1. Headway – the brain injury association MIND OF INFORMATION 3 St James Park, Newcastle – 29 th Feb 2012

2. HEADWAY – the brain injury association Aims to:- promote understanding of all aspects of brain injury provide information, support and services to people with brain injury, their families and carers.

3. FACTS & FIGURES Every year, more than a million people attend hospital A&E departments in the UK following a head injury. In 2007, 88,835 people were admitted to hospital each year as a consequence of traumatic brain injury. Head injury is the foremost cause of death and disability in young people. Approximately 50% of deaths in people under 40 are due to head injury. Males are two or three times more likely to have a brain injury than females. This increases to five times more likely in the 15 - 29 age range.

4. NORTH EAST FACTS & FIGURES North East Population Figures 2006 - 2.577m Incidence of admission to hospital for brain injury in England for 2006 - 88,835 North East Admission Figures in 2006 4472!!

5. NORTH EAST FACTS & FIGURES HIGHEST INCIDENT - NORTH EAST PCT CLUSTERS IN 2006 Co Durham - 876 Northumberland - 542 Sunderland - 491 Newcastle - 473 North Tyneside - 341

6. WHAT IS AFFECTED BY BRAIN INJURY? Perception Memory Concentration/Attention Information Processing Movement Co-ordination/Balance Stamina/Tiredness Sensory Perception Speaking Language Skills MotivationAwareness/Insight Relationships Personality Mood/Emotions Inhibition/Impulsivity Tolerance Executive Skills Planning, Organising

7. Causes of Brain Injury…. Mainly traumatic RTA – 40%Falls/Domestic Accidents – 20% Assaults – 10%Work/Sports Accidents – 5% Non Trauma - 25% Stroke Brain hemorrhage Infection Lack of oxygen Drug and alcohol abuse

8. BRAIN INJURY IN THE UK Statistics based on nationwide survey commissioned by Headway and University of Exeter

9. Carer’s Role Home Front Chief Domestic Main Provider Education Link Main decision maker Information Gatherer Partner/Parent/Friend Risk Management Personal & Medical Care Peg Changing Change of dressing Physio exercises Incontinence Management Drug Management Legal Aspects Liaison with Personal Injury Solicitors Liaison with Receivers Attendance at hearings Advocacy Liaison Officer for Social Services Physical Disabilities Section Housing Equipment Services Adaptations Welfare Benefits/Direct Payments/Individual Budgets Case Managers Involved with goal setting Implementation of care plans Risk Management Support Worker Recruitment Liaison Officer for NHS Clinical Psychologist Speech & Language Physiotherapist GP Neuro Rehab/Medicine Consultant Occupational Therapist Counsellors

10. HEADWAY UK Headway is a charity set up to give help and support to people affected by brain injury with a network of 110 local Groups and Branches throughout the UK offering a wide range of services, including rehabilitation, carer support, social re-integration, community outreach and respite care. The services available vary, depending on local needs and resources. Headway UK provides support to the local Groups and Branches and helps to deliver high quality services through guidance on policies, procedures, standards and training. Additionally: We operate a UK Helpline We produce a range of booklets containing information about aspects of brain injury for those directly affected, plus professionals, employers and members of the public. We promote understanding of brain injury and its effects We lobby for better support and resources to be made available by statutory health and social care providers. We campaign for measures that will reduce the number of brain injuries

11. HEADWAY IN THE NORTH EAST Headway North Northumberland Headway Tynedale Headway Newcastle & North Tyneside Headway Gateshead & South Tyneside Headway Durham & Chester Le Street Headway Teesside Headway Central Northumberland Headway Wearside

12. North East Developments…. Developing Headway Darlington & District Funding the post of Community OT in the Middlesbrough area Brain Injury Co-ordinator post @ JCUH Recruitment of Community Development Officer for Headway Teesside New Business Strategy for Headway GST Look Ahead in the North 2012

13. Headway Gateshead & South Tyneside Community Development Officer Appointed 19 th April 2010 with the remit of developing services for people affected by brain injury. Increase in membership Re-vamp of current website Photography project Raised monies of activities and transport Community initiatives in place – volunteering/health trainers/timebank (volunteering scheme)/community allotment

14. Headway Gateshead & South Tyneside The Youth Group will: provide much-needed social contact for young people aged between seventeen to twenty-eight, including an informal ‘buddy’ system create a precedent in the North East region; a self- governing group of and for young adults with Acquired Brain Injury promote independence, focussing on skill-sets such as travel, shopping, social interaction, and communication increase self-confidence and esteem in members through learning and consolidating new proficiencies as well as the through the autonomous running of the group

15. Me, me, me, me, me! Representation on various commitees NABIF Northern Neurological Alliance Towards Inclusive Living Project HITS Clinical Trial/STITCH Trial Brain Injury Awareness Sessions delivered to local community groups/care homes(!) Advocacy (e.g. representation welfare benefits tribunals) Educational Sessions for schools Educational material for Police/Duty Solicitors Look Ahead in the North (Residential Weekend 25-27 th Mar 2011 at The Calvert Trust - Kielder)

16. Look Ahead in the North Specific Residential Weekend for people with Brain injury and their Carers from the NE and North Cumbria. 87 people in attendance Calvert Trust Activities Holistic Therapies Brain injury workshops Ceiledh Dance Best thing was the chance to meet with others in similar situations – peer support!

20. Thank You For Listening