Download presentation
Presentation is loading. Please wait.
Published byHannah Mason Modified over 9 years ago
1
The Northern Ireland Longitudinal Study: An Introduction
2
Research-Driven Cross-sectional studies: change over time? ONS-LS since 1971 Census Health & socio-demographic profile Legislation NILS confidentiality protected, managed under census legislation NISRA have consulted: Information Commissioner for Northern Ireland Office of Research Ethics NI Health and Social Care Privacy Advisory Committee Funding Infrastructure funded by the HSC R&D Division & NISRA Research funded by ESRC Census Programme and NI Executive Background to the NILS
3
Structure of the NILS
4
Example | | | | | | | | | | | | | | | | | | | | | | | 1991 2001 2011 Census Birth of Child StillbirthDivorce Marriage Cancer 27-year old Female in 1991 Death Address Change Birth of Child Address Change
5
Northern Ireland Longitudinal Study (NILS) – 28% sample (c. 500,000), based on health card registrations, routinely linked to: 2001 Census & 1991 Census (part) vital events (births, deaths) change of address (health card registration) AND potential to link to distinct Health & Social Care datasets (Not for today) Northern Ireland Mortality Study (NIMS) – total enumerated population in 2001 Census Day linked to: 2001 Census returns subsequently registered mortality data Introduction to the NILS and NIMS
6
Datasets Routinely Linked Census Dataset 2001GRO Vital Events Datasets 1997-2007 Variables include: Age, sex and marital status Religion and community background Family, household or communal type Housing, including tenure, rooms and amenities Country of birth, ethnicity Educational qualifications Economic activity, occupation and social class Migration (between 2000 and 2001) Limiting, long-term illness, self-reported general health, caregiving Travel to work - New births into the sample - Births to sample mothers and fathers - Stillbirths to sample mothers - Infant mortality of children of sample mothers and fathers - Deaths of sample members 2001-2007 - Marriages 2004-2006 - Widow(er)hoods 2004-2006 LPS Property Data 2010Health Card Registration Datasets 2001-2010 Capital and rating value (based on 2005 valuation exercise) Variables include: - Household characteristics (no. of rooms, property type, floor space, central heating) and valuation - Estimated capital value - Demographic data: age, status and location - Migration events: immigrants added to the sample emigration of sample members re-entry of sample members to NI migration within NI
7
NILS data is highly controlled: access only within ‘safe setting’ (McAuley House); user licenses & security policies; no tabulated cell counts less than 10; and all outputs cleared by NISRA staff. Access:
8
Policy Outreach Obvious policy-relevance 1. 1.Government researchers involved in NILS projects 2. 2.researchers engage policy-makers with their findings personal contact (formalised through application) dissemination of findings through: NILS-RSU Ezine ‘NILS News’ / email alerts NILS Research Briefs NILS-RSU website NILS User Group / Research Forum promotional activities i.e. seminars, workshops & conferences, +++
9
www.nils-rsu.census.ac.uk
10
NILS Research Support Unit Northern Ireland Statistics and Research Agency McAuley House 2-14 Castle Street Belfast BT1 1SA Tel: 028 90 348138 Email: nils-rsu@qub.ac.uk Website: nils-rsu.census.ac.uk
11
Distinct Linkage Projects (DLPs) Potential to link NILS to HSS data for one-off studies; so far Breast Screening, Dental Activity & Prescribing Legal, ethical and privacy protection protocols: NILS Research Approval Group Ethical approval – ORECNI Data Transfer Agreement HSC Privacy Advisory Committee informed One-way encryption – more later
12
Potential projects: Rural health inequalities Caregiving and mental health Population movement in Neighbourhood Renewal Areas Health card registration address change accuracy Linkage developments: NILS Census 2011 Hospital Inpatients System admissions data Future Developments
13
The Northern Ireland Longitudinal Study: An Introduction
Similar presentations
© 2025 SlidePlayer.com. Inc.
All rights reserved.