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4. PROJECT LEADERSHIP: CHAPTER1 Knowing the Past to Change the Future: History and Purpose of Advocacy 4

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6. P URPOSE To learn about:  Key legislation and policies  The Disability Rights Movement  What advocacy means  Current issues 6

7. W HAT D O W E L EARN F ROM H ISTORY ? We gain an understanding of the history of disability and how that history affects people’s lives today. 7

8. W HAT D O W E L EARN F ROM H ISTORY ? Individuals and groups of individuals have the power to change systems and attitudes. 8

9. K EY L EGISLATION AND P OLICIES 9

10. T HE D ISABILITY R IGHTS M OVEMENT 10

11. H OW C HANGE H APPENS “Power concedes nothing without a demand. It never did and it never will.” - Frederick Douglas Public Policy Advocacy:: A Grassroots Guide, The Statewide Parent Advocacy Network, span@spannj.orgspan@spannj.org 11

12. T HE D ISABILITY R IGHTS M OVEMENT A IMS T O :  Improve the quality of life of individuals with disabilities through increased civil and legal rights.  Decrease the pathologized view of disability, replacing it with the view that disabled individuals comprise a cultural or social minority group. 12

13. S OCIAL P REJUDICES HAVE :  Excluded children with disabilities from public schools.  Confined people in state institutions and nursing homes.  Sanctioned discrimination in housing employment and public accommodations. 13

14. D ISABILITY R IGHTS M OVEMENT 1960s  Civil Rights Movement  Women’s Rights Movement 1970s  Independent Living Movement 14

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16. I NDEPENDENT L IVING M OVEMENT ACHIEVED :  Choice to live in the community  Personal service assistance  Removal of barriers to full participation http://www.pbs.org/independentlens/lives-worth-living/ 16

17. H IGHLIGHTS OF THE D ISABILITY R IGHTS M OVEMENT Jeopardy 17

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19. 3 K EY P IECES OF L EGISLATION  Rehabilitation Act of 1973  Education for All Handicapped Children of 1975  Americans with Disabilities Act of 1990 19

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21. L ANTERMAN A CT 1969 21 Rights for individuals with developmental disabilities and their families to access the supports and services they need to live like people who are without disabilities.

22. F AMILY V OICES – R OLE OF P ARENTS 22  Bringing our children home  Helping other families  Improving hospital policies  Advocating for inclusive education  Involving fathers  Seeking cultural competence  Conducting research  Assuring family-centered care  Improving state and federal policies  Encouraging youth to speak out  Partnering with government agencies  Training leaders http://www.familyvoices.org/about?id=0002

23. M ORE ON D ISABILITY R IGHTS http://isc.temple.edu/neighbor/ds/disabilityrightstimeline.htm A timeline  http://www.pbs.org/independentlens/lives-worth- living/disability-rights-timeline.html http://www.pbs.org/independentlens/lives-worth- living/disability-rights-timeline.html A PBS interactive timeline  http://americanhistory.si.edu/disabilityrights/welcome.html http://americanhistory.si.edu/disabilityrights/welcome.html Smithsonian Exhibition  http://bancroft.berkeley.edu/collections/drilm / http://bancroft.berkeley.edu/collections/drilm / History of Disability Rights and Independent Living Movement

24. What Does It Mean To Advocate? 24

25. P UBLIC P OLICY A DVOCACY FOR S OCIAL C HANGE “Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has.” Margaret Mead Public Policy Advocacy:: A Grassroots Guide, The Statewide Parent Advocacy Network, span@spannj.orgspan@spannj.org 25

26. H AVE Y OU E VER :  Gone to bat when there was a problem at school?  Helped a relative or neighbor get care when they were sick?  Asked friends to support a favorite project? Then you have been an ADVOCATE ! 26

27. W HAT I S A DVOCACY ? Advocacy is speaking, writing, or acting in support of a cause. It is something most of us do routinely on behalf of ourselves, our families, our neighbors, and our friends. 27

28. I SSUE -B ASED A DVOCACY  Citizens advocate every day to remedy social problems pertaining to: Gender The Environment Health Care Race Disability 28

29. T YPES OF A DVOCACY Self Advocacy Peer Advocacy Public Policy Advocacy Social Justice Advocacy Interest-Group Advocacy Bureaucratic Advocacy 29

30. S ERVICE VS. A DVOCACY  Identifying the difference Public Policy Advocacy: A Grassroots Guide, The Statewide Parent Advocacy Network, span@spannj.org 30

31. A DVOCACY  Change tactics over time  Go up the “Chain of Command”  Demand change 31

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33. L EVELS OF A DVOCACY L EADERSHIP : W ORKING Y OUR W AY U P 33

34. C HECKLIST FOR P UBLIC P OLICY A DVOCACY  History and Purpose of Advocacy  Laws, Regulations & Systems  Working with Decision Makers  Working & Communicating with Others  Telling Your Story  Forms of Participation  Local Allies & Change Makers 34

35. C URRENT I SSUES 35

36. D EVELOPING AN A CTION P LAN Focusing on:  Identifying the issue/problem to be solved  Setting goals  Identifying core constituencies 36

37. M Y I SSUES What issues are important to me? Why are they important? Who do these issues affect? What can be done to change or improve these issues? How would I like to get involved? 37

38. S UGGESTED R ESEARCH T OOLS  Family Voices of CA Website  Family Voices National Website  Lucile Packard Foundation for Children’s Health Website  Genetic Alliance Website  CA Healthline  Centers for Independent Living Websites  Major Newspapers (i.e., New York Times)  Local Newspapers (i.e., SF Chronicle, Contra Costa Times)  Local Libraries  Family Resource Centers 38

39. Chapter 1 Review 39

40. H OMEWORK Beginning Your Personal Action Plan  Articulate an issue or problem you would like to solve.  Formulate four clear goals.  Identify the core constituencies affected by the issue. 40

41. E VALUATION  Purpose o To get feedback on the effectiveness of this training o To identify what participants are learning o To find areas that can be improved 41