1. NATIONAL LIBRARY OF MEDICINE CONSUMER HEALTH UPDATE Michelle Eberle, MS LISNN/LM NER Feb 2010

2. http://nnlm.gov/ner/

4. http://www.nlm.nih.gov

5. What is the strongest predictor of an individual’s health status?  Age  Income  Employment status  Educations  Literacy skills  Racial/ethnic group 8/7/2015

6. Fill in the blanks  One out of ? American adults reads at the 5th grade level or below, and the average. one out of 5  The average American reads at the 8th to 9th grade level, yet most health care materials are written above the ? grade level. 10 th grade Source: Partnership for Clear Health Communication at the National Patient Safety Foundation http://www.npsf.org/askme3/pdfs/STATS_GLANCE_EN.pdf http://www.npsf.org/askme3/pdfs/STATS_GLANCE_EN.pdf 8/7/2015

7. Health literacy  the degree to which individuals have the capacity to obtain, process, understand, and act on health information Source: CDC, Healthy People 2010

8. Health information literacy The set of abilities needed to:  Recognize a health information need  Identify likely information sources and use them to retrieve relevant information  Assess the quality of the information and its applicability to a specific situation  Analyze, understand and use the information to make good health decisions Source: Medical Library Association

9. Medical Terminology Stress Fear Embarrassment Average reading level Chronic illness Limited time with care providers Health Literacy Factors

10. health literacy challenges Finding doctors Finding services Health education materials Prescriptions Discharge instructions Food labels Consent forms Test preparation

11. What can you do? Get The Word Out  Hold a workshop  MLA Health Information Literacy Project  Help rewrite patient handouts  Join your patient education committee  Spread the message that literacy is a skill  Apply for NN/LM NER funding  Learn more  Promote NLM health resources for the public  Other?

12. Resources for Consumer Health Information What’s New? National Library of Medicine

14. http://toxmystery.nlm.nih.gov/

16. http://toxtown.nlm.nih.gov/ What book inspired this resource?

17. “Richard Scarry’s Great Big Air Book”

18. http://hpd.nlm.nih.gov/

19. Green cleaning The non toxic trio: Baking soda Castile soap White vinegar Source: Gavigan, Christopher, Healthy Child Healthy World, Creating a Cleaner, Greener, Safer Home, 2008. Other agents: Lemon Essential oils

20. http://hazmap.nlm.nih.gov

23. http://toxmap.nlm.nih.gov/

24. LactMed http://toxnet.nlm.nih.gov  Free online database with information on drugs and lactation Over 500 drugs Data mined from scientific literarue Fully referenced Links to PubMed citations Breast feeding links

25. LactMed

26. 8/7/2015 http://druginfo.nlm.nih.gov

27. 8/7/2015 http://dailymed.nlm.nih.gov

28. 8/7/2015 http://dietarysupplements.nlm.nih.gov

29. http://pillbox.nlm.nih.gov

30. http://womenshealthresources.nlm.nih.gov

31. http://profiles.nlm.nih.gov

33. Abstracts Articles Correspondence Diagrams Drafts Drawings Electronic images Excerpts Grant Proposals Interviews Laboratory notes Lecture notes Lectures Monographs Notes Obituaries Photographic prints Portraits Proposals Reports Sound recordings Summaries Transcripts What will I find on Profiles in Science?

36. Profiles in Sciences includes photos and much more!!!

37. Profiles in Science includes research and papers…

38. Profiles in Science includes correspondence…

39. 8/7/2015 http://nihseniorhealth.gov

40. NIHSeniorHealth.gov 8/7/2015

41. http://clinicaltrials.gov

42. http://ghr.nlm.nih.gov

43. http://phpartners.org

44. evolution of e-patients  In 2000, 52 million Americans searched the internet for health  In 2002, 73 million…  In 2006, “Googling for a diagnosis” [BMJ]  In 2006, only one quarter of online health seekers said they always or usually check the source and date of health information online!  In 2009, e-patients – searching for a “just in time someone like me” 8/7/2015

45. http://m.medlineplus.gov

48. HealthDay videos – MedlinePlus news

50. MedlinePlus Magazine A quarterly publication of the Friends of the National Library of Medicine. Get a free subscription!

51. in Spanish too!

52. NIH MedlinePlus Salud Magazine Bilingual format!

53. http://nihnewsinhealth.nih.gov

54. Multilingual health Information: In over 40 languages!

55. Search Box Powered by Vivisimo

56. What are collections?

57. What are clusters?

58. Search tips  For phrase searching, use quotes  “Asperger’s Syndrome”  Can search a specific site  Ex/ bullying site:kidshealth.org  Not case sensitive  Will spell check  Can use Boolean searching ( OR, NOT )  With +, can limit search term to exactly what you  With *, can search for variations of a word

59. Surgery Videos Source: OR-Live.com

60. The most popular surgery video?

61. Free Trifold Brochures for Users in English and Spanish

62. Top 100 search terms – updated daily!

64. Top sources consulted for health information?  Health professional = 86%  Friend or family member = 68%  Internet=57%  Books or other printed material=54%  Insurance provider=33%  Other source=5% Source: Pew Internet and American Life Project The Social Life of Health Information, June 2009

65. MLA Health Information Literacy Survey Findings  Majority felt provision of consumer health information resources critically important to fulfilling hospital mission  General awareness of online consumer health information resources, but little awareness of Information Rx or similar services  Majority believed their hospital could improve health literacy by training staff to respond appropriately to patient health information needs Source: Shipman, Jean. Results from the NLM/MLA Health Information Literacy (HIL) Project, presentation Dec. 2009.

66. Maintenance New Behavior or Relapse Precontemplation Contemplation Action Source: CHANGING for GOOD by Prochaska, Norcross and Diclemente, 1995 Transtheoretical Change Model

67. NN/LM Funding 8/7/2015

68. http://nnlm.gov/ner/training/resources.html

69. http://nnlm.gov/ner/blog

70. Questions?

71. Thank you! Michelle Eberle Consumer Health Information Coordinator NN/LM New England Region michelle.eberle@umassmed.edu (508) 856-2435 / (800) 338-7657 This project is supported under contract #N01-LM-6-3508 with the NN/LM New England Region from the National Library of Medicine.