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Establishing and Evaluating a PD Support Network Gillian Carey (1) and Beverly Castleton (1) Dick Curry (2) (1) North Surrey Primary Care Trust (2) The Tanaka Business School, Imperial College London Address for correspondence Gillian.carey@nsurreypct.nhs.uk
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Objectives Patient access to information and assistance Patient links to their healthcare professionals To link healthcare professionals to one another
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Features of the Website Bulletin Board (Local events, service update, PD in the news) Discussion forum (topic specific discussion between patients) Health enquiries (general health questions from patients) My PD Nurse (secure area for personal communication between patient and professional) Professionals Site (secure communication between PD specialists)
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Home Page
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Bulletin Board
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Discussion Forum
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Health Enquiries
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Nurse’s Office
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My PD Nurse
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Pilot Phase Launched September 2004 One year duration 50 patients and carers registered as users 20 health professionals registered as users User comments “A faster service for personal questions and general enquiries” “Useful to compare problems and ideas with others”
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Evaluation Impact on: –Patients and carers –Health professionals –PD Society policy implementation –NHS Policy implementation
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Website Address Patient site http://www.supportingparkinsons.comwww.supportingparkinsons.com Health professional’s site http://experts.pds.medixine.com
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Partners North Surrey PCT Medixine The Parkinson’s Disease Society Pfizer (Educational Grant) Tanaka Business School, Imperial College London
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