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Social determinants of health and the situation of persons with disabilities Poverty, lack of education, poor living conditions, and other human rights issues that impact human health disproportionately affect persons with disabilities. Health care is often not accessible or available to persons with disabilities on an equal basis with others because of factors like inaccessible buildings, lack of communications accommodations in the health care setting, and even denial of treatment based on a disability.
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Stigma associated with HIV infection and disability HIV-Related StigmaDisability-Related Stigma Fear of HIV infection through casual contact Fear of acquiring disability through casual contact Considered less than human Individual blamed for HIV infectionIndividual blamed for disability HIV infection caused by curseDisability caused by curse Exclusion from social events Undeserving of educationUnable to be educated Unworthy/undeserving of employment Unable/incapable of employment Sexually deviantAsexual
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Common Experience of Discrimination Both groups - persons living with HIV and persons with disabilities - are subjected to discrimination in employment, immigration, social protection benefits, are at risk of being subjected to coercive treatments such as involuntary sterilization, medical testing, and forced institutionalization, are at risk of being denied privacy rights, face exclusions from receipt of medical services, may be denied education.
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Convention on the Rights of Persons with Disabilities CRPD provisions relating to and supporting the right to health for persons with disabilities include: – the right to the highest attainable standard of health,; – provisions on non-discrimination and equality, accessibility, participation, education – respect for privacy, freedom from violence and abuse – the freedom to receive and impart information, – the right to marry and found a family among others. Persons with disabilities may not be discriminated against in their access to programming, nor may they be discriminated against on the basis of their HIV status. Such protection from discrimination applies equally to persons in a relationship with someone who has HIV or AIDS. The CRPD supports the meaningful participation of persons with disabilities and their representative organizations in the design and implementation of HIV prevention, treatment, care and support.
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Failure to Provide Reasonable Accommodation is Discrimination Failure to provide a physically accessible environment at an HIV testing center for a person who uses a wheelchair. Failure to make arrangements to ensure that HIV counseling for a soldier living with HIV is confidential. Failure to provide HIV information in accessible formats to a person who is blind or low vision. Failure to provide information about the use of antiretroviral drugs to a person living with HIV who cannot read. Failure to provide sign language interpretation or other means of communication access at HIV testing center for persons who are deaf or hard of hearing. Failure to provide flexible work arrangements for a person with HIV infection to receive treatment
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Standards of Human Rights Protection for Persons with Disa International Standards of Human Rights Protection for Persons with Disabilities and Persons Living with HIV bilities and Persons Living with HIV International Standards of Human Rights Protection for Persons with Disabilities and Persons Living with HIV International Guidelines on HIV/AIDS and Human Rights Convention on the Rights of Persons with Disabilities Guideline 5: Anti-Discrimination and other laws to protect persons living with HIV, persons with disabilities, and other vulnerable groups. Articles 4 & 5: Modify/abolish discriminatory laws against persons with disabilities; guarantee equal legal protection against discrimination and take measures to ensure reasonable accommodation is provided. Guideline 9: Action to change attitudes of discrimination and stigmatization associated with HIV. Article 8: Action to raise awareness about disability rights, combat harmful stereotypes, and promote understanding. Guideline 10: Public and private sector standards of conduct regarding HIV issues. Article 4: Measures to eliminate discrimination on the basis of disability by any person, organization or private enterprise. Guideline 11: State monitoring and enforcement mechanism to guarantee HIV- related rights. Articles 33 - 40: National and international level monitoring mechanisms to enforce disability rights.
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AIDS ResponseDisability Response Coordination of National AIDS Response Coordination of Disability Policy across Government One National AIDS Action Framework National Disability Strategies or Plans of Action (optional) One national coordinating authority Coordination mechanism within government (optional) One national monitoring and evaluation system fully integrated into the national AIDS framework & inclusive of indicators One independent monitoring system Civil society participation, including broad stakeholder participation in formulation of AIDS framework. Participation by persons with disabilities and their representative organizations in disability policy Cross-Cutting, Integrated Approaches to AIDS and Disability Response
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Creating a supportive legal environment Empowering communities to have access to justice: Accommodating persons with disabilities and persons living with and affected by HIV in legal aid and legal literacy programs; implementing campaigns against stigma and stereotyping and providing human rights training for key service providers; Ensuring respect for human rights in the context of law enforcement: For example, capacity building among law enforcement and judiciary on disability inclusion, for example through providing support to women with disabilities who are victims of sexual violence or ensuring that persons with disabilities are effectively accommodated in the criminal justice system; and Creating enabling law and policy frameworks: For example, ensuring that non-discrimination applies to persons with disabilities and persons living with or affected by HIV, ensuring that reasonable accommodation is a requirement component of non-discrimination, including DPOs in law and policy development.
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Youth Perspective on Mainstreaming Disability into HIV Programs Integrating Comprehension and Advocacy: How the disability and HIV rights movements can support each other at the country-level Walter E. Washington Convention Center Washington D.C 26 July, 2012 Chona M. Sabo Regional Officer Disability Rights Promotion International – Asia Pacific Region Email: chona_drpi@dpiap.org Website: www.drpi.yorku.ca
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Content Overview Young Key Affected Populations Youth with Disabilities Gaps and Challenges The Ways Forward UN Description of Disability Defining HIV/AIDS Disability and HIV/AIDS
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Describing Disability Disability : UN CRPD results from the interaction between persons with impairments and attitudinal and environmental barriers that hinders their full and effective participation in the society on an equal basis with others.
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Defining HIV/AIDS HIV/AIDS (Human Immunodeficiency Virus / Acquired Immunodeficiency Syndrome) HIV infects cells of the human immune system, and destroys or impairs their function. Unlike other viruses such as cold and flu viruses, HIV remains permanently in the body. Left alone, it slowly destroys the body’s immune system and leads to AIDS. There is no cure for AIDS, but treatments can extend life expectancy for many years.
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Disability HIV/AIDS Cross-cutting Issues
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Young Key Affected Populations Young people who use drugs Young Migrants Young Sex Workers Young Men who have sex with men Young Transgender Young Girls
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Youth with Disabilities Young people with disabilities who use drugs Young Migrants with disabilities Young Sex Workers with disabilities Young Men with disabilities who have sex with men Young Transgender with disabilities Young Girls with disabilities
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Gaps and Challenges Poverty Stigma Multiple Discrimination Isolation among young people Universal access to health, care & treatment is not reached Being part of the “Invisible Population”
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The Ways Forward To achieve full recognition of Youth with Disabilities as rights-holders in HIV/AIDS issues, people must understand that: the needs of youth with disabilities are not “special” the Disability and HIV/AIDS issues must not be politicized separate but equal is not equal Youth with Disabilities have to be recognized as decision-makers
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Do you know us? Do you see us? Can you hear us? Can you help us? Can you save us?
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