1. Information Therapy:a must, not just a nice to have 2 June 2015 @MarkDuman

2. Topics Understanding what is meant by information for patients Personalising the experience of information provision Integrating information provision into healthcare delivery The need for culture change to make "information therapy“ a reality.

3. Information Types

4. Types of information 1.Wellbeing & Lifestyle – diet, activity, etc 2.General Clinical – diagnosis, prognosis, treatment, etc 3.Information to facilitate evidence-based Patient Choice 4.Access/ Service – directions, waiting times, support, benefits, quality

5. Government Portals

6. tinyurl.com/2msj82

7. Enlarged Prostate For the following questions, please mark your views on the scale below each question. There are no correct (or incorrect) answers. Q. How important is it to you to retain your ability to have erections? A. 12345 not importantvery important at all Q. How important is it to you to avoid wearing pads to deal with leaking urine? A. 12345 not importantvery important at all Q. How important is it to you to avoid problems with the bowel? A. 12345 not importantvery important at all Shared Decision Making

8. Self Management / Structured Patient Education

9. Technology

10. Board Game Action Zone! is a board game about epilepsy and the brain created for children aged 5 years and above. It enables them to learn more about epilepsy and to understand that children with epilepsy can do many of the things that other children can do Players win tokens by answering the questions correctly as they move closer to the Brain. The winner is the person with the most tokens.

11. “People”

12. Key Points: Information as a Therapy Quality product(s) One size does not fit all – Tailor information Elicit behaviour change/ action Train staff it’s “Education” Consider Design Evaluate Impact

13. Making it Personal

14. “We see things as we are, not as they are” * *Talmud Berachot 55b PersonPatientConditionTreatment‘X’ ‘Soft/ Social’‘Hard/ Medical ’ Person/ Society ‘Professional/ System’

15. Medicine/ Drug Poison Pharmako (φάρμακο) [Image removed]

16. ‘A Personalised Health Service’ Past Medical History Current Medication Ethnicity/ Communication Preferences Health Literacy Medicines Beliefs Health Beliefs “A poison” “A miracle cure” Motivation Beyond Health

17. Patient Activation

18. KPMG

19. ‘Activated' Patients Lower Costs Users Individuals www.kingsfund.org.uk/publications/supporting- people-manage-their-healthwww.kingsfund.org.uk/publications/supporting- people-manage-their-health, May 2014

20. Integrating patient information into healthcare delivery

21. “Map of Medicine”

22. Information Prescriptions

23. Care Planning

24. Culture Change

25. 1. Clinicians Despite concerted efforts to tackle the “effectiveness of consultations between patients and clinicians,” the biggest problem is the “reluctance of clinical staff to provide active support for patient engagement.” RCGP, Sep 11

26. 26 “Patients will need better information if they are going to improve their lifestyle, manage their disease, and participate in complex decisions about treatment. Better health-literacy education in schools will help, as will better- written health materials and well-trained educators for patients. But a great deal could be accomplished if doctors and other health professionals took time, at the end of each consultation, to make sure the patient had understood the key points discussed, and that they felt free to ask questions.” Taking health literacy seriously. The Lancet 2005; 366:95

27. 2. Payors/ Purchasers Information: first line Rx

28. www.pifonline.org.uk

29. 3. Public - Increase Expectations Manager Patients/ Public Health System

30. Care Plan: Getting from A to…? 1 million patients in the UK 2013 Doctor-Patient Survey 64% of them said they were as “involved in healthcare as they wanted to be” But only 3% had a care plan

31. In summary…

32. Problem  Solution

33. Think EXPERIENCE, not process

34. Thank you