1. Hepatitis Services, BCCDC Gail Butt, Associate Clinical Director Liza McGuinness Research Manager

2. Development and Implementation of Health Literacy Resources to Improve Hepatitis C Care and Support Gail Butt, Liza McGuinness, Hepatitis Services Purpose: A national project to develop health literacy materials to assist people with hepatitis C to: discuss their needs, navigate health and social services improve their self-care Methods: Participatory Action Research approach to incorporate the expertise of those infected with hepatitis C and their health and social care providers. Participants act as: Advisory committee members Content reviewers Event organizers Distributors of resources Results: 1) Developed, evaluated and disseminated French & English self-learning booklets 2) Developed, evaluated and disseminated self-learning booklets with Aboriginal people 3) Developed a national partner network of people affected by hepatitis C and their service providers. As of Feb 2011: 490 people had assisted 2455 handbooks distributed 42 launch events 4) Developed audio resources and other accessory learning materials for those with special learning needs 5) In development: Resources translated and adapted for use by Inuit audiences Conclusions: Increased capacity to support people with hepatitis C Increased engagement and education of those affected and their service providers The materials are used by people with other chronic illnesses Funded by Hepatitis C Prevention, Support and Research Program, Public Health Agency of Canada

3. This project succeeded because of the participation and dedication of many: CAHN and Competency Committee Members, in particular: Cheryl Dale, Carol Dupasquier, JoAnn Ford, Geri Hirsch, Ciro Panessa, Kathy Poldre, Syliva Skrypnyk, Colina Yim, and Samantha Earl Special thanks to Paul Plaisir for the French translation assistance AND Aboriginal Nurses Association of Canada All Nations Hope AIDS Network ASK Wellness (BC) Aboriginal Healthy Living: BC Ministry of Health Services, AIDS Society of Kamloops Canadian Aboriginal AIDS Network Hep C Council of BC Hepatitis C Secretariat (ON) Interior Indian Friendship Centre Métis Nation BC Red Road HIV/AIDS Strategy The Squamish Nation South Riverdale Community Health Centre (ON) Funded by the Hepatitis C Prevention, Support and Research Program, Public Health Agency of Canada ACKNOWLEDGEMENTS

4. What’s Next? Issues with non-attendance, deferral or delay of hepatitis C care Is this a problem in your practice? –large, medium, low

5. Non-Attendance for Hepatitis Care Research Project Background Data from 4 BC hepatitis demo projects –20-28% of those referred annually didn’t attend No studies of reasons for non-attendance Purpose: Understand the personal & health-system factors affecting attendance for hepatitis C services develop engagement strategies/programs based on the recommendations of non-attendees and providers

6. Non-Attendance: Proposal Year 1- obtain and analyze data: interviews, focus groups, administrative datasets Year 2- develop and disseminate results/resources Can you help with recruitment ? gail.butt@bccdc.ca

7. Future : The effectiveness of Life Coaching for Hepatitis C Life coaching: –a collaborative process between a coach and a client –to increase motivation to maximize personal change and potential (Whitmore, 2007) –focus is on client values and priorities –in the context of living with the illness Life coaches do not have to be health care professionals

8. Exploring Life Coaching for Hepatitis C Step 1: Knowledge synthesis grant regarding the outcomes of life coaching on illness management, adherence to treatment and health care utilization - Step 2: Intervention trial grant application

9. Thank you!