1. INTRODUCTION TO PEDIATRICS BIOETHICS Guillermo Godoy, MD Professor of Pediatrics and Obstetrics University of Alabama, Tuscaloosa DCH Health System, NICU’s

2. THE UNIVERSITY OF ALABAMA

3. AMERICAN FOOTBALL UA STADIUM

4. “ETHICS” DEFINITION Set of moral principles Set of moral principles

5. “ETHICS” DEFINITION Set of moral principles Set of moral principles Set of rules governing a particular class of human actions Set of rules governing a particular class of human actions

6. “ETHICS” DEFINITION Set of moral principles Set of moral principles Set of rules governing a particular class of human actions Set of rules governing a particular class of human actions Branch of Philosophy dealing with values relating to human conduct. Their rightness and wrongness of actions, motives and ends Branch of Philosophy dealing with values relating to human conduct. Their rightness and wrongness of actions, motives and ends

7. Ethics principles RESPECT OF THE INDIVIDUAL RESPECT OF THE INDIVIDUAL BENEVOLENCE BENEVOLENCE NONMALEFICENCE NONMALEFICENCE JUSTICE JUSTICE

8. Ethics quandary THE DECISION MAKING PROCESS

9. ETHICS and THE decision MAKING process in adults Patient Health Care Team

10. THE PEDIATRIC decision making ETHICAL CONFLICT Parents Health Care Society C H I LD

11. ETHICS IN PEDIATRICS ethical fields CLINICALCLINICAL

12. ETHICS IN PEDIATRICS ethical fields CLINICALCLINICAL RESEARCHRESEARCH

13. ETHICS IN PEDIATRICS ethical fields CLINICALCLINICAL RESEARCHRESEARCH ALLOCATIONALLOCATION

14. ETHICS IN PEDIATRICS ethical fields CLINICALCLINICAL RESEARCHRESEARCH ALLOCATIONALLOCATION PUBLIC POLICYPUBLIC POLICY

15. CLINICAL ETHICS Who the decisions affects Who the decisions affects

16. CLINICAL ETHICS Who the decisions affects Who the decisions affects Who influence these decisions Who influence these decisions

17. CLINICAL ETHICS Who the decisions affects Who the decisions affects Who influence these decisions Who influence these decisions The Best Interest Standard The Best Interest Standard

18. CLINICAL ETHICS Who the decisions affects Who the decisions affects Who influence these decisions Who influence these decisions The Best Interest Standard The Best Interest Standard The QUAD model of Ethical questions The QUAD model of Ethical questions

19. THE “QUAD” FRAMEWORK OF ETHICS QUESTIONs SOLVING DEFINITION UNDERSTANDING ASSESSMENT RECOMMENDATIONS

20. THE PRINCIPAL OF HUMAN RESEARCH: THE INFORMED CONSENT Utilitarian Utilitarian

21. THE PRINCIPAL OF HUMAN RESEARCH: THE INFORMED CONSENT Utilitarian Utilitarian Deontological Deontological Contractualisms Contractualisms

22. THE PRINCIPAL OF HUMAN RESEARCH: THE INFORMED CONSENT Utilitarian Utilitarian Deontological Deontological The risk-benefit equation The risk-benefit equation

23. THE IRB foundation Who needs the protection Who needs the protection Therapeutic v. non-therapeutic Therapeutic v. non-therapeutic The Duty to Act: The Duty to Act: LOW DISTANT RISK HIGH DISTANT RISK

24. Allocation of resources Approved v. not Approved Society/LawParentsHealth Care

25. ETHICS IN PUBLIC POLICY Organ Transplantation for Children: * How are organs allocated? * How are organs allocated? Scores for survival v. sickness Scores for survival v. sickness * Organ transplants and Medical * Organ transplants and Medical Ethics: Ethics: Donor v. Recipient Donor v. Recipient

26. ETHICS IN PUBLIC POLICY * Orphan Disorders and Orphan Drugs : Resources usage in rare Resources usage in rare disorders: disorders: The Many v. The Few The Many v. The Few * The Social Media Factor * The Social Media Factor