1. Seminar in Palliative Care September 26 – October 02, 2010 Salzburg, Austria in Collaboration with

2. Educational Resources in Palliative Care Mary V. Callaway Director International Palliative Care Initiative Open Society Foundations

3. Objective 4 To identify and describe five educational resources for palliative care education and training Participants should be able to:

4. Where to find palliative care educational materials? 4 Book, textbooks, self-study guides, journals, newsletters 4 Audio tapes, video tapes, CD Roms 4 Lectures, workshops, seminars, courses 4 Internet (bulletin boards, distance learning courses, list serves, websites)

5. World Health Organization

14. Palliative Care Textbook

15. Institute of Medicine

17. Palliative Care Textbooks

18. Institute of Medicine Report Books on Palliative Care Report identified significant gaps in knowledge about care at the end of life and made recommendations to improve care

19. Institute of Medicine Pediatric Palliative Care Report Reviewed the current state of end of life care children with life limiting illness and made recommendations for changes that need to be made.

20. Education for Physicians on End-of-Life Care (EPEC) 4 Designed by experts to educate physicians on the essential clinical competencies in end of life care. 4 Combines didactic sessions, videotape presentations, interactive discussions, and practical exercises. http://www.epec.net

21. Palliative Care in HIV/AIDS Human Resources and Services Administration

24. UNIPAC Book Series: Hospice/Palliative Care Training for Physicians--A Self Study Program The Hospice/Palliative Medicine Approach to Caring for Patients with HIV/AIDS The Hospice/Palliative Medicine Approach to Caring for Pediatric Patients Ethical and Legal Decision Making When Caring for the Terminally Ill http://www.aahpm.org/bookstore/index.html

25. Distance Education Program Edmonton Palliative Care Program From the University of Alberta, Canada Department of Oncology, extensive clinical information, patient materials, and a pilot Web-based training course, PallCare EdNet http://www.palliative.org

26. On-Line Distance Learning 4 MSc in Oncology and Palliative Care –www.ncl.ac.ukwww.ncl.ac.uk 4 Multiprofessional Masters/Diploma/Certificate in Palliative Care www.dundee.ac.ukwww.dundee.ac.uk

27. Video Tapes Bill Moyers PBS Series “On Our Own Terms” Public education Program with Enormous outreach program

30. The Center to Advance Palliative Care (CAPC) is dedicated to increasing the availability of quality palliative care services in hospitals and other health care settings for people with life-threatening illnesses, their families, and caregivers. www.capc.org

32. Beth Israel, New York Pain & Palliative Medicine Dept Beth Israel, New York Pain & Palliative Medicine Dept http://www.stoppain.org/ 4 Website 4 Palliative Care Research Program 4 Palliative Care Manual –A comprehensive step-by-step online guide to planning and implementing a palliative care program.

34. LAST ACTS.org 4 An educational campaign to improve end- of-life care by a coalition of professional and consumer organizations. 4 For professionals and volunteers working to improve care of the dying. 4 Website, E-newsletter, Policy Newsletter, Listserve

38. Hospice Information Service Hospice Information Service www.hospiceinformation.info 4 A joint venture between St. Christopher's Hospice and Help the Hospices. 4 Brings together the experience and established reputation for high quality of the Hospice Information Service at St. Christopher's and the national remit and innovative information developments of Help the Hospices. 4 To provide a world-class information service for health professionals and members of the public, on UK and international hospice and palliative care.

41. ProfessionalJournals Professional Journals 4 European Journal of Palliative Care 4 American Journal of Hospice and Palliative Care 4 Palliative Medicine 4 Journal of Pain and Symptom Management 4 BMJ/palliative medicine 4 European Journal of Cancer Care 4 Journal of Hospice and Palliative Nursing 4 Journal of Palliative Care 4 Journal of Palliative Medicine 4 Progress in Palliative Care 4 Supportive Care in Cancer 4 International Journal of Palliative Nursing 4 Journal of Pain and Palliative Care (NEW)

42. Email Newsletters 4 EAPC-EAST Sylvia.Sauter@stockholmssjukhem.se Sylvia.Sauter@stockholmssjukhem.se 4 ECEPT Newsletter--Eastern and Central Europe Palliative Care Task Force anna.szczerbak@oncology.am.poznan.pl 4 IAHPCO International Association Hospice Palliative Care http://www.hospicecare.com/Newsletters/june2 003/index.html

43. Email Newsletters 4 Worldwide Hospice and Palliative Care Online ceri@hospiceinformation.info 4 Africa Hospice Foundation News psarver@hospicecny.org

44. Professional Associations 4 European Association for Palliative Care (EAPC) 4 Eastern & Central Palliative Care Task Force (ECEPT) 4 National Palliative Care Associations, i.e. “Croatia, Hungary, Lithuania, Mongolian, Poland, Romania, Russian Palliative Care Association” 4 American National Hospice and Palliative Care Organization 4 International Association for Hospice and Palliative Care 4 Physician organizations – AAHPM 4 Nursing organizations – ONS 4 Social work organizations – AOSW 4 Children Hospice International

47. www.hospicecare.com

49. www.chionline.org Children’s Hospice Interntional

50. http://www.dal.ca/~pedpain/index.html Pediatric Pain

51. Resource Centers 4 Public and professional education 4 Develop national standards 4 Develop national guidelines 4 Materials on how to start a hospice or palliative care program 4 Program evaluation information

52. Resource Training Centers 4 CROATIA anica.jusic@zg.tel.hranica.jusic@zg.tel.hr 4 HUNGARY mhospicea@matavnet.hu 4 HUNGARY katalin.muszbek@hospicehaz.hu 4 POLAND dangel@medianet.pldangel@medianet.pl 4 POLAND jluczak@usoms.poznan.pljluczak@usoms.poznan.pl 4 ROMANIA hospice@rdslink.rohospice@rdslink.ro 4 RUSSIAfond@llgkb.ru 4 SLOVENIA Barbara.Ravnik@mail.ljudmila.org Barbara.Ravnik@mail.ljudmila.org

54. www.nursing.uiowa.edu/sites/PedsPain/index1.htm Pediatric Palliative Care

55. Institute of Medicine

56. Pain and Policy Studies Group Pain and Policy Studies Group www.medsch.wisc.edu/painpolicy/ 4 The purpose of this website is to facilitate public access to information about pain relief and public policy, including material published by the PPSG and other authoritative sources.

57. American Pain Foundation 4 an online resource center for people with pain, their families, friends, caregivers, the media, legislators and the general public.

58. Social Work Network 4 A list serve for social workers in oncology, geriatrics, HIV, Hospice, Nephrology and Pediatrics 4 A joint effort of the Project on Death in America and the Department of Pain, Medicine and Palliative Care, Beth Israel Medical Center, New York 4 For more information, contact Terry Altilio, ACSW.Terry Altilio, ACSW

59. Public Information 4 Patient Support Organizations –Disease specific support groups --Cancer & AIDS, Nat’l Heart Association –ABCD (Americans for the Better Care of the Dying) 4 Websites: WebMD, Cancersource, UNAIDS 4 Caregiver Organizations

60. Summary 4 Multiple resources exist for palliative care –Books, textbooks, self-study guides, journals, newsletters –Audio tapes, video tapes, CD Roms –Lectures, workshops, seminars, courses –Internet

61. MARY CALLAWAY mcallaway@sorosny.org