1. 2010 Hematopoietic and Lymphoid Neoplasm Project Registry Operations and the SEER Program

2. HP-L Registry Operations Outline and Objectives: Incorporating hematopoietic database and rules into registry operations Casefinding Sequencing Case linkage and consolidation Death clearance

3. HP-L Registry Operations Integrating the Hemato DB and casefinding: E-Path/CAS Disease Indices Pathology and lab report review Physician office Handling obstacles

4. HP-L Registry Operations Newly reportable histology terms and codes 33 new codes and terms 3 newly reportable diseases Previously were /1 now /3 Case ascertainment Completeness

5. HP-L Registry Operations E-Path/CAS considerations: Incorporate new codes into casefinding and screening algorithms Refer to Tables D1a, D1b, D2 Use ICD-O-3 tables for upload Hemato DB text files can be uploaded

6. HP-L Registry Operations Disease Indices ICD-O-3 code list ICD-9-CM code list ICD-10 code list Code list text files can be uploaded Refer to “Display Codes”

7. HP-L Registry Operations

9. Path and lab report review Identifying new terms and synonyms ICD-O-3 list Table of new terms (D1a and D1b) Newly reportable terms (D2) Electronic search tool

10. HP-L Registry Operations Clinic and physician office reports Manual review of appointment logs Apply path review methods Electronic patient records Apply E-Path methods Incorporate reportable ICD-9-CM codes and terms (Hemato DB)

11. HP-L Registry Operations Implementation delays: Software upgrade/IT support delays Table of new WHO codes Table 1 SEER*Abs Generator http://seer.cancer.gov/seerabs/index.html

12. HP-L Registry Operations Case linkage and consolidation Use new terms and codes Determination of new primaries/sequencing is changed Incorporate new codes into matching algorithms Implement and execute new edits (NAACCR v12 metafile) http://www.naaccr.org/StandardsandRegistry Operations/VolumeIV.aspxhttp://www.naaccr.org/StandardsandRegistry Operations/VolumeIV.aspx

13. HP-L Registry Operations Case linkage and consolidation Increase vigilance when reviewing various documents to determine reportability and sequencing Document unusual/complex cases well May be an increase in follow-back requests

14. HP-L Registry Operations Case consolidation example: 12/2009 diagnosis: primary cutaneous follicle center lymphoma No ICD-O-3 code, hence coded to 9560 (NHL, NOS) Returns to facility in 2010; codes 9597 Do Not change codes for <2010 Dx Do Not sequence as new primary Danger of sequencing errors

15. HP-L Registry Operations Hemato DB and case consolidation: Consider rules, codes - including suggested primary, multiple primary calculator Review all documents for required data items, ie: Dx date, diagnostic confirmation, immuno-phenotyping

16. HP-L Registry Operations

17. Case consolidation and quality improvement: Review site, histology, CSv2, SSFs, Rx Specific histology terms and codes Track changes and edits Notify CTR of any changes to previously submitted cases

18. HP-L Registry Operations Conclusions Incorporate new terms and codes Apply coding rules and database Become skilled with database & manual Increase visual editing

19. HP-L Registry Operations Death Clearance ICD-10 list incorporated into CTR database includes updated codes Follow-back requests may be revised for specific hematopoietic and lymphoid neoplasms Little to no significant impact suspected

20. HP-L Registry Operations Questions? This work was supported by Contract HHSN26120000024C between the National Cancer Institute and the Connecticut Department of Public Health.