1. Kent & Medway Cancer Network Thames Cancer Registry Cancer Registration Dataset Pilot Nigel Brook

2. Background “The overall objective (from Project Brief) is to produce, agree and implement a robust mechanism by which information can be recorded, transferred, linked, consolidated and aggregated for the purpose of cancer registration. “ Milestones  July 2003 NHSIA joint project  November 2003 Proposals for pilots  July 2004 Interim report  August 2004 New version of NCRDS in line with pilot recommendations.

3. Cancer Registration Dataset- A Standards approach Sub set of NCDS v 4.3(5.0) Use industry standard messaging language Develop in partnership with NHSIA (including funding) Work closely with NPfIT Design Authority Submit to Information Standards Board Establish relationship with supplier to facilitate implementation at other sites

4. Infoflex- cancer patient information Oncology patient management chemotherapy prescribing Pathology data Electronic Patient Master index EPMI Cancer patient information system-Infoflex Oncology patient management system- KOMS Chemotherapy prescribing system Pathology data warehouse Kent and Medway Cancer Information Infrastructure

5. Strategy for implementation of the Cancer Patient Information System Waiting Times Data Collection Plus two streams of implementation Collection of the lung cancer dataset and collection of the gynaecology MDM and surgery dataset Accelerated program to support data collection at MDTs. Breast and urology MDM datasets to be followed by colorectal etc.

6. Progress to date Live with waiting times – all sites Lung design being piloted at Medway and will roll out July/August Breast MDM pilot started mid April at Darent Valley. Will roll out Aug/Sept Urology MDM pilot started in East Kent in April Gynae pilot started end of April, first for MDM with surgery to follow

7. Cancer Registration strategy in Kent Current –Manual – paper based Interim – Shared data collection with KMCN using common system Future – Migration to full implementation of NCRDS

8. Progress to Date Established system for extraction of data in XML format installed at Kent & Medway Cancer Network Created message store at TCR 10,000 records delivered to TCR for processing Report ready for presentation to ISAB. Development of CR screens in Infoflex

9. Quality review of first data delivered Confirmed cancer cases 828 cases matched with registry records. High degree of agreement on demographic details All cases 200220032004Other 16173471249516

10. Advantages Less duplication of work Initial data collection is more timely Quality Assurance becomes a cooperative effort Standard template for cancer registration data available on all Infoflex implementations Rapid processing of data on arrival Data validation rules

11. Challenges Refine schema Increase field and cross field validation Work with network to standardise data Roll out of Cancer Registration screens to other KMCN sites

12. Conclusion XML schema is fit for purpose It is simple to implement and rapid to process If Implemented as an operational standard it will facilitate data capture for cancer registration