1. Donate Life: An Overview of Organ, Tissue and Eye Donation UW Health Organ Procurement Organization

2. Why is Organ Donation So Important?  There are nearly 102,000 people currently waiting for a transplant in the United States, more than 2,500 are children  Every 13 minutes – another name is added to the waiting list  Despite record numbers of transplants - the list is growing at the rate of more than 300 patients each month

3. Why is Organ Donation So Important? (cont.)  6,500 adults and children died awaiting an organ transplant last year.  18 people a day die on the waiting list.  More than 90% of Americans approve of organ donation, yet less than half say “yes” when asked to make their decision legal

4. US Transplant Waiting List Type of Transplant# of Patients Waiting Kidney 79,642 Liver 15,821 Lung 1,935 Heart 2,778 Heart-lung 84 Kidney-pancreas 2,235 Pancreas 1,504 Intestines 212 Total patients 101,949 Source: Organ Procurement and Transplant Network Updated 5/3/2009

5. Wisconsin Waiting List Type of Transplant# of Patients Waiting Kidney 1,079 Liver 214 Lung 66 Heart 77 Heart-lung 0 Kidney-pancreas 55 Pancreas 11 Intestine 2 Total patients1,466 Source: Organ Procurement and Transplant Network Updated 5/3/2009

6. Challenges: Donors, Transplants & Waiting Patients * Data based on snapshot of the waiting list on the last day of each year

7. What Can Be Donated?

8. Kidneys  End Stage Renal Disease  Diabetes with Renal Disease  High Blood Pressure  Polycystic Kidney Disease

9. Heart  Cardiomyopathy  Coronary Artery Disease  Congenital Heart Disease  Valvular Heart Diseases

10. Lungs  Emphysema/COPD  Cystic Fibrosis  Pulmonary Fibrosis  Primary Pulmonary Hypertension  Congenital Defects

11. Liver  Hepatitis  A,B,C  Cirrhosis  Alcohol  Medications  Biliary Disease  Metabolic  Neoplasms

12. Isolated Pancreas  Diabetes Type I without Renal Disease  Hypoglycemic Unawareness  Pancreas after Kidney Transplant

13. Simultaneous Kidney- Pancreas  Diabetes Type I with End Stage Renal Disease

14. Small Intestines  Short Gut Syndrome  Severe Vascular Disease  Frequently in Children

15. What Can Be Donated? (cont.)  Skin for burn victims  Bone  Connective Tissue  Ligaments  Tendons  Heart for valves/pericardium  Arteries and Veins  Eyes (corneas) Tissues and Eyes

16. What Can Be Donated? (cont.) The Differences…. Organ Donation The patient must be maintained by a mechanical ventilator Organs must be properly preserved and transplanted quickly Life-saving procedure Tissue/Eye Donation Occurs in the first 24 hours after the heart has stopped beating The tissues can be preserved and used at a later date Life-enhancing procedure

17. Current Criteria for Organ Donation  Patients who have been declared brain dead OR  Patients with severe neurological injury and family and MD are discussing withdrawing ventilator support  Up to age 75 – flexible – there was a 96 y.o. donor this summer  HIV – (at this time)  No active malignancy  Exception: Primary CNS tumors Note: Only the OPO can determine donor suitability

18. Organ Preservation Time  Heart: 4 to 6 hours  Lungs: 4 to 6 hours  Liver: 12 hours  Pancreas: 12 to 18 hours  Kidneys: 72 hrs.  Small Intestines: 4 to 6 hrs.

19. Common Questions in Regards to Donation ?

20. “ Will the doctors do everything they can to try and save me if they know my wishes to be a donor?” Absolutely  OPO is separate from the medical team treating the patient to ensure there is not conflict of interest  Donation is only considered after all efforts to save a patient’s life have been pursued by the medical team

21. “How does religion relate to organ donation?”  The majority of religions support organ donation  Most religions view organ and tissue donation as a charitable act  Talk to your religious leader about donation

22. “Will donation disfigure the body?” No  Organs are removed through surgical incisions  Areas for tissue donation are reconstructed and concealed by clothing  A family is able to have an open casket funeral

23. “Does donation cost a family money?” No  Each recovering agency pays for all expenses associated with the recovery  Those costs are passed on to the recipients and their insurance companies  The family is responsible for the normal funeral expenses

24. “Will donation cause any delays with funeral arrangements?” No  The recovering agency will make certain the body is released to the funeral home on time  No extra planning is required by families of organ and tissue donors

25. “Can you pay to get an organ?” No Allocation Criteria  Blood type  Medical urgency  Tissue match  Waiting time  Organ size  Immune status  Geographic distance

26. “Will the organs be transplanted locally?” Yes, If….  There are local recipients for the organ  There are no status one patients in our region (livers only)  There are no perfect tissue typing matched recipients in the U.S. (kidneys only)  Approximately 85-90% of all organs donated here are used for transplants here

27. “Can the Donor Family and Recipients meet each other?” Yes  Initial contact is coordinated by the OPO because of federal privacy regulations  All recipients are encouraged to write to their donor families  Meetings can be arranged if both parties sign a consent and release of information form

28. The Two D’s 1.Decide Get a Donor Dot on and sign your Driver’s License or State ID card 2.Discuss Talk to your family about your wishes In Wisconsin – until you turn 18 years old we must have the consent of your family!

29. Legal Next of Kin 1.Healthcare Agent 2.Spouse 3.Adult Children 4.Parents 5.Adult Siblings 6.Adult Grandchildren 7.Grandparents 8.An adult who exhibited special care & concern 9.Legal Guardian 10.Coroner or Medical Examiner

30. Through donation......lives are changed forever