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Published bySydney Walsh Modified over 9 years ago
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Open-Sourcing the Research Exchange Database (RexDB) How to package a successful data management platform extensively used in autism research as an open-source project Leon Rozenblit, JD, PhD Founder/CEO, Prometheus Research, LLC
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Presenter Disclosures Leon Rozenblit (1) The following personal financial relationships with commercial interests relevant to this presentation existed during the past 12 months: Employment by commercial entity, Prometheus Research, LLC Stock ownership, Prometheus Research, LLC
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Objectives You will learn about… The need for integrated data management The RexDB Vision The RexDB Project (Past, Present and Future) The significance of Open Source approaches
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There is a significant need for integrated data management in biomedical and behavioral research
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What’s the Problem?
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Primary Functions of an iDMS (RexDB) Acquire electronic data from patients and clinical staff Collect data from a wide range of outside sources Curate data via configurable data quality and consistency checks Explore and query data through focused data sets and powerful search tools
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The Benefits of Using RexDB for Integrated Data Management Your Data is… CLEAN with easy to use dual data-entry screens and customized data quality reports ORGANIZED and labeled for easy, repeated use in different research endeavors SAFE with frequent back-ups and comprehensive logging of every change SECURE with compliance with local and federal regulations (e.g., HIC/IRB, HIPAA, HITECH) ACCESSIBLE by statistical packages, analysis tools, and even remote collaborators and PERSISTENT by ensuring research data sticks around after a lab member leaves
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The History of RexDB Data Collection
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The Project Roadmap Work with stakeholders to define requirements for an integrated data management system to support autism and related disorder research Package existing components into a modular, open-source RexDB system Evaluate the new system at four research sites Create a vibrant open-source community around the platform
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Where are we now?
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The Value of Open Source Approaches Wider user base - Broader feedback Free to modify - More extensibility Free to distribute - Better sharing through a common standard
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What challenges have we faced? Refactoring existing code base and eliminating architectural debt is time- consuming Developing the ability for user-based customization and configurability requires in-depth design Balancing the requirements of our current client-base and general Open Source users is not trivial Designing general solutions for new domains
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Other Possible Applications of RexDB
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Want to Learn More? RexDB.org
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Acknowledgments Charles Tirrell David Voccola Owen McGettrick Naralys Sinanis Clark Evans Frank Farach
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