1. Cancer Survival Toolbox Lynn Barwick, LCSW Oncology Social Worker ¡Vida! Educational Series - Promoting Good Health

2. What is the Cancer Survival Toolbox?  A free, self-learning audio program  Survivors can learn at their own speed and in their choice of settings

3. HISTORY OF THE CS TOOLBOX Collaborative effort of patient advocacy, social work and nursing… National Coalition for Cancer Survivorship (NCCS) Oncology Nursing Society (ONS) National Association of Social Work (NASW) Association of Oncology Social Work (AOSW) A confirmed need, several studies showed the need existed in the field

4. Definition of a Cancer Survivor From the moment of diagnosis and for the balance of life, a person with cancer is a survivor. Because they are impacted by a loved ones diagnosis - family, friends, and caregivers are survivors too. - National Coalition for Cancer Survivorship

5. The Goal of Using the Cancer Survival Toolbox To teach newly diagnosed cancer survivors, their caregivers, and those who have been living with cancer for some time, important life skills that foster empowerment and successful self-advocacy.

6. Only 25% of oncology nurses and oncology social workers believe their clients have the skills needed to be active partners in the health care team. The Toolbox addresses a demonstrated need………

7. Arizona ranking: Lowest in cancers among men Second lowest in cancers among women.

8. So why are we here today if Arizona has the lowest numbers? According to ACS 2010 statistics: 1,529,560 deaths in US from Cancer 10, 630 deaths in Arizona from cancer 29, 780 new cases of cancer diagnosed in Arizona alone Of the newly diagnosed, many are uninsured and/or underinsured to cover the costs of care

9. The Cancer Survival Toolbox is important because survivors need to...  know how to find information  make the best decisions  interact effectively with health care team members, family members, insurers, and employers

10. Why Should Social Workers and Nurses Use the Toolbox?  There are many issues that are common to people who are dealing with cancer  Potential issues can become real and major challenges when they are not dealt with in timely ways.

11. Why promote the Toolbox to survivors and their families?  The Toolbox gives survivors a basic level of information from which to develop an understanding of their cancer and their treatment plan  The CST helps health care professionals use their time effectively and efficiently

12. The CST is a validated, culturally sensitive tool………  The Toolbox has been validated for use in culturally, economically, geographically, and cognitively diverse populations  The Toolbox case studies are culturally sensitive and varied

13. The Cancer Survival Toolbox Can be given to: Individual survivors, especially those who are newly diagnosed Can also be used in: Support group settings Psycho educational group settings

14. CST: All the tools you need for effective self-advocacy training  Six Basic Skills Programs  Six Special Topics Programs  Disease-Specific Programs  Resource Book and Web Links  Most in English and Spanish  Group Facilitator’s Manual  Evaluation tools

15. The Cancer Survival Toolbox Basic Skills Programs  Communication  Finding Information  Making Decisions  Solving Problems  Negotiating  Standing Up for Your Rights

16. Program One: Introduction to Communication Audio Clip from Communication Communication is “Saying what you need to say in ways that make it clear to others that what you have to say is important.”

17. Program Two: Finding Information Being able to use many of the different available resources, to find information that will help in understanding cancer and its treatment.

18. Use Reliable Resources: My Favorite Resources are: American Cancer Society (ACS) www.cancer.org National Cancer institute (NCI) Cancer Information Service www.cancer.gov NCI Physician Data Query (PDQ) www.cancer.gov/cancertopics/PDQ Cancer Care www.cancercare.org

19. Program Three: Making Decisions Identifying how you make decisions, how your style can work or how it can be improved, and how to weigh the pros and cons of deciding about cancer treatment.

20. Program Four: Solving Problems Following the steps needed to solve a difficult situation in your life or daily activity.

21. Program Five: Negotiating Talking with people involved in your health care, so you can get what you need to achieve the best quality of life possible

22. Program Six: Standing Up for Your Rights Learning to actively do something in your own best interest… Also known as self-advocacy

23. Self-Advocacy It’s not about activism Not just for those who are energetic, vocal and assertive Begins at a very personal level Includes the ability to understand information Make informed choices about treatment, including 2 nd opinions or no treatment if that is their choice Find resources and support systems

24. CST Special Topics First Steps for the Newly Diagnosed Topics for Older Persons Finding Ways to Pay for Care Caring for the Caregiver Living Beyond Cancer Dying Well - The Final Stage of Survivorship

25. First Steps for the Newly Diagnosed Information that needs to be gathered and decisions that need to be made in the initial days and weeks following a cancer diagnosis.

26. Topics for Older Persons Cancer is common among older persons but being “older” should not add to the burden of the disease.

27. Finding Ways to Pay for Care Premise: Insurance problems can pose barriers to getting quality cancer care. Finding and paying for care is difficult, but not impossible.

28. Finding Ways to Pay for Care Goal: Help survivors prepare for and cope with the challenges of paying for care, medicines, and supplies, when dealing with cancer and its treatment.

29. Caring for the Caregiver Goal: To assist the caregiver in meeting his or her individual needs, while providing the best care and attention to the cancer survivor.

30. Caring for the Caregiver  Strengthen skills and abilities and find and use new resources  Do a much better job of nurturing everyone involved – including the caregiver

31. Living Beyond Cancer  Common physical effects of cancer and its treatment, and maintaining a personal health history  Sexuality and fertility  Supporting family relationships  Emotional aspects  Health directives, wills and trusts, power of attorney, and financial planning  Living with hope: Dealing with uncertainty

32. Dying Well – The Final Stage of Survivorship An informative, supportive, and reassuring program designed to offer guidance and understanding about choices, resources, and what to expect during this last stage of survival.

33. The Cancer Survival Toolbox Available at no cost! To order, call toll-free: 877-NCCS-YES 877-622-7937 Listen, read or order online: www.canceradvocacy.org Also Available: In Spanish In Chinese (print only)

34. Local Resources American Cancer Society (ACS) 1-800-227-2345 www.cancer.org Positive Impact, contact Holly at www.positiveimpactinc.org or call at 1- 480-899-7791 or fax to 480-659-7581 Well Woman, provides exams, mammograms, pelvic and pap www.wellwomanhealthcheck.org LinkIN.nursing.arizona.edu