1. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk

2. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke Support, the European perspective Jon Barrick WSO Board member, SAFE secretary

3. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke Alliance for Europe

4. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk SAFE Membership 2010 The Stroke Association Austria Belgium Catalonia Czech Republic Finland France Germany Hungary Iceland Israel Italy Netherlands Norway Poland Slovenia Sweden Ukraine Spain Croatia Different Strokes UK Connect

5. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk What is the Stroke Alliance for Europe trying to achieve? Our objectives/aims are outlined in our constitution. 1. To promote awareness and understanding of stroke; to promote prevention;

6. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Objectives to identify those at risk; to improve access to appropriate treatment and care for persons affected by stroke; to improve the quality of life of people affected by stroke and their families and carers;

7. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Objectives to promote better access to accurate and understandable information about stroke; to increase the priority given to stroke by policy and decision-makers and by health care providers;

8. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Objectives to promote research on stroke and related areas; to co-ordinate the efforts of national stroke patient groups in Europe. to encourage the growth of stroke organisations reflecting the views of stroke survivors and their supporters.

9. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk

10. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk SAFE European Stroke Awareness day second Tuesday in May each year Further details on the SAFE website: http://www.safestroke.org/

11. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk European level Demand equality of action against strokes and their effects To get stroke disease a decent share of the research budget To lobby for prevention action Ensure medical and social care programmes are run to the standards expected

12. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk World Stroke Organisation Affiliated to World Health Organisation SAFE are members of the WSO Run World Stroke Day, October 30 each year Run World Stroke Congress every 2 years, now incorporating sections on growing stroke support organisations www.world-stroke.org

13. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk

14. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk SAFE Membership 2010 The Stroke Association Austria Belgium Catalonia Czech Republic Finland France Germany Hungary Iceland Israel Italy Netherlands Norway Poland Slovenia Sweden Ukraine Spain Croatia Different Strokes UK Connect

15. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Most important thing is to have strong stroke patient organisations at local and National level Local Can provide support to stroke survivors and families Can provide people to do things Provide base for contact

16. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Most important thing is to have strong stroke patient organisations at local and National level National May be local/regional groups organised to do things at National level Enable organised activity to change national laws and decisions Provide base for contact

17. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Different Cultures in each country lead to different issues Northern Scandinavian, State or National lottery funded France, Balkans,Southern Europe, more regionally based self supported Eastern Europe, no NGO tradition Netherlands more similar to UK Germany, company foundation

18. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk More people involved, leads to more possibilities Very important that we grow stroke survivor support organisations in Eastern Europe But also important to continue growing stroke organisations in the rest of Europe.

19. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Now is the time Patient organisations are required to be part of research Patient organisations are increasingly seen as important to policy formulation Patient organisations are seen as important source of ideas Patient organisations are the conduit to “hard to reach” patients

20. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk European Community funded Stroke research EIS, European Stroke Network, EuroHYP Wake Up

21. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk We’ll support all stroke patient organisations Whether in Beveridge health systems where health care is paid for from public taxation Or in Bismarck systems where citizens have to buy their own insurance Or in hybrids of the two

22. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Campaign activity Campaign across Europe on an issue Specifically ask for others who care, to join in supporting the campaign Must have means to engage them

23. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Public relations work Getting stories with a request for people to be supporters in local newspapers, national papers and magazines, TV and Radio. Maintaining a website Providing information to places where stroke surviors and their families read things with request for readers to be supporters.

24. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk

25. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk So over next 5 years.. Want to see lobbying progressing at European level Majority of European Countries with stroke survivor support organisations in place Campaigning and awareness work at higher level in each country than it is now Improvement in stroke care provision and standards More support to help newly established organisations

26. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Together we are stronger Stroke Alliance for Europe Together we can improve things faster

27. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Stroke helplineWebsite 0845 3033 100www.stroke.org.uk Questions What can we do to strengthen stroke support organisations here in the UK? And in Europe? Should we have speaker from a sister European organisation here next year?

28. Stroke helplineWebsite 0845 3033 100www.stroke.org.uk The Stroke Association and Life After Stroke