1. SEER PATTERNS OF CARE Kimberly Kimbler, MS, CCRP, CTR Kentucky Cancer Registry kimberly@kcr.uky.edu

2. WHAT IS PATTERNS OF CARE (POC)? A population-based snapshot designed to “assess the incorporation of state-of-the- art cancer treatments into clinical practice and the extent to which cancer patients receive such treatments” Public Law 100-607, Sec. 413 (a)(2)(C)

3. Mandated in 1988

4. 14 SEER REGISTRIES PARTICIPATED IN 2014

5. USES OF POC DATA  Describe adjuvant therapy use in a community setting  Practice patterns in communities  Surgery, radiation therapy, chemotherapy, hormonal therapy in specific cancers  Compare treatment modalities over time and by age, race, and ethnicity

6. USES OF POC DATA  Effects of comorbid conditions  Describe treatment by hospital characteristics  Describe the usage of biomarkers and diagnostic tests and compare their use by race/ethnicity and geographic region  Provide additional data for analyses by linking POC data to SEER Medicare files

7. Address quality control issues related to routine data abstraction

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9. Site-specific cases randomly selected from CPDMS Cases submitted to KCR Cases are re-abstracted per POC Manual

10. Information is entered into a POC specific local database ALL treatment verified by reviewing records or by physician contact Data is de-identified and uploaded to a secure SEER website

11. SO…WHAT DOES POC COLLECT?  Much of the same information as the abstracted case….. just sometimes in a slightly different way or in greater detail

12. POC VISIT  Hospital records  Medical Oncology  Radiation Oncology  Legacy EMR systems/paper charts (if applicable)

13. Cancer is increasingly diagnosed and treated in the outpatient setting

14. PHYSICIAN VERIFICATION …and the path to all treatment

15. POC: WHAT’S NEXT…. 69,212 Adolescents and young adults (AYA) diagnosed with cancer in 2011 An estimated projection calculated by the Surveillance, Epidemiology and End Results (SEER) Program using SEER 18, 2007-2011. http://www.cancer.gov/researchandfunding/snapshots/adolescent-young-adult#footnote1 (accessed 9/2014)

16. AYA CANCERS (AGES 15-39)

17. ACKNOWLEDGEMENTS  Tom Tucker  Frances Ross  Celia Love  Mary Jane Byrne  The awesome folks at KCR

18. QUESTIONS?