portal for ICU Patients and Families Sigall Bell, MD; Tricia Bourie, RN, MS; Samuel Brown, MD*; Sylvain Bruni**; Christina Cain, MPH; Peter Clardy, MD; Michael Cocchi, MD; Juliann Corey, RN, MSN; Erica Dente; Veronica Kelly, RN, BSN; Tae-Eun Kim; Lynn Mackinson, RN, MSN, CCRN; Kristin O’Reilly, RN, MPH; Stephanie Roche, MPH; Barbara Sarnoff Lee, LICSW; Kate Zieja, BS; BIDMC Moore Executive Committee (*Intermountain Medical Center; **Aptima, Inc.) Aim/Goal Lessons Learned The ICU environment can be overwhelming to patients and their families, leaving them vulnerable to physical and psychological harm. Up to 35% of ICU patients may have symptoms of post-traumatic stress disorder (PTSD) after their ICU experience (Bienvenu OJ, Gellar J, Althouse BM, et al. 2013). Psychological trauma and the potential for physical harm can be mitigated by communication-focused, patient-centered care that promotes patient and family engagement and honors individuals’ values and priorities. Results / Progress to Date Interventions The Problem Next Steps  To implement an electronic patient portal accessible on an electronic tablet in ICU patient rooms  Humanize patients by enabling them to share what is important to them with their care team  Clarify patients’ and families’ values and preferences for care  Empower patients in decision-making by providing them with timely knowledge and context about their ICU illness  Communicate a unified plan of care to patients, families, and providers  Invite family participation in daily care activities  Reduce preventable harms by facilitating patient-sourced reporting of concerns  Provide tools that help patients reconstruct true memories of their ICU experience, thereby lessening the burden of psychological harm  Over 2600 surveys and 3 focus groups conducted with patients, families, and providers to understand stakeholder interest in an electronic communication portal  Consultation with Patient Family Advisory Committee (PFAC) for input/feedback  Content development by multidisciplinary team from BIDMC, Intermountain Health, and Aptima, Inc.  Subgroup meetings to establish appropriate privacy and security safeguards  Ongoing software development/testing to achieve accurate interface and data feeds between MyICU and other hospital IT systems  Tool development to measure impact of MyICU on patient/family satisfaction, communication and psychological harm  Survey participants expressed interest in using an electronic portal to review and share personal medical information, access educational resources, get to know the medical team, and share information about themselves with their care team.  Focus group participants (ICU providers) endorsed the use of a bi-directional electronic portal to enhance patient and family communication with the care team  Patients/families and providers are supportive of a tool to enhance communication and their feedback is essential for prioritizing design elements.  Granting access to MyICU has been challenging due to privacy and security concerns related to content and consent issues.  Consenting and educating patients and families is time-consuming and will require dedicated staff.  Finalize and execute an implementation strategy  Begin baseline data collection for impact assessment  Develop instructional MyICU videos for patients and families  Pilot MyICU in one surgical ICU and one medical ICU in spring of 2015 This project is funded by the Gordon and Betty Moore Foundation For more information, contact: Veronica Kelly, RN, BSN; vkelly@bidmc.harvard.edu

3. This section provides an invitation for families to participate in their loved ones daily activities Communicates a unified plan of care to patients, families, and providers

4. The Family Journal is locked and only available for viewing and editing to the patient and family

5. This view shows the family journal entries as seen by the patient and family

6. This section provides resources to patients and families to better understand their treatment and their surroundings while in our ICU’s