1. Jane Coad. Senior Research Fellow. Centre for Child and Adolescent Health University of the West of England, Bristol.  0117 331 0892 jane.coad@uwe.ac.uk SUIR Launch. 30 th June. 2009.

2. Initiated & controlled = Full participation Children & young people collaborated WITH adult led work Children and young people consulted with Audits, Consultation, Advisory Groups, Research Undertook national review commissioned by Action for Sick Children (Coad & Houston 2007) that showed: –Children and young people’s involvement was accepted in health care settings –And greatest number were collaboration type examples –Variety of types & techniques used

3. Case Exemplar CONSULTATION National Own field work

4. Techniques Story Telling with a character Interview (4 in team) Symbols and art materials to draw with/write on

5.  Children and young people had good awareness of what they remembered and what they liked/did not like  Consultation took place using creative methods they knew and where they felt ‘safe’  Easy to use and develop in other settings Reflection

6. Case exemplar COLLABORATION National Own field work

7. Children who lost their parents in Sri Lanka in the Tsunami and who live in an orphanage (140) Workshop in a ‘villa’ with 16 children aged 6 to 15 years to talk to them about the impact on their mental health and well being Young people volunteers In practice

8. Techniques Trained young people Interviews Symbols/post its Dream webs Pocket wallet

9.  Young people were volunteers in a collaborative community based project  Took place where children they felt ‘safe’ & ‘fun’  Easy to develop in other settings Reflection

10. Case Exemplar 3 SERVICE USER CONTROL National Own field work

11. Young people aged 13 to 18 years from the North of Birmingham were given an opportunity to explore, using photography, what it meant to be young with a particular focus on the impact of their health outcomes. 3 settings were CAMHS facilities In practice

12. In Practice? Co-author: John Needham Began use of photos in 2005 in work In 2009 four young people in Birmingham were volunteer leads (2 were CAMHS users). Helped them seek funding and gave training All phases: from data collection + analysis + dissemination Workshop 1 Consent/information/cameras handed 4 – 6 weeks later film collection & development Workshop 2 Returned for art based data collection activity Not just what but why taken each photo

13. Techniques Photo elicitation techniques Photos and board work

14.  Photographs were useful platform to explore children and young people’s worlds and views are incorporated into local children’s plan  Had undertaken project where researcher led but when YP led and controlled it added much more depth in findings (more IT orientated)  Took time to develop young people as leads but technique could be developed for other studies with this group Reflection

15. Shared context and a variety of techniques to involve children and young people Future Directions? UWE/CCAH and own programme! Resources /Skills / Training Politics and process Listening and making a change Thank you and rewards

16. References Coad, J (2007) Using art-based techniques in engaging children and young people in health care consultations and/or research. Journal of Research in Nursing. Vol 12 (5) p487-497 Coad, J; Houston, R (2007) Involving children and young people in the decision-making processes of healthcare services. Action for Sick Children. London Coad, J; Flay, J; Aspinall, M; Bilverstone, B; Coxhead, E; Hones, R. (2008) Evaluating the impact of involving young people in developing children’s services in an acute hospital trust. Journal of Clinical Nursing. 17. p3115-3122 Coad, J. Evans, R. (2008) Children and young people s engagement in the data analysis process A practical framework. Children and Society. January. Volume 2. Pp 41-52 Coad, J; Coad, N (2008) Children and young people’s preference of thematic design and colour for their hospital environment. British Journal of Child Health. March edition. Pp 33-48