1. University PID/SID Education for Nurses Ann Gardulf, RN, PhD, INGID member Bengt Steger, RN, Chairman of The Swedish PID Nursing Organisation

2. University Education for Nurses Nurses are vital in the care and treatment of children/adults with primary immuno- deficiencies (PID) and secondary immuno- deficiencies (SID).

3. University Education for Nurses Nurses are vital in the care and treatment of children/adults with primary immuno- deficiencies (PID) and secondary immuno- deficiencies (SID). It has long been a discussion among and a strong wish from Swedish nurses to get the possibility to create a formal education in PID/SID nursing care on University level.

4. University Education for Nurses Nurses are vital in the care and treatment of children/adults with primary immuno- deficiencies (PID) and secondary immuno- deficiencies (SID). It has long been a discussion among and a strong wish from Swedish nurses to get the possibility to create a formal education in PID/SID care on University level. The first accredited University Education specifically for PID/SID Nursing?

5. University Education for Nurses Proud to announce that the University Education will be sponsored by The course will be ”Company neutral”. No influence on the content of the course.

6. University Education for Nurses The European Higher Education (EU) policy

7. University Education for Nurses The European Higher Education (EU) policy Based on the Bologna Declaration (1999); – students and graduates should be able to move freely between countries, using prior qualifications in one country as acceptable entry requirements for further study in another.

8. University Education for Nurses One common score system – European Credit Transfer and Accumulation System (ECTS) is the standard for comparing the study attainment and performance of students.

9. University Education for Nurses One common score system – European Credit Transfer and Accumulation System (ECTS) is the standard for comparing the study attainment and performance of students. – One academic year corresponds to 60 ECTS credits (1 week=1.5 ECTS credits).

10. University Education for Nurses One common score system – European Credit Transfer and Accumulation System (ECTS) is the standard for comparing the study attainment and performance of students. – One academic year corresponds to 60 ECTS credits (1 week=1.5 ECTS credits). – E.g. the basic University Education to become a RN comprises 180 ECTS credits (3 years)

11. University Education for Nurses The Bologna Declaration states that the common EU education system is based on two main cycles; – undergraduate/basic and – graduate/advanced level

12. University Education for Nurses Upper Secondary School Bachelor of Science, Bsc Basic Program 180 ECTS 3 year full time e g Nursing Education Under graduate/ Basic level Master of Science, Msc Master Program 120 ECTS 2 year full-time Resarch Education 240 ECTS 4 years full- time Basic System Degrees: Doctor of Philosophy, PhD Graduate/ Advanced level

13. University Education for Nurses The University PID/SID Education for Nurses – Advanced level, evidence-based course

14. University Education for Nurses The University PID/SID Education for Nurses – Advanced level, evidence-based course

15. University Education for Nurses The University PID/SID Education for Nurses – Advanced level, evidence-based course – 7.5 ECTS – corresponds to 5 weeks of full-time studies

16. University Education for Nurses The University PID/SID Education for Nurses – Advanced level, evidence-based course – 7.5 ECTS – corresponds to 5 weeks of full-time studies – Nurses working full-time studying?

17. University Education for Nurses The University PID/SID Education for Nurses – Advanced level, evidence-based course – 7.5 ECTS – corresponds to 5 weeks of full-time studies – Nurses working full-time studying? – Instead 7.5 ECTS over 10 or 20 weeks (part-time studies)

18. University Education for Nurses The University PID/SID Education for Nurses – Nurses from all of Sweden working with PID and/or SID patients will be invited Adults: immunology, infectious diseases, haematology, oncology, allergy, pulmonary diseases etc Children: different paediatric specialities

19. University Education for Nurses The University PID/SID Education for Nurses – A web based, interactive teaching and learning platform (teachers-students, students-students) – Campus Meeting Day 1, 2 and last day – Written examination

20. University Education for Nurses The University PID/SID Education for Nurses – The 7.5 ECTS will comprise 4.5 ECTS in nursing science and 3.0 ECTS in medical science

21. University Education for Nurses The University PID/SID Education for Nurses – The 7.5 ECTS will comprise 4.5 ECTS in nursing science and 3.0 ECTS in medical science – Nursing Science (examples) Immunodeficiency treatments, motivational dialogue techniques, patient-/family-education including compliance, and quality of life, etc

22. University Education for Nurses The University PID/SID Education for Nurses – The 7.5 ECTS will comprise 4.5 ECTS in nursing science and 3.0 ECTS in medical science – Nursing Science (examples) Immunodeficiency treatments, motivational dialogue techniques, patient-/family-education including compliance, and quality of life, etc – Medical Science (examples) Pathophysiology including genetics, diagnostic procedures, microbiology and treatment of infections.

23. University Education for Nurses The University PID/SID Education for Nurses – 1st planned education (autumn 2015?) in Swedish (Finland, Norway, Denmark, Iceland? Depending on availability) – The course again in English? Web based. – Would you like to join? – Please use link http://www.uhr.se/svhttp://www.uhr.se/sv The Swedish Council for Higher Education (in English) to see formal requirements.

24. University Education for Nurses How does this single course fit into the system for Higher Education? Upper Secondary School Bachelor of Science, Bsc Basic Program 180 ECTS 3 year full time e g Nursing Education Under graduate/ Basic level Master of Science, Msc Master Program 120 ECTS 2 year full-time Resarch Education 240 ECTS 4 years full- time Basic System Academic degrees: Doctor of Philosophy, PhD Graduate/ Advanced level Professional degrees:

25. University Education for Nurses How does this single course fit into the system for Higher Education? Upper Secondary School Bachelor of Science, Bsc Basic Program 180 ECTS 3 year full time e g Nursing Education Under graduate/ Basic level Master of Science, Msc Master Program 120 ECTS 2 year full-time Resarch Education 240 ECTS 4 years full- time Basic System Academic degrees: Doctor of Philosophy, PhD Graduate/ Advanced level Professional degrees: R.N.

26. University Education for Nurses How does this single course fit into the system for Higher Education? Upper Secondary School Bachelor of Science, Bsc Basic Program 180 ECTS 3 year full time e g Nursing Education Under graduate/ Basic level Master of Science, Msc Master Program 120 ECTS 2 year full-time Resarch Education 240 ECTS 4 years full- time Basic System Academic degrees: Doctor of Philosophy, PhD Graduate/ Advanced level Professional degrees: R.N.

27. University Education for Nurses How does this single course fit into the system for Higher Education? Upper Secondary School Bachelor of Science, Bsc Basic Program 180 ECTS 3 year full time e g Nursing Education Under graduate/ Basic level Master of Science, Msc Master Program 120 ECTS 2 year full-time Resarch Education 240 ECTS 4 years full- time Basic System Academic degrees: Doctor of Philosophy, PhD Graduate/ Advanced level Professional degrees: R.N. The PID/SID course 7,5 ECTS

28. University Education for Nurses The University PID/SID Education for Nurses – Can this education become the first stepping- stone in creating a formal Master program in Immunology Nursing/PID/SID Nursing? – Europe? Globally? – Hopefully INGID will support the new University Course – INGID the future coordinating organization

29. University Education for Nurses Thank you very much for your attention

30. University Education for Nurses The University PID/SID Education for Nurses – What about costs? Octapharma; very generous contribution to the course and a very active and engaged support. However, the course will be ”Company neutral”. Most costs covered by Octapharma but a minor fee has to be paid by the employer. Important by fee to signalling that this is a major course on advanced level. Costs for possible travelling and hotel covered by employer.