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Helen Gowland Chair Person Tayside Speakeasy Aphasia Self Help (affiliated to Speakability) Laorag Hunter Speech and Language Therapist NHS Tayside
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Aphasia A communication impairment “ay-fay-zee-ah”
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Aphasia Difficulty using and understanding spoken and written language
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Aphasia=Dysphasia
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Aphasia Common after stroke, brain injury and some brain illnesses
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Aphasia 20,000 people develop aphasia every year 50% of people have aphasia 18 months after it starts 250,000 people in UK Changes with communication can be life- long
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1999 44 years old 3 girls Husband Elderly parents Part time specialist physio Committee work Enjoying life
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Out Of The Blue April 1999 Aneurysm ruptured followed by stroke Emergency brain surgery
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Aphasia- Many Changes
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Impact on Me Epilepsy Aphasia Changes in vision Balance Work Driving Family Hobbies Devastation
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2010 55 years old 3 girls, sons-in-law, boyfriends Husband Elderly parents Part time work Oxfam Committee work (local and national) 2 dogs Cooking Enjoying life
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Living Successfully with Aphasia (Brown et al 2010) Communication Doing things Meaningful relationships Striving for a positive way of life
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Living Successfully with Aphasia (Brown et al 2010) Communication Doing things Meaningful relationships Striving for a positive way of life
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Reduce communication barriers
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Ask yourself… If I had difficulty understanding what would help? If I had difficulty telling by speech what would help? If I had difficulty reading what would help? If I had difficulty telling by writing what would help?
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Aphasia Friendly Don’t use a big word if a small word will do Don’t use unusual vocabulary Don’t use unusual words
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Aphasia Friendly Use simple sentences “I am writing to inform you that garage charges will increase on 1 st March from £25 per calendar month to £28” “Garage charges rise on 1 st March to £28”
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Aphasia Friendly Large Print
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Aphasia Friendly More white space
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Aphasia Friendly Key words in colour
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Aphasia Friendly Include carefully selected images or symbols
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Aphasia Friendly If you need a reply, include addressed envelopes
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Aphasia Friendly Option for face to face help
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Aphasia Friendly Time to understand and to answer
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Aphasia Friendly Repeat important points
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Aphasia Friendly Simple words Simple sentences Large print More white space Key words in colour Use of carefully selected pictures/symbols Pre-printed envelopes Option for face to face help Plenty of time Repetition
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The next working group will be visiting the Scottish Parliament. You will need to bring bus pass, money for coffee and a packed lunch. There will be an opportunity to take photographs. For example
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www.communicationforumscotland.org.uk
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See handout
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Ask for help with communication
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Expect communication improves over a long period of time
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Stroke Research Tells Us… Language function continues to improve over DECADES (Ambridge et al 2010)
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People with aphasia tell us… This requires PRACTICE
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The Importance of Practice
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Speech Therapy Helps me to get new words 10 years on Practise on my own at home with a communication aid I am improving all the time Feel positive
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Living Successfully with Aphasia (Brown et al 2010) Communication Doing things Meaningful relationships Striving for a positive way of life
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Speakeasy: Aphasia Self Help
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Supporting each other to live well with long-term changes in communication
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People with aphasia are not static, they are dynamic When they are supported to have a purpose, goals and to feel strong Harmony
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References Brown, K et al (2010). Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology, 24 (10), 1267–1295 Ambridge et al (2010). Predicting language outcome and recovery after stroke. RCSLT Bulletin, October 2010 Maxwell, G (2009). Falling and Laughing: The restoration of Edwyn Collins. Ebury Press.
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Learn more about aphasia www.ukconnect.org www.speakability.org.uk
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Thank You
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