1. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk ‘Changing Faces is about enabling everyone to face disfigurement with confidence whether or not they have a disfiguring condition’ James Partridge OBE Founder and Chief Executive

2. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  Jane Pawluk Memorial Lecture  Appearance matters –  Disfigurement confidence for all  National Association of Disability Practitioners  Nottingham, 3 July 2009

3. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  A. Overview  B. Supporting a student who has  a disfigurement  C. Disfigurement confidence for all  D. Questions…

4. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  A. Overview

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11. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Challenging… Across cultures and throughout history villains have been associated with disfigurements. This has led to the assumption that a person with a facial difference will be frightening or sinister. … our expectation that heroes and heroines are conventionally good looking

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14. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk The First Lesson… “Hey – look at that man – What’s the matter with his nose?” “Hey look at that girl – Why is her face like that?”

15. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Looking and being looked at Looking is a social activity Stage 1 - …observational dyads… Stage 2 - …joint activity dyads… Stage 3 - …differentiated and enduring feelings for one another (Bronfenbrenner, 1979)

16. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk “It’s the inside that counts.” “We’re all the same underneath.” “Don’t judge a book by it’s cover.”

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18. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Cerrie Burnell

19. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  Is it just me, or does anyone else think the new woman presenter on CBeebies (Cerrie Burnell) may scare the kids because of her disability?  I didn't want to let my children watch … … I know it would have played on my eldest daughter's mind and possibly caused sleep problems.

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21. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk CBeebies controller Michael Carrington said she is warm and natural… "We think that in time all mums and dads and children will love her as much as we do."

22. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Miss Burnell was disappointed by the criticism but welcomed the discussion. "It can only be a good thing that parents are using me as a chance to talk disability with their children," she said. "It just goes to show how important it is to have positive disabled role models on CBeebies and television in general."

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24. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Manic Street Preachers

25. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  B. Supporting a student who has  a disfigurement

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28. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Social avoidance  loss of major sourse of well-being (Kellet, 2002) Self-esteem  number of positive social experiences per day (Bull and Rumsey, 1988)

29. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk ‘Having something to say’  This is a key social skill to enable a person with a disfigurement to manage other people’s reactions. Move the subject on smoothly Give brief explanation Acknowledge initial response (comment, question or hesitant approach)

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31. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Impact of Social Skills on Social Perceptions 1 Very Favourably 2 Fairly Favourably 4 Very Unfavourably 3 Fairly Unfavourably Person with unusual appearance Person with ordinary appearance Person with good social skills Person with poor social skills (Bull and Rumsey, 1998)

32. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  C. Disfigurement confidence for all

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34. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Responses to disfigurement ‘Stickiness’ in interactions (Davis, 1961) ‘Even though others may not consciously intend to treat a person differently or less favourably when they are facially disfigured, almost all people do, especially upon first meeting them’ (Kleck and Strenta (1980) 9 out of 10 people find it hard to link positive words and phrases to images of people with disfigurement (Goode, 2008)

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38. The First Lesson… “Hey – look at that man – What’s the matter with his nose?” “Hey look at that girl – Why is her face like that?”

39. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk “I guess that’s just the way his nose is. Look at my nose. It’s kind of ………………………………………. What’s your nose like?” “That’s the way her face is. My face is kind of ………………………. ………………………………… What’s your face like?”

40. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk Disfigurement confidence for all - summary Raise awareness of unwitting negative mindsets around appearance and disfigurement Provide opportunities to increase appearance confidence and inner- awareness for all Promote really good social skills for each and every encounter

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42. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  Thank you

43. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  D. Questions…

44. Changing Faces, Registered Charity 1011222, www.changingfaces.org.uk  Bibliography Bronfenbrenner, U. (1979) The Ecology of Human Development Cambridge, Mass.: Harvard University Press. Bull, R. and Rumsey, N. (1988) The Social Psychology of Facial Appearance, New York: Springer-Verlag New York Inc. Davis, F. (1961) Deviance disavowal: The management of strained interaction by the visibly handicapped. Social Problems, 9, p120-132 Goode, A. (2008) Disfigurement IAT Research presented at MRS conference, 2008, now being prepared for publication. Kellet, S. (2002) Shame Fused Acne. (p135-154) Ed: Gilbert, P. and Miles, J. Body Shame: Conceptualisation, Research and Treatment Hove: Brunner-Routledge Kleck and Strenta (1980) quoted in R.Bull and N.Rumsey (1988) The social psychology of facial appearance, New York: Springer-Verlag New York Inc.