1. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. 1

2. . A culturally appropriate methodology for minority communities to identify, select, & involve researchers capable of engaging communities to conduct Patient-Centered Outcomes Research (PCOR). It is an opportunity for minority communities to be involved in research as never before by selecting researchers who are sensitive to the needs of the minority communities. Patient Engagement Clusters ©are formed in the community. There will be a strong educational component to ensure that the community is knowledgeable of research. It’s universal, replicable, scalable, for any community, population, & group. Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 2

3. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago.. Researchers who are in a position and interested to engage minority communities Researchers who can help to answer the questions that are most important to minority patients/caregivers/stakeholders. Minority communities are involved in every step of the research from partnering in the design of the research to the dissemination and sharing of the results Poor/Negative relationship between medical centers and community are identified, addressed, and removed. Minority communities and researches maintain relationships to continuously engage and design of questions for more research Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 3

4. The S.T.A.R. Initiative Knowledge Exchange and Engagement Program ( KEEP) Touring Exhibit is a year-long healthcare/research engagement & educational exhibit that will provide the community with opportunities to obtain information and resources and to engage in a supportive environment in their places of worship, libraries, hospitals and health centers. The “Touring Exhibit” will continue to increase the participation rates of African- Americans, communities of color, and all underserved communities in patient-centered outcomes research for better health outcomes and shared decision-making. The “Touring Exhibit” will assist in providing additional opportunities to learn about PCOR and increase their capabilities, skill sets to participate and collaborate with academic partners. Our goal for the community to become empowered to participate in research as partners. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 4

5. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. The Borrowed Exhibit from NNLMGMR The S.T.A.R. Initiative “Prototype: Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 5 The KEEP Touring Exhibit is sponsored in part by two awards from The National Network of Libraries of Medicine: They are The Borrowed Exhibit Award and The Exhibit and Event Award

6. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago.. The National Network of Libraries of Medicine Borrowed Exhibit The Borrowed Exhibit will provide consumer health information. It has three panels wide, each 4 feet tall The entire table top opens to a size 6' x 2' x 4' and works best on 8' tables The S.T.A.R. Initiative Display The S.T.A.R. will provide information about patient-centered outcomes research and the benefits of participation for patients. It will provide an opportunity to researchers and community members to learn together. We will show our work, its, mission, and how we are becoming empowered to partner with researchers and promote collaboration and co- learning for research design, conduct and dissemination of results. 6

7. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago.. Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit Get on the Tour Schedule to Be Engaged with S.T.A.R. Participants 7

8. Diabetes Obesity Heart Disease and Stroke Asthma Cancers Dementias This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit Our Focus for Year 2 (and more) 8

9. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. HEALTH & Research TOPICS IN THE TOURING EXHIBIT Chronic Conditions Diabetes Heart Disease and Stroke Cancer Obesity Dementia Research Partnership Development Comparative Effectiveness Research (what it is) Clinical Trials Patient-Centered Outcomes Research Institute (www.pcori.org). Non-profit research organization from the Affordable Care Act.www.pcori.org Institutional Review Boards (IRBs) Patient/Stakeholder Engagement in Research S.T.A.R. Initiative Mobile App – enabling identification and selection researchers and continuous engagement Co-Learning between patients and researchers Patient/Engagement Clusters (research education) Community, Academic Centers, Faith-Based Collaborations (topic development for research Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 9

10. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 10

11. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 11

12. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. Research Education/Topic Development “Grand Rounds” Comparative Effectiveness Research (what it is) Clinical Trials Patient-Centered Outcomes Research Institute (www.pcori.org). Non-profit research organization from the Affordable Care Act.www.pcori.org Institutional Review Boards (IRBs) Co-Learning between patients and researchers Patient/Stakeholder Engagement in Research S.T.A.R. Initiative Mobile App – enabling identification and selection researchers and continuous engagement Patient Engagement Clusters (research education) Community, Academic Centers, Faith-Based Collaborations (topic development for research) Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 12

13. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. Capacity building - In the areas of cancer, diabetes, asthma, obesity, and dementia will result in communities becoming well-informed and education to partner with researchers and clinicians in enhanced shared-decision making for better health outcomes. Technology Use – S.T.A.R. Initiative Mobile App to enable engagement Patient/Stakeholder/Community Engagement – co-learning, topic study, & selection Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 13

14. This project has been funded in whole or in part with Federal funds from the Department of Health and Human Services, National Institutes of Health, National Library of Medicine, under Contract No. HHSN-276-2011-00005C with the University of Illinois at Chicago. CONTACT INFORMATION ****OUR NEEDS**** Sponsors – Funding The Touring Exhibit & Mobile App Development and Implementation Facilitators – Present The Touring Exhibit to your community, patients, providers Hosting the Exhibit – at your church, hospital, clinic, business Regina Greer-Smith MPH FACHE President, Healthcare Research Associates, LLC Principal Investigator, The S.T.A.R. Initiative Twitter; rgreersmith Website: www.star-initiative.com, www.healthcarera.comwww.star-initiative.comwww.healthcarera.com Email: regina@healthcarera.com, healthcareresearch@sbcglobal.netregina@healthcarera.comhealthcareresearch@sbcglobal.net Mobile: 708-764-9607 Office/Fax: 708-335-0519 Knowledge Exchange and Engagement Program K E E P Patient-Centered Outcomes Research Touring Exhibit 14