1. 8/7/2015 Beyond an Apple a Day: Providing Consumer Health Information at Your Library National Network of Libraries of Medicine http://nnlm.gov (800) 338-7657

2. 8/7/2015 Agenda  History & evolution of consumer health  Health information needs of patrons  Challenges of providing CH services  Collection development  Consumer health on the internet  The reference interview  Ethics  Outreach  Marketing

3. 8/7/2015 Consumer Health – then and now…  1972 Patient Bill of Rights Realities of Health Care today:  Patients are now asked to make decisions about their own disease process.  Most patients do not have the tools to make these kinds of decisions  Libraries can help!

4. evolution of e-patients  In 2000, 52 million Americans searched the internet for health  In 2002, 73 million…  Pew Internet Study – Online Health Search 2006 – 113 million or 80% of American Internet users  In 2006, “Googling for a diagnosis” [BMJ]  In 2006, only one quarter of online health seekers said they always or usually check the source and date of health information online! 8/7/2015

5. Health Literacy  The ability to read, understand and act on health information [Pfizer 2002]  The degree to which individuals have the capacity to obtain, process and understand basic health information and services needed to make appropriate health decisions [Healthy People 2010]

6. What is the strongest predictor of an individual’s health status? Age Income Employment status Educations Literacy skills Racial/ethnic group 8/7/2015

7. Fill in the blanks  One out of ? American adults reads at the 5th grade level or below, and the average. one out of 5  American reads at the 8th to 9th grade level, yet most health care materials are written above the ? grade level. 10 th grade 8/7/2015

8. Discussion Thoughts on health literacy and how it impacts the individual and society?

9. 8/7/2015 Why is health literacy so critical?  Essential life skill  Public health imperative  Essential part of social capital  Critical economic issue Source: “Navigating Health: The Role of Health Literacy”, Kickbusch

10. 8/7/2015 Resources for health literacy  MedlinePlus – Easy to read MedlinePlus – Easy to read easy to read resources and a how to write easy to read page Ask Me 3, Partnership for Clear Health Communication Ask Me 3, Partnership for Clear Health Communication  1. What is my main problem?  2. What do I need to do?  3. Why is it important for me to do this?

11. 8/7/2015 Sharing  Take 10 minutes to discuss with a partner or a group, some examples of consumer health questions.  We wrap up this activity with a discussion of your examples together as a class.

12. 8/7/2015 Challenges of the reference interview in the context of health information  Not being familiar with the resources  Medical terminology  Knowing how much to ask  Using open ended questions  Being aware of body language  Not offering personal experiences  Others?

13. 8/7/2015 The Reference Interview …in the context of health information  Be empathetic  Be an active listener  Use open ended questions  Respect privacy / confidentiality  Be prepared for emotions  Be aware of body language  Do not be afraid to refer the patron back to his/her health care provider

14. 8/7/2015 Disclaimers + caution statements  “Materials in the Resource Center represent the opinions of the authors and are intended as a complement, not a substitute for the advice of your healthcare providers.”

15. 8/7/2015 Ethical Guidelines  Privacy / Confidentiality  Know the limits of your collection  Do not interpret medical information  Use a disclaimer or caution statement

16. 8/7/2015 Planning the service  Needs assessment DRG example Potential DRG resource Leapfrog Health grades  Analyze the demographics of your community CDC Faststats Kaiser State Health Facts Public Library Geographic Database

17. CONSIDERATIONS OF STARTING A CH SERVICE AT YOUR LIBRARY? 8/7/2015

18. Collection Development  Book lists on CAPHISCAPHIS UCONN Healthnet Bibel, B. Library Journal

19. 8/7/2015 Consumer Health on the Internet  The ABC’s of evaluation Accuracy Authority Bias Currency Coverage And, user friendliness

20. 8/7/2015 http://medlineplus.gov

21. 8/7/2015 http://nihseniorhealth.gov

22. NIHSeniorHealth.gov 8/7/2015 http://nihseniorhealth.gov/toolkit/toolkit.html

23. 8/7/2015 http://clinicaltrials.gov

24. 8/7/2015 http://nccam.nih.gov

25. 8/7/2015 http://nlm.nih.gov

26. 8/7/2015 http://dirline.nlm.nih.gov

27. 8/7/2015 http://healthhotlines.nlm.nih.gov

28. 8/7/2015 http://cancer.gov

29. 8/7/2015 http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp

30. 8/7/2015 http://dailymed.nlm.nih.gov

31. 8/7/2015 http://dietarysupplements.nlm.nih.gov/dietary/

32. 8/7/2015 http://drugdigest.org

33. 8/7/2015 http://www.patientinform.org/

34. QUESTIONS THUS FAR? 8/7/2015

35. Hands on Exercises 1) What is cholelithiasis? 2) Find a video for caregiver support of Alzheimer’s Disease. 3) My husband burned his hand on our outdoor grill. He said that he thought he should put butter on it. What is the best thing to do for a minor burn? 4) What is Pyelonephritis and how is it treated? 5) My daughter is attending college in Chicago. She is having headaches and a stuffy nose. Our primary care doctor said she probably is allergic to something. Can you help us find a good allergist in Chicago?

36. Hands on Exercises (cont.) 6) I heard that black cohosh is good for menopausal symptoms. Is it safe to take? Is there any evidence that it is effective for menopause? 7) What is the ideal blood pressure? 8) My friend needs to find a nursing home for her father within 10 miles of Burlington, VT. 9) Are there any current clinical trials for complementary and alternative treatment of fibromyalgia? 10) I read an article in Consumer Reports on Health that said excessive calcium intake from calcium enriched foods (like Calcium enriched OJ) could cause kidney stones. How much calcium is too much? 8/7/2015

37. BREAK 8/7/2015

38. COLLABORATION + HEALTH INFORMATION OUTREACH 8/7/2015

39. http://nnlm.gov

40. NN/LM funded projects 8/7/2015

41. Potential Collaborators 8/7/2015 Source: City of SomervilleCity of Somerville

42. 8/7/2015 http://caphis.mlanet.org/

43. 8/7/2015 http://nnlm.gov/evaluation

44. 8/7/2015 http://ehrweb.aaas.org/PDF/ChallengePubLibraries.pdf

45. 10 top reasons to market your library?  Competition for customers  Competition for resources  Maintain your relevance  Stop being taken for granted  Promote an updated image  Visibility  Valuable community resource  Rising expectations  Survival  Beneficial to library image Source: University of Illinois Current LIS Clips (2003) 8/7/2015

46. Marketing  Sharing: Get together in groups of 2 or 3 and come up with a couple of good marketing ideas to share.  We will discuss them as a group.

47. Other ideas:  Bookmarks, websites, press releases, lecture series, videos in hospital waiting room, screening clinics, health fairs, Information Rx, newsletter, public speaking to community groups, pedometer program, consumer health database searching series. Information Rx 8/7/2015

48. InformationRx.org 8/7/2015

49. The Elevator Speech In 15 seconds or less:  Who we are?  What we do?  Why does it matter?  Once again, thank you. InfoPeople, Building Leadership Skills: Community Engagement, 2007 8/7/2015

50. QUESTIONS? 8/7/2015

51. Reflection  Think of the three most important take home messages from today’s presentation.  Think of three people to share this information.

52. 8/7/2015 Thank you! Contact information: http://nnlm.gov (800) 338-7657 Course developed by Michelle Eberle and Terri Ottosen This project is supported under contract # HHS-N-276-2011-00010C with the NN/LM New England Region and contract # HHS-N-276-2011-00004-C with the Southeastern Atlantic Region from the National Library of Medicine.