1. All sections to appear here 5/13/20151Robin McWilliam

2. Measuring Family Quality of Life for Evaluation and Support Robin McWilliam Robin.McWilliam@gmail.com www.ramgroup.info

3. Outline Definition of FQoL How to assess it What to do about it Why we should care 5/13/20153Robin McWilliam

4. pptPlex Section Divider Definition The slides after this divider will be grouped into a section and given the label you type above. Feel free to move this slide to any position in the deck. 5/13/20154 R obin M c W illiam

5. Definitions From the Field When you hear family quality of life, what do you assume this means? 5/13/20155Robin McWilliam

6. Definitions From the Field If you think your family quality of life is good, how is it good? If you think it’s bad, how is it bad? Is family quality of life malleable? 5/13/20156Robin McWilliam

7. Definitions From Experts Original Beach Center definition: “conditions where the family’s needs are met, and family members enjoy their life together as a family and have the chance to do things which are important to them” (p. 368; Park, Turnbull and Turnbull, 2002). Later amended to include the interaction of context, system, policies, and programs with both individual- and family-level needs. 5/13/20157Robin McWilliam

8. pptPlex Section Divider Assessment The slides after this divider will be grouped into a section and given the label you type above. Feel free to move this slide to any position in the deck. 5/13/20158Robin McWilliam

9. Assessment Figure out definition from what’s assessed International Family Quality of Life Survey (FQOLS-2006; Brown et al., 2006; Isaacs et al., 2007) 1.Health 2.Financial well-being 3.Family relationships 4.Support from other people 5.Disability-related services 6.Influence of values 7.Careers and preparing for careers 8.Leisure and recreation 9.Community interaction 5/13/20159Robin McWilliam

10. Beach Center Family Quality of Life Scale (FQOL) Hoffman et al., 2006 1.Physical/material well-being 2.Family interaction 3.Parenting 4.Disability-related supports 5.Emotional well-being Rating satisfaction and importance 5/13/201510Robin McWilliam

11. Early-Intervention-Specific Scale Families of children birth to 6 with special needs Family perception of child functioning 5/13/201511Robin McWilliam

12. Family Quality of Life (FaQoL; McWilliam & Casey, 2013) Original developed in 2006 for study of families of children with hearing impairments Another in 2007 for families of children with ASD Current version for families of all children 0-6 Translated into Spanish, Portuguese, and Chinese 5/13/201512Robin McWilliam

13. Factor Structure Initial factor analysis done in U.S. Confirmed in Spain (N = 777; García & McWilliam, 2015) Factor 1 - Family Relationships. Problem solving, communication, parenting, relationships with extended family, and family participation in social activities. 5/13/201513Robin McWilliam

14. Factor 2 - Access to Information and Services. Knowledge of their child's disability, child development, managing challenging behaviors and resources such as support services, medical assistance, and organizations in their community 5/13/201514Robin McWilliam

15. Factor 3 – Child Functioning. Child's engagement, independence, and social relationships within family daily routines. 5/13/201515Robin McWilliam

16. Factor 4 – Overall Life Situation: Fulfillment of family needs in health, financial resources, and employment. 5/13/201516Robin McWilliam

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19. pptPlex Section Divider Support to Promote FQoL The slides after this divider will be grouped into a section and given the label you type above. Feel free to move this slide to any position in the deck. 5/13/201519Robin McWilliam

20. Support to Promote It Needs based General well-being – Parenting 5/13/201520Robin McWilliam

21. Needs-Based Support Needs From RBI Needs From FaQoL Support- Based Home Visits New Needs Improved FQoL Child Functioning Family Needs Assess- ment 5/13/201521 R obin M c W illiam

22. General Well-Being: Parenting TalkReadPlayTeach Manage Behavior 5/13/201522 R obin M c W illiam

23. pptPlex Section Divider Importance The slides after this divider will be grouped into a section and given the label you type above. Feel free to move this slide to any position in the deck. 5/13/201523Robin McWilliam

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26. The 8 Bailey et al. Family Outcome Questions 5/13/201526Robin McWilliam

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28. Alignment With Federal Family Outcomes Federal Family – Part C Know their rights Effectively communicate their children’s needs Help their children develop and learn – 619 Schools facilitated parent involvement Child – Positive social-emotional skills – Acquisition and use of knowledge & skilsl – Use of appropriate behaviors to meet their needs FaQoL 1.Family Relationships 2.Access to Information & Services 3.Child Functioning 4.Overall Life Situation 5/13/201528Robin McWilliam

29. Transactional Nature of Family Systems Child Functioning Family Well-Being 5/13/201529 R obin M c W illiam

30. Parents can fill their child’s bucket only to the extent that their own bucket is full Crossco.com 5/13/201530 R obin M c W illiam

31. Take-Home Messages What important message will you carry away? 5/13/201531Robin McWilliam

32. Take-Home Messages 1.Consider adding FQoL to your program evaluation, using the FaQoL 2.Don’t assume federal outcomes measure how well you’re doing with families 3.Ensure you’re assessing and meeting all 3 types of family needs 4.Child functioning is a part of a family’s quality of life 5.Remember the bucket principle 5/13/201532Robin McWilliam