1. THE PAST, PRESENT AND FUTURE OF DEMENTIA FOR CALD COMMUNITIES

2. THE STARTING POINT

3. Cultural Perspectives |3 THE STARTING POINT THE AREA OF CALD DEMENTIA HAS LONG BEEN ONE FRAUGHT WITH DIFFICULTIES AND SENSITIVITIES…

4. RESEARCH: THE KNOWN, THE UNKNOWN, & THE BASIS FOR INACTION

5. RESEARCH Cultural Perspectives |5  Medical and social research has excluded people from CALD backgrounds  Types of barriers include:  amount of language & ethnic groups  ethics approval  budget  recruitment of CALD subjects  ‘no difference’ justification  recruitment of bilingual researchers

6. RESEARCH Cultural Perspectives |6  Federation of Ethnic Communities Councils of Australia  Gaps include:  how CALD community members cope with and manage the disease  inclusion CALD participants in dementia research programs  factors influencing wellbeing outcomes

7. EDUCATION: COMMUNITY ACCEPTANCE & CONSUMER RIGHTS

8. Cultural Perspectives |8 EDUCATION … POOR UNDERSTANDING OF DEMENTIA COMBINED WITH CULTURAL STIGMA…LEADS TO THE DENIAL OF THE CONDITION AND/OR DELAYED DIAGNOSIS…

9. EDUCATION Cultural Perspectives |9 NO CENTRAL REPOSITORY FOR CALD RESOURCES LACK OF CONTINUITY IN CALD COMMUNITY EDUCATION LACK OF DEMENTIA SPECIFIC MOMENTUM IN AUSTRALIA’S ETHNIC COMMUNITIES

10. ASSESSMENT & SUPPORT

11. Cultural Perspectives |11  Delayed diagnosis  Rowland Dementia Universal Access Screening tool (RUDAS)  Cultural competency- becoming more relevant

12. THE 1 IN 5 AGENDA

13. 13Cultural Perspectives | RESEARCH EDUCATION & CONSUMER PARTICIPATION SERVICE DELIVERY & CARER SUPPORT

14. Cultural Perspectives |14 THE 1 IN 5 AGENDA  Establish the 1 in 5 imperative  20% of all research dollars are dedicated and quarantined for research in CALD communities  Promote research methods that address the current orthodoxy and narrowness in dementia research design and execution  Agree on a priority community list  Increase grassroots community participation in research  Undertake relevant empirical research

15. THE 1 IN 5 AGENDA 15Cultural Perspectives | RESEARCH EDUCATION & CONSUMER PARTICIPATION SERVICE DELIVERY & CARER SUPPORT

16. Cultural Perspectives |16 THE 1 IN 5 AGENDA  Fund CALD community advocacy  Establish and fund a standalone dementia awareness program for CALD communities  Establish a clearinghouse for CALD research and dementia specific resources  Support CALD specific education and capacity building projects

17. THE 1 IN 5 AGENDA 17Cultural Perspectives | RESEARCH EDUCATION & CONSUMER PARTICIPATION SERVICE DELIVERY & CARER SUPPORT

18. Cultural Perspectives |18 THE 1 IN 5 AGENDA  Promotion of the RUDAS tool as the standard  Model cultural competence in dementia assessment and care through tool development across:  Organisational audit and planning tools  Workforce development tools  Community engagement and partnership approaches  Business investment and integration  Foster culturally competent practice in high care facilities  Compel issue specific peaks to address services access and competency issues

19. THE PAST, PRESENT AND FUTURE OF DEMENTIA FOR CALD COMMUNITIES