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Published byAmos Palmer Modified over 9 years ago
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CPF Resources
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Resources for IPF Patients Creation of “IPF Support Group Coordinator’s Kit” for local patient groups –Patient support groups: San Francisco, CA Philadelphia, PA Vincennes, IN Fort Myers, FL Seattle, WA Eugene, OR
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Resources for IPF Patients The Breathing Disorders Sourcebook By Francis V. Adams, MD Lowell House, November 1998 Shortness of Breath: A Guide to Better Living and Breathing By Andrew L. Ries, et al Mosby-Year Book, Inc., September 2000 The Lung Transplantation Handbook By Karen A. Couture Trafford Publishing, 2001
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Resources for IPF Patients Coalition for Pulmonary Fibrosis (www.coalitionforpf.org) American Thoracic Society (www.thoracic.org) American College of CHEST Physicians (www.chestnet.org) American Lung Association (www.lungusa.org) Food & Drug Administration (www.fda.gov) Breatin’ Easy (www.oxygen4travel.com)
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Resources for IPF Patients NIH (www.nih.gov) Duke University (www.fpf.duke.edu) Caregiving.com Pulmonary Fibrosis Association (www.pulmonaryfibrosisassn.com) Pulmonary Paper (www.pulmonarypaper.org) American Hospice and Palliative Care Organization (www.nhpo.org)
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Resources for IPF Patients Online Discussions: Chronic Lung Disease Forum www.cheshiremed.com/programs/pulrehab/forum/cldforum.html Huff ‘n’ Puff Online Forum http://members.tripod.com/triton2/
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1685 Branham Lane, Suite 227, San Jose, CA 95118 888.222.8541info@coalitionforpf.org
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