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Right to Make Decisions about EOL Care End-of-Life Care Challenge from the California HealthCare Foundation: Catalyzing Communication about End-of-Life Care
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2 Patients are able to speak for themselves Peace of mind for loved ones Improve EOL care and QOL Avoid unnecessary suffering, confusion and conflicts Learning and empowerment Good communication and education about end of life is an essential part of healthy aging (Neimeyer, Wittkowski, Moser, 2004). Advance Care Planning
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3 System factors Cultural differences Personal factors Confusion and myths http://www.cdc.gov/aging/pdf/advanced-care-planning-critical-issue-brief.pdf http://coalitionccc.org/documents/FinalChapterDeathDying.pdf
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5 Systematic review (Tamayo-Velazquez, 2010) of AD promotional interventions: Most effective : The combination of informative material, provider initiation, repeated counseling and update
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California nation's largest Asian- American population Between 2000 and 2010, the Asian American population of California grew 34 percent. Chinese born immigrants represented the second-largest immigrant group (after the foreign born from Mexico), and accounted for 4.5 percent of the total foreign-born population. Culturally and linguistically appropriate resources are limited for Asian and Chinese-American populations.
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Hispanics, Asians are most-likely Smartphone owners in the U.S. US has reached 55% smartphone penetration for the age of 18 and above. Seven in ten seniors own a cell phone, up from 57% in 2011 Low income discounted mobile service available in California California low income discounted mobile service http://www.nielsen.com/content/dam/corporate/us/en/microsites/publicaffai rs/StateoftheAsianAmericanConsumerReport.pdf
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Patients Family / Caregivers Other audience Providers 8 English/Chinese Glossary developed by CACCC Chinese POLST & Easy AD Form Translated & Modified by CACCC English-Chinese EOL Materials & Video developed by CACCC Exiting Bilingual Line Support by CACCC Onsite AD Workshops Exiting Bilingual Line Support by CACCC Onsite AD Workshops
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9 Pilot project targeted to one of the fastest growing underserved minority populations Large scale nationwide mHealth EOL education and support services Provide handy resources, tips, updates, support and referrals Mobile interface design (easy icon) for low-literacy and senior populations Linguistically and culturally tailored materials Interactive sessions and media for effective learning Online social network/support opportunities, email updates Increase accessibility of EOL care planning and services Create valuable partnership opportunities mHealth provides a cost-effective solution supplementing interpersonal outreach and intervention
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10 Incorporate Campaign and/or Education Material to Increase Engagement Bilingual Support Click-To-Call Hotline Text-To-Speech Mobile Forum for Resource and Encourage Discussion
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Patients Family / Caregivers Other audience Providers 11 Culturally Appropriate Regional EOL Resource Guides Online/Mobile Continued Medical Education Research project: Partner with academic institute Research project: Partner with academic institute Other language versions: Partner with other community based organizations Other language versions: Partner with other community based organizations
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12 Advance care planning and education is a process, not a single event. The problems with and barriers to advance care planning are multi- faceted. Multi-pronged strategies are necessary to outreach various target audiences. mHealth has been proven to be effective in the field of health behavior change. mHealth can reach out to the fastest growing mobile users, multi- level population. mHealth provides a cost-effective solution, supplementing interpersonal outreach and intervention.
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Right to Make Decisions about EOL Care Mr. Samuel Sung
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