1. Including Seniors and Members with Acquired Disabilities February 29, 2012

2. www.serviceandinclusion.org Toll-free hotline: 888-491-0326 (voice/TTY)

3. National Partnerships

4. Gentle Reminders… All phone lines are muted. If you would like to make a comment or ask a question, please use the Text Chat or Question fields. Please ask questions, share ideas, and comments: Don’t be shy, please speak up “Raise hand” icon The session will be recorded.

5. Introduction Ms. Robin Fisher Program Manager for the Delaware Foster Grandparent Program Works on the national and local level to promote Senior Corps programs and disability inclusion Working on development of Delaware’s Inclusion Team

6. Webinar Objectives 1.Define a “Person with a Disability” 2.Disclosure in terms of people with acquired disabilities 3.Potential barriers to addressing acquired disabilities, faced by- a. Programs and sites b. Members and volunteers 4.Helpful solutions

7. Who is a Person with a Disability? 1. A volunteer who uses non-prescription reading glasses. 2. An applicant for service who recently broke their leg. 3.A member who, because of a stroke, needs a little more time to speak.

8. “Disability” as Defined by Section 504 of the Rehabilitation Act & the Americans with Disabilities Act A physical or mental impairment that substantially limits one or more major life activities A history or record of such an impairment Being regarded as having such an impairment, even when no limitations exist Someone who has an association with someone with a disability

9. “Substantially limits” …unable to perform, or significantly limited in the ability to perform, an activity as compared with an average person. Factors to be considered are: 1.Its nature and severity 2.How long it will last or is expected to last, and 3.Its permanent or long-term impact, or expected impact

10. What is an example of a Major Life Activity? “Major Life Activity” is Anything an Average Person Can Do with Little or No Difficulty

11. Major life activities include, but are not limited to: caring for oneself, performing manual tasks, walking, seeing, hearing, speaking, breathing, learning, working, sitting, standing, lifting, reaching, sleeping and mental/emotional processes such as thinking, concentrating and interacting with others. Americans with Disabilities Act Amendments Act (ADAAA) additions: operation of major bodily functions such as the immune system, normal cell growth and the endocrine system. http://www.jan.wvu.edu/bulletins/adaaa1.htm “Major Life Activity” is Anything an Average Person Can Do with Little or No Difficulty

12. Of or related to a disease, condition, or characteristic that develops after birth; not inherited. -Mosby’s Medical Dictionary, 8 th edition. 2009. Defining Person with an Acquired Disability Part 1 of the definition of a person with a disability: A physical or mental impairment that substantially limits one or more major life activities

13. Why not simply disclose?

14. Culture of program environment –“Gossipy” –Excessively competitive –Racially insensitive Fear of potential reactions Refusal by others to share equipment Not relevant Stigma associated with disability Need to disclose to other people outside of service program first Why not simply disclose?

15. How Willing to Self-Disclose Are You? Rate on a scale of 1 – 5 the following questions: 1. What are your hobbies? 5 = would definitely self-disclose 4 = would probably self-disclose 3 = don’t know 2 = would probably not self-disclose 1 = would definitely not self-disclose

16. How Willing to Self-Disclose Are You? Rate on a scale of 1 – 5 the following questions: 1. What are your hobbies? 2. What is your worst fear? 5 = would definitely self-disclose 4 = would probably self-disclose 3 = don’t know 2 = would probably not self-disclose 1 = would definitely not self-disclose

17. How Willing to Self-Disclose Are You? Rate on a scale of 1 – 5 the following questions: 1. What are your hobbies? 2. What is your worst fear? 3. What aspects of your personality do you dislike? 5 = would definitely self-disclose 4 = would probably self-disclose 3 = don’t know 2 = would probably not self-disclose 1 = would definitely not self-disclose

18. How Willing to Self-Disclose Are You? Rate on a scale of 1 – 5 the following questions: 1. What are your hobbies? 2. What is your worst fear? 3. What aspects of your personality do you dislike? 4. What is your level of income? 5 = would definitely self-disclose 4 = would probably self-disclose 3 = don’t know 2 = would probably not self-disclose 1 = would definitely not self-disclose

19. Known to SelfUnknown to Self Known to Others Open Pane Known to self and others Blind Pane Blind to self, seen by others Unknown to Others Hidden Pane Open to self, hidden from others Unknown Pane Unknown to self and others Johari Window The Johari window is a way of showing how much information you and others know about yourself.

20. Known to SelfUnknown to Self Known to Others DISCLOSURE- May or may not ask for/ need an accommodation NON-DISCLOSURE- May not consider themselves a PWD Unknown to Others NON-DISCLOSURE- May not be aware of ADA protection and/or RA NON-DISCLOSURE- Something yet to be learned about ourselves Window Perspective of Member/Volunteer What does the member know about himself/herself and what are they willing to disclose?

21. Known to SelfUnknown to Self Known to Others DISCLOSURE- May or may not ask for/ need an accommodation NON-DISCLOSURE- May not consider themselves a PWD Unknown to Others NON-DISCLOSURE- May not be aware of ADA protection and/or RA NON-DISCLOSURE- Something yet to be learned about ourselves Window Perspective of Member/Volunteer What does the member know about himself/herself and what are they willing to disclose?

22. Known to SelfUnknown to Self Known to Others DISCLOSURE- May or may not ask for/ need an accommodation NON-DISCLOSURE- May not consider themselves a PWD Unknown to Others NON-DISCLOSURE- May not be aware of ADA protection and/or RA NON-DISCLOSURE- Something yet to be learned about ourselves Window Perspective of Member/Volunteer What does the member know about himself/herself and what are they willing to disclose?

23. Known to SelfUnknown to Self Known to Others DISCLOSURE- May or may not ask for/ need an accommodation NON-DISCLOSURE- May not consider themselves a PWD Unknown to Others NON-DISCLOSURE- May not be aware of ADA protection and/or RA NON-DISCLOSURE- Something yet to be learned about ourselves Window Perspective of Member/Volunteer What does the member know about himself/herself and what are they willing to disclose?

24. Regardless of disclosure, making the availability of reasonable accommodations known Difficult to initiate conversation about an issue, performance or non-performance related The culture of the site may be inclusive, but there are no signs- inclusive statements, pictures of people with disabilities- to make someone comfortable to disclose Perspective of Program/Site

25. Alice, a Foster Grandparent volunteer, is in her second year as a volunteer to youth at a local school. Some responsibilities include: –Tutoring students from 8:30 a.m. – 12:00 p.m. –Reading with and reviewing students’ work She has been consistently arriving after 8:45 a.m., however. Alice’s supervisor has been receiving complaints from teachers and students. Case Study

26. Alice recently learned from her doctor that she has Age-Related Macular Degeneration. As a result, she is no longer able to drive. She has only stated that she is late because she is taking the bus She also has expressed difficulty reading and reviewing students’ work Alice has always been an asset. However, the supervisor is now having concerns about her ability to perform the functions of the position. Case Study, cont.

27. 1.Is this a person with a disability? Feel free to ask any follow up/clarifying questions! Revealing the (In)visible Barriers

28. Known to SelfUnknown to Self Known to Others 1. Open Pane Known to self and others 2. Blind Pane Blind to self, seen by others Unknown to Others 3. Hidden Pane Open to self, hidden from others 4. Unknown Pane Unknown to self and others 2.Where would this person be on the Johari window?

29. 3. What are some things you can do to make the environment more conducive to disclosure? Feel free to ask any follow up/clarifying questions! Revealing the (In)visible Barriers

30. 4. Are there any accommodations you might suggest to the supervisor? Feel free to ask any follow up/clarifying questions! Revealing the (In)visible Barriers

31. To enable the Foster Grandparent volunteers to remain physically and mentally active and to enhance self-esteem through participation in needed community service. To enable children less than 21 years of age with either exceptional or special needs to achieve improved education, physical, mental, emotional, and social development. www.VolunteerDelaware.org Inclusive Efforts with Foster Grandparents of Delaware

32. Personal Story- Edna Newsome State Office of Volunteerism, Foster Grandparents of Delaware www.VolunteerDelaware.org Inclusive Efforts with Foster Grandparents of Delaware

33. Examine the inclusiveness of your program’s environment and culture Do you have an inclusive statement? Do any materials mention acquired disabilities? Are the inclusive images visible to members and volunteers? Are members and volunteers aware of reasonable accommodations? Opening the Window Panes

34. Encourage disclosure in your program Ask individuals about their experience and satisfaction Keep any disclosures confidential Support and reinforce the discloser Opening the Window Panes

35. Make sure expectations for individuals with acquired disabilities are the same as for any other member or volunteer Reviewing essential and marginal functions of the position Following up on effectiveness of reasonable accommodations Opening the Window Panes

36. Job Accommodation Network (JAN) site: http://askjan.org/ Understanding physical and mental disabilities associated with an aging population: http://www.nationalserviceresources.org/practices/17884 Inclusion Weekly and Responses on Seniors and Acquired Disabilities- 11/4/2010: http://www.serviceandinclusion.org/index.php?page=iw#w_ad Foster Grandparents of Delaware: www.VolunteerDelaware.org National Service Inclusion Project: www.ServiceandInclusion.org Additional Available Resources

37. Questions? Chad Gobert, National Service Inclusion Project Chad.Gobert@umb.edu Robin Fisher Foster Grandparents of Delaware Robin.Fisher@state.de.us

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