1. 1 www.trentrdsu.org.uk Training needs of those involved in health and social care research. Dawn-Marie Walker, Paul Leighton, Raksha Pandya, Rose Clacy, Peter Cass.

2. 2 www.trentrdsu.org.uk Introduction. To explore research training in social and healthcare settings: all stakeholders  specifically considering the different skills, insights, agendas and gaps that all stakeholders bring to this arena.  also, to start to shape the training and PPI support within the East Midlands RDS.

3. 3 www.trentrdsu.org.uk Outline. PPI and research training. [issues and concerns] A practical exercise – research scenarios. [identifying training needs] Review and future directions. [accessing training]

4. 4 www.trentrdsu.org.uk A starting point... better public consultation more user involvement “Being in favour of better public consultation or more user involvement is rather like being against sin; at a rhetorical level, it is hard to find disagreement” (Harrison & Mort (1998), Which champions, Which people). But … this disguises a range of issues & complexity, for example: Why involve service users? Different types of service user involvement. Different stages, perspectives and agendas.

5. 5 www.trentrdsu.org.uk Why involve service users? social technology Patient and Public Involvement as a social technology – a formal mechanism which legitimises research / makes it work. How does it do this? privileged knowledge With recall to notions of privileged knowledge. citizenship / social inclusion With recall to discourses of citizenship / social inclusion. funding requirements With recall to funding requirements.

6. 6 www.trentrdsu.org.uk Different types of involvement. with or by Patient and Public Involvement prioritises research done with or by (not to) service users. What form does this take? User driven research User driven research where service users set the research agenda and manage the process. Collaborative research Collaborative research where service users are part of a team undertaking the research. Consultative Consultative research where a research team might consult service users to comment on the research.

7. 7 www.trentrdsu.org.uk Different stages / different roles. Service users can play a range of roles in the research process: At the start - generating ideas & prioritising topics. At the start – designing the study. Research data – designing research instruments. Research data – identifying participants, collecting data. Analysing data – designing analysis, analysing data. At the end - writing-up, disseminating, implementing. At the end – planning for the future.

8. 8 www.trentrdsu.org.uk & so to research training. a one size fits all Despite these variations, and evident complexity, often a one size fits all model for PPI training is offered. research training for service users is a key principle of successful involvement. Often looking in only in one direction – at the skills needs of service users - “research training for service users is a key principle of successful involvement.” ( TRUE guidelines 2004). East Midlands RDS and training development.

9. 9 www.trentrdsu.org.uk Workshop Raksha Pandya Rosemary Clacy Peter Cass

10. 10 www.trentrdsu.org.uk Instruction In groups: On the timeline sheet enter The research training that either an Academic, Consumer Advisor or Clinician may need at different stages of the project

11. 11 www.trentrdsu.org.uk Project Synopsis  A population survey mailed to adults aged ≥50 who are registered at a local GP practice (n4,000)  The self reported survey is about presence of knee pain, treatments and medications.  They want to follow this with some one-to- one semi-structured interviews.

12. 12 www.trentrdsu.org.uk A training timetable … Starting upData collectionData analysisDissemination Academic Public Clinician

13. 13 www.trentrdsu.org.uk Where to Access Research Training Dawn-Marie Walker

14. 14 www.trentrdsu.org.uk Trent Research and Development Support Unit  Free!  Training programme Short courses Workshops  Consultation  Collaboration

15. 15 www.trentrdsu.org.uk UK Clinical Research Network  Free!  Associated with UKCRN studies Governance PPI Research Knowledge and Skills Disease Specific Training  Geographically wide  1x to 4x per year per course www.ukcrn.org.uk

16. 16 www.trentrdsu.org.uk Other Sources  College/University Courses Learning Beyond Registration  Charities  Involve  In-House www.rdlearning.org.uk

17. 17 www.trentrdsu.org.uk Contact Details: Dr. Dawn-Marie Walker Trent RDSU 14 th. Floor, The Tower University of Nottingham Nottingham NG7 2RD Phone: 0115 82 30511 Email: dawn-marie.walker@nottingham.ac.uk