1. 2014 PPE Disclosure Statement It is the policy of the Oregon Hospice Association to insure balance, independence, objectivity, and scientific rigor in all its educational programs. All faculty participating in any Oregon Hospice Association program is expected to disclose to the program audience any real or apparent affiliation(s) that may have a direct bearing on the subject matter of the continuing education program. This pertains to relationships with pharmaceutical companies, biomedical device manufacturers, or other corporations whose products or services are related to the subject matter of the presentation topic. The intent of this policy is not to prevent a speaker from making a presentation. It is merely intended that any relationships should be identified openly so that the listeners may form their own judgments about the presentation with the full disclosure of the facts. This presenter has no significant relationships with companies relevant to this presentation to disclose. 1

2. The Gift of Life: Hospice Patients as Donors

3. Donate Life Northwest Partners

4. Oregon Donor Registry Over 2.2 million people have registered 74% of the population are registered ~52,000 new registrants added each year

5. The Voice of 2.2 Million Future Lifesavers Responsibility to registrants:  Facilitate informed decision-making  educate  dispel myths  Ensure wishes to donate are honored  Aid in the grieving process for loved ones “It’s not just the transplant recipient that gets something good. We get something too.” -- Donor Mom

6. Oregon Donor Registry – by age

7. Donation in the Hospice Setting The Hospice philosophy brings great comfort to many families… We’ve found that families also embrace the donation experience as a source of solace.

8. Donation Specialists have undertaken eight weeks of training in order to provide a balance of opportunity and compassion to families Correspondence between recipients and donor families Follow-up letters at 1 month, 2 months, and 1 year anniversaries Memorial opportunities Donor Families Commitment to donors and their families doesn’t end with the donation

9. Memorial Opportunities Threads of Life Donor Quilts Donor Recognition Events Trees of Remembrance Remembrance cards Memorial expressions are one way for families to honor the legacy of their loved one’s gift

10. Transplant Recipients The ‘Gift of Sight’ is known as a ‘life-enhancing’ transplant, but recipients would tell you it is nothing short of ‘life-saving’. More than 45,000 cornea transplants in the United States each year, with a 95% success rate

11. In 2013, people benefited from 56,704 donated tissues recovered from Oregon donors Transplant Recipients

12. Honor Rate Goal Ensure that 100% of registered donors who wish to donate and are eligible to donate are able to donate

13. Honor Rate What does success look like? Average deaths in hospice each year: 10,500 (From Oregon Hospice Association Summary Reports 2004-2010) Estimated # with a donor designation: 7,770 (based on 74% donor designation share in Oregon) Estimated # eligible to donate each year: 3,885 (historically approximately 50% of hospice patients meet donation eligibility guidelines to donate corneas and tissues) Maximum Honor Rate for Hospice = ~3,885/ year

14. Implementation Options There are several models we could follow for starting a referral policy Information in Admit Packet Imminent Expiration Referrals Referral at Expiration Lions VisionGift follows different protocols to meet the needs of each hospice partner Lions VisionGift is the referral organization for all eye and tissue referrals

15. Potential Referral Flow Patient expires and your staff calls referral line LVG staff will call back to assess donor potential Only if eligible, will we approach the family (LVG asks you to get contact information for the decision maker) If the family chooses donation, LVG needs to coordinate with the funeral home the family is choosing

16. Hear From Your Peers Here are a few of the hospice programs we’ve been working with for many years now… Legacy Hopewell House Willamette Valley Hospice Providence Portland Hospice Check with your peers to hear how easy it can be to offer this option to all of your families

17. Discussion Questions Next Steps Contact Us! Stephen Rice Program Director Donate Life Northwest ricst@ohsu.edu 503-494-2257 Rodrick Carew Partner Relations Manager Lions VisionGift Roderick@visiongift.org 503-808-7028