1. Deaf Community HIV/AIDS Outreach and Networking AIDS 2012 July 26, 2012 AIDS 2012 July 26, 2012

2. AGENDA Introductions Introductions Resources in DC Resources in DC History of Deaf AIDS History of Deaf AIDS What can we do? What can we do? Introductions Introductions Resources in DC Resources in DC History of Deaf AIDS History of Deaf AIDS What can we do? What can we do?

3. US Deaf Community & HIV/AIDS Leila Monaghan University of Wyoming UMUC July 27, 2012 Leila Monaghan University of Wyoming UMUC July 27, 2012

4. HIV/AIDS in the United States: An Overview

5. AIDS VU Map: 2008 US Data http://www.wired.com/wiredscience/2011/0 6/hiv-aids-map-data/

6. HIV/AIDS in US Deaf Communities

7. HIV Infection Rates from M aryland Public Testing Sites 2003-2010

8. Maryland 2003, 2005-2011 Public HIV Testing Results

9. Deaf Lost to AIDS: http://deafaids.info/main/names 499 names listed 499 names listed 3 new names in 2011, 7 names added in 2010, 9 in 2009, 28 in 2006 3 new names in 2011, 7 names added in 2010, 9 in 2009, 28 in 2006 I think more than 3 deaths in 2011 I think more than 3 deaths in 2011 San Francisco person adds names San Francisco person adds names Not know DC Deaf people Not know DC Deaf people 499 names listed 499 names listed 3 new names in 2011, 7 names added in 2010, 9 in 2009, 28 in 2006 3 new names in 2011, 7 names added in 2010, 9 in 2009, 28 in 2006 I think more than 3 deaths in 2011 I think more than 3 deaths in 2011 San Francisco person adds names San Francisco person adds names Not know DC Deaf people Not know DC Deaf people

10. AIDS present in the US Deaf community since 1980s Deaths start 1980s in New York & San Francisco Deaths start 1980s in New York & San Francisco Robert Allis, New York, died 1986 Robert Allis, New York, died 1986 Sam Edwards, New York, died 1989 Sam Edwards, New York, died 1989 Bruce Hlibok, New York, died 1995 Bruce Hlibok, New York, died 1995 Deaths start 1980s in New York & San Francisco Deaths start 1980s in New York & San Francisco Robert Allis, New York, died 1986 Robert Allis, New York, died 1986 Sam Edwards, New York, died 1989 Sam Edwards, New York, died 1989 Bruce Hlibok, New York, died 1995 Bruce Hlibok, New York, died 1995

11. The Gay Deaf Community of the 1980s and 1990s Obituaries of Allen Lee Forbes and Michael Felts at http://deafaids.info/main/names Obituaries of Allen Lee Forbes and Michael Felts at http://deafaids.info/main/names

18. DC gay Deaf community R. Kevin Mallinson: DC Man “9 out of 10 of my friends have HIV” R. Kevin Mallinson: DC Man “9 out of 10 of my friends have HIV”

19. History of community programs NY had program starting 1980s NY had program starting 1980s Maryland had program starting in 1990 Maryland had program starting in 1990 Studies and programs developed in 1990s. Studies and programs developed in 1990s. Programs shut down since 2000 in Connecticut, New York, Washington DC, Chicago, San Francisco and Maryland. Programs shut down since 2000 in Connecticut, New York, Washington DC, Chicago, San Francisco and Maryland. Still some programs. Still some programs. NY had program starting 1980s NY had program starting 1980s Maryland had program starting in 1990 Maryland had program starting in 1990 Studies and programs developed in 1990s. Studies and programs developed in 1990s. Programs shut down since 2000 in Connecticut, New York, Washington DC, Chicago, San Francisco and Maryland. Programs shut down since 2000 in Connecticut, New York, Washington DC, Chicago, San Francisco and Maryland. Still some programs. Still some programs.

20. http://hivdeaf.blogspot.com

21. AIDS kills different people today

24. Resources http://hivdeaf.blogspot.com/ http://hivdeaf.blogspot.com/ http://hivdeaf.blogspot.com/ #deafhiv @LeilaMonaghan #deafhiv @LeilaMonaghan CSSQ (from Canada) website: CSSQ (from Canada) website: http://www.cssq.org/english/categories-hiv- risk-en.html http://www.cssq.org/english/categories-hiv- risk-en.html http://www.cssq.org/english/categories-hiv- risk-en.html http://www.cssq.org/english/categories-hiv- risk-en.html From Chicago From Chicago http://www.advocatehealth.com/immc/deafan dhardofhearingprogram http://www.advocatehealth.com/immc/deafan dhardofhearingprogram http://www.advocatehealth.com/immc/deafan dhardofhearingprogram http://www.advocatehealth.com/immc/deafan dhardofhearingprogram http://hivdeaf.blogspot.com/ http://hivdeaf.blogspot.com/ http://hivdeaf.blogspot.com/ #deafhiv @LeilaMonaghan #deafhiv @LeilaMonaghan CSSQ (from Canada) website: CSSQ (from Canada) website: http://www.cssq.org/english/categories-hiv- risk-en.html http://www.cssq.org/english/categories-hiv- risk-en.html http://www.cssq.org/english/categories-hiv- risk-en.html http://www.cssq.org/english/categories-hiv- risk-en.html From Chicago From Chicago http://www.advocatehealth.com/immc/deafan dhardofhearingprogram http://www.advocatehealth.com/immc/deafan dhardofhearingprogram http://www.advocatehealth.com/immc/deafan dhardofhearingprogram http://www.advocatehealth.com/immc/deafan dhardofhearingprogram

25. FIGURE. Estimated number of AIDS diagnoses and deaths and estimated number of persons living with AIDS diagnosis* and living with diagnosed or undiagnosed HIV infection † among persons aged ≥13 years --- United States, 1981--2008 http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6021a2.htm