1. www.kdheks.gov Our Vision – Healthy Kansans living in safe and sustainable environments.

2. Stakeholder’s Meeting Jamey Kendall November 19, 2009 State of Kansas Genetics Plan

3. Our Vision – Healthy Kansans living in safe and sustainable environments. State of Kansas Genetics Plan Our Charge Review Draft Plan Review Draft Plan Provide Input/Changes Provide Input/Changes Review Final Draft Review Final Draft Discuss Publication Methods Discuss Publication Methods Provide Ongoing Consultation as Needed Provide Ongoing Consultation as Needed

4. Our Vision – Healthy Kansans living in safe and sustainable environments. Mission Improve availability and accessibility of genetic services in Kansas. Improve availability and accessibility of genetic services in Kansas.

5. Our Vision – Healthy Kansans living in safe and sustainable environments. Draft Plan-Components Introduction Introduction Kansas Demographic Overview Kansas Demographic Overview Kansas Public Health: The past Kansas Public Health: The past Genetic Contribution to Chronic Diseased Genetic Contribution to Chronic Diseased Genetic Services in Kansas Genetic Services in Kansas Historical Summary Historical Summary Genetic Centers Genetic Centers

6. Our Vision – Healthy Kansans living in safe and sustainable environments. Draft Plan-Components Continued Genetic Services in Kansas Genetic Services in Kansas Outreach Services Outreach Services Newborn Bloodspot Screening Newborn Bloodspot Screening Metabolic Formula Program Metabolic Formula Program Sound Beginnings Sound Beginnings Birth Defects Registry Birth Defects Registry

7. Our Vision – Healthy Kansans living in safe and sustainable environments. Draft Plan-Components Continued Other Genetic Related Services Other Genetic Related Services CYSHCN CYSHCN Office of Health Promotion Office of Health Promotion The Kansas Cancer Control and Prevention Plan The Kansas Cancer Control and Prevention Plan Nutritional Health Nutritional Health State Genetics Survey – done in 2007 State Genetics Survey – done in 2007 Draft Goals and Objectives Draft Goals and Objectives How can the Goals be Achieved? How can the Goals be Achieved?

8. Our Vision – Healthy Kansans living in safe and sustainable environments. Strategic Goals and Objectives

9. Our Vision – Healthy Kansans living in safe and sustainable environments. Draft Goals Each goal has objectives Promote appropriate public health responses to advances in genomic medicine and technology. Promote appropriate public health responses to advances in genomic medicine and technology. Link statewide partners in support of genetic services in Kansas. Link statewide partners in support of genetic services in Kansas. Develop a genetics literacy agenda for the public and policymakers. Develop a genetics literacy agenda for the public and policymakers. Assess the public health impact of heritable conditions and the utilization of genetic services. Assess the public health impact of heritable conditions and the utilization of genetic services.

10. Our Vision – Healthy Kansans living in safe and sustainable environments. Timeline Provide feedback to draft plan Provide feedback to draft plan 11-19-09 through 12-1-09 11-19-09 through 12-1-09 1-1-10 Plan sent to stakeholder’s for review 1-1-10 Plan sent to stakeholder’s for review 2-1-10 Final feedback due back to KDHE consultant 2-1-10 Final feedback due back to KDHE consultant 5-1-10 Final State Plan developed and ready for distribution 5-1-10 Final State Plan developed and ready for distribution

11. Our Vision – Healthy Kansans living in safe and sustainable environments. Thank you!

12. Our Vision – Healthy Kansans living in safe and sustainable environments. Jamey Kendall State Genetics Coordinator Bureau of Family Health Kansas Department of Health and Environment jkendall@kdheks.gov785-291-3363

13. www.kdheks.gov Our Vision – Healthy Kansans living in safe and sustainable environments.