1. 1 Lessons from In Control’s Third Phase 2008 to 2009

2. In Control In Control’s mission is to play a key role in the creation of a new system of social care, where people will control their support, their money and their lives as valued citizens 2

3. 3 ‘I sometimes felt that I was limited in what I can do to bring about the desired change in vulnerable people’s lives by resource- driven service provision and delivery...managers had become more like finance controllers. I was therefore thrilled by the introduction of Self-Directed Support as a more flexible alternative to the existing Direct Payments; especially in leaving users in control of how services are delivered and in the assessment of their own needs...’ (Social worker in LB Newham, 2009)

4. A brief history of SDS, 1 Features of Phase one, 2003 -5 New principles, Keys to Citizenship New operating system, 7 step model Pilots in 6 authorities, questionnaires from 31 people Adults only – people with learning difficulties Phase two, 2005-7 Refined the technology and principles Moving to other social care groups, children and Health Evaluation, 196 people from 17 authorities, all adult groups 4

5. A brief history of SDS, 2 Phase three, 2008-9 Lessons from Total Transformation More confidence about the conditions needed Refining the tools: especially RAS, supported self assessment and support planning Issues for commissioners and providers, professionals, workforce, safeguarding, development of S4S Beyond adult social care: children & families, Health and community A social movement, led by citizens and families Lots more evidence of success – 30000 people with PBs from 75 authorities 5

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8. Hartlepool 8

9. Lessons from TT: Leadership 9 Transformational Picking the stars Managing up as well as down Thoughtful and flexible Picked key issue – DPs Led from the front

10. Lessons from TT: Legitimacy/Understanding 10 Embedding, sustaining and protecting Work with elected members Team managers Social workers Other council departments

11. Lessons from TT: Entitlements 11 “A robust system to put money in the hands of ordinary citizens” Get Supported Self Assessment questions right Recognise people’s gifts from day one A shared contribution

12. Lessons from TT: Supports 12 A good Direct Payments system can be a “support” Financial brokerage Person Centred Planning? Brokerage???? On-going development based on scrutiny of support systems Question – are they fit for purpose

13. Nicola Bailey “We cannot underestimate the significance and power of the cultural change within Hartlepool. This was mainly due to both strategic and operational leadership within and strong external critical friends, mostly from In Control or their associates. The work continues on new grounds, which includes whole life engagement and a corporate approach. This is no longer a simple issue for social care, it’s a local issue which ALL citizens in Hartlepool need to be part of. “ 13

14. Lessons Real visionary leadership is critical This involves active people management...and intervening personally – eg to lead DP group Get some quick wins – DPs in Hartlepool, but whatever is to hand Think whole systems, but intelligently, decide what is most important Listen Be flexible and respond to what arises Don’t let the challenges faze you Stay true to the values 14

15. Beyond Adult Social Care Some key thinking ‘whole life’ – across age range and across domains of life, including health ‘real wealth’ as a key to unlocking capacities for all ‘limits to personalisation’ in Demos work Cross party Political buy-in Demographic and fiscal challenge – ‘death tax’ debate Ideological shift away from corporatist/collective solutions Evidence Dynamite and Taking Control Staying in Control and Personal Health Budgets Community development work – Connected Care, Small Sparks etc 15

16. 16 ‘My name’s Kieran and I’m here to say how the BHLP program has made a difference to me. As a young person that has ”moved round a bit”, it hasn’t always been easy to settle at anything much really. Sometimes being able to ask for help or support has been difficult. The BHLP program has changed that. I was able to choose my own rep and have total input into deciding the things I need and how to achieve personal ambitions. It’s pretty cool being able to ask for things and sometimes actually getting them! But that’s how it works and it really makes you think carefully about using the service to ground you and think about what’s important to you. I don’t always get what I want and sometimes it’s a disappointment, but I’m never scared to ask and when things are really tough I know I can ask my rep and they’ll look after my basic needs too! I’m working now, passed me bike test and living in my own flat. They’re still changes to be made and things I want to achieve. Biggest difference to me though is feeling much more confident and able to decide my own future.’

17. What next? ‘Personalisation’ of public services, reform of welfare state SDS as providing a technology to knit life together – transition to adulthood and transition from working age to older Right to Control – funding streams Renewed emphasis on community and connection 17

18. A Social movement? Independent Living, self-advocacy movement etc. Partners in Policymaking/Sharing the Challenge/Kindred Spirits/Tomorrow’s Leaders/All Together Better Our Futures (formerly Plan UK) Public membership of In Control and the Big Event Change from within the system and from without 18

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