1. Patient Panel Dr Henry Penn 30/09/2013

2. Welcome Housekeeping Introductions

3. Why are we here? The early reasons – Patient ‘stakeholder’ involvement – Valid decisions on changes and improvements – Improve services – Testing ground for proposed changes

4. The later reasons Significant changes are afoot – Trust – PCT/CCG – NW London – Nationally

5. Frame of Reference for Patient Panel 1. Feedback on Arthritis Centre services 2. Engagement with local musculoskeletal charities and patient groups 3. Discussion/update on NWLH service developments 4. Discussion/update on NW London service developments with regards to rheumatology

6. What do we want from you? 1. Frank feedback on our service. 2. Engagement with local charities and other musculoskeletal user groups 3. Help understanding the impact of changes from a patient view 4. Assistance trying to influence decisions

7. You can expect from us To be listened to To have changes explained For us to try to use as little jargon as we can manage! To take your views into consideration To leave whenever you like!

9. Rheumatology Specialist Activity 160 new/month 1040 FU/month Specialist clinics – Early RA – Connective tissue disease – Metabolic bone – Ank Spond – Hypermobility – Biologics Inpatient – daily input into emergency care Day unit –Biologics –Cytotoxics –Bisphosphonates Outpatient –MTX injection

10. Total activity 82% have inflammatory arthritis or CTD 80% of these are on DMARDS Circa 4000 patients

11. Other things we do Training – Imperial undergraduates – Trainee doctors (3 registrars, 2 GPs, 4 juniors) – National lectures Research – Rheumatoid arthritis – 3 projects – Lupus – one trial – Ankylosing spondylitis Audit – Service improvements – National publications

12. Changes in Brent Brent CCG are taking bids to run all of rheumatology outpatients’ services creating the specification by a process called “competitive dialogue” Process currently on hold due to challenges It is possible that the work may go to one or more private firm or another hospital trust It is unclear which doctors will run the service It will also be predominantly community based Our trust will bid for the work; so will Imperial and who else?

13. What shall we do? Make sure patient voices are heard and influence any changes. There will be change – but let’s get engaged and make sure it is for the better.